mood swings

darnold1975

Out Of The Darkness, Into The Light Part2

Out of the Darkness, Into the Light Part 2

1.29.15

“I want everyone that has been abused by someone in their childhood to know that you can get past it. Having DID is not the end of the world; it’s the beginning of your new life. DID allows the victim of exceptional abuse the ability to “forget” the abuse and continue living. Without it, I may have gone crazy as a teen and spent my life in  a psychiatric hospital.” 
― Dauna Cole, A Shattered Mind: One Woman’s Story of Survival and Healing

One of the major issues with this disorder are what most people refer to as ‘alters’ or other personalities.  What I’m going to try to do is to paint the picture for you in a way that I’ve been learning how to understand this.  So, imagine you have an apartment complex and each person has their own room.  Except in these rooms, there are horrible memories that are behind doors and no one can get in without a key.  The only people that have these keys are my therapists and my alters which help keep anything else from hurting me.  This is what has protected me throughout the years.  However, some of the coping strategies that worked then DO NOT work now.

Alters can also range in age depending on at what age the abuse occurred.  As dysfunctional as things can get at times the alters as a whole are referred to as a ‘system.’  Until consciousness together can be shared, there might always be memory loss.  The amnesic episodes are, at the very least, scary as hell.  The memories that I often have include only flashes of pictures of the day or days. The information date, time and situation is usually not available.

Alters and systems are as individual as a finger print.  There is no ‘cookie cutter’ way of treating DID.  The most important thing to me hands down is the relationship with my therapists.  Without that relationship, recovery is futile for any issue or disorder.  I trust my therapists enough to take me into the depths of the most terrifying events that have ever happened to me.  This relationship that has been  allowed to happen, as close to trusting, as possible has taken 2 years now with one therapist.  However, both the ups and downs of these relationships has lead to the progress now being made by leaps and bounds.  Painful as this process is, I can only hope that things actually get better.

The tenets in these rooms represent parts of the person you know as Dana.  I will not get into discussing how many or their names.  I can tell you that while growing up with some of those reading this blog alters were already formed or forming.  Not only do these alters hold memories, but they also function in different ways.  However, sometimes the problem with the alters is that they function completely independent from the individual known as the ‘host.’  This is usually the mood swings that you might see. Alters develop out of traumatic events and sometimes more than one during a single traumatic event.   Just to put to rest for those that don’t know my parents, no they were not any part of the abuse.

Alters actually develop when the brain compartmentalizes the traumatic event, memories, etc.  The trauma is so overwhelming and the mind and body both have to survive, that the only way the individual knows instinctively to survive is by developing a new alter even though they may be unaware at the time.  Often times, it is many years down the road that survivors even realize that they have alters.  Therefore, many survivors are trapped in the cycle of the mental health system being misdiagnosed for years and much money spent on treatment for the wrong diagnoses.

Often times, many people say, “I’ve been through worse things and I don’t have alters.”  The only answer I have found is that what’s traumatic for one person may not necessarily be traumatic for another person.  There is also a genetic predisposition to being able to dissociate.  And dissociation is key to the formation of alters.  What is known is that trauma of any kind effects the brain permanently.  Severity depends on how long and what type of trauma was occurred.

You can most definitely have PTSD without meeting criteria for DID.  DID cannot exist without a diagnosis of PTSD since that is a large part of how the disorder forms.  DID also usually always entails some form of early childhood sexual abuse although ‘splitting’ in adulthood is uncommon.

“Another of the difficulties of having DID is the denial. DID is a disorder of denial. It has to be because if the original person knew about the alters and felt their pain, they would either go crazy and be hospitalized permanently, or would die.” 
― Eve N. Adams, A Shattered Soul

#Thispuzzledlife

darnold1975

Out Of The Darkness, Into The Light

Out of the Darkness, Into the Light Part 1

1.1.2015

 “Dissociative parts of the personality are not actually separate identities or 
personalities in one body, but rather parts of a single individual that are not yet 
functioning together in a smooth, coordinated, flexible way. P14” 
― Suzette Boon

Since this begins a new year, I thought I would start it off with a ‘boom’ of reality from our world.  The topic that I will discuss is one that has such stigma attached to it that it’s has taken me months to muster the guts to discuss it.  This is a topic that hits home in the best/worst kind of way.  I’ve written for months now explaining some of the many symptoms that I experience mostly on a daily basis.  2014 was no doubt one of the most difficult for me, Mel and Marshall.  However, we as a family including my brother have shed tears together, as well as, have a lot of laughter. I have also smoked a ton of medical marijuana just to be able to live day to day.

I figured that a few months ago when I ‘came out’ out as a medical marijuana consumer, the thought crossed my mind that even though people can be cruel when it comes to mental illness, that since this blog is about MY healing I would ‘come out’ about my particular illness.  Many have read my blog since day one and for that I thank you.  I would also like to say that while reading this particular post that you just keep an open mind.  I’m not going to try to change your opinions or perceptions of mental illness.  I’m simply going to try and paint you a picture of mine to the best of my ability.

I have Dissociative Identity Disorder (DID).  Now for those with no therapy background, I can tell you that this is the same thing as Multiple Personality Disorder.  And now your opinions and thoughts begin to race. The only references that most of you have are those of the books/movies The Three Faces of Eve and Sybil.  Hollywood did a horrible job painting a picture of what those of us with this disorder look like and how we function on a daily basis.  Guess what?  I’m still the same Dana that you grew up with and loved.  I just have a world that has formed inside my brain that I didn’t realize everyone didn’t have.  I didn’t question it because to me that has been my normal.  Does this diagnosis make me ‘crazy?’ Should it make you fear for your family’s life if I happen to be around? Does this make you want to run as fast as you can in the opposite direction?  I can promise you that all of that energy would be wasted.

The symptoms that I have mentioned in other posts are all true and are a part of daily life for me.  I can’t tell you what it’s like living with a spouse with this particular disorder because only my wife can answer that.   I can tell you that it’s the most intricate puzzle I’ve ever had to try and figure out.  Having only had this correct diagnosis for almost 1.5 years we, as a family, have had to adjust.  We were already adjusting prior to Marshall being born.  His birth somehow set off a bomb inside my brain that retriggered everything that has happened to me.  Not his fault or mine, just our reality.

With both my wife and I having Master’s Degrees in Counseling, we were baffled when we never even considered this diagnosis as one that would fit.  Even in graduate school, because of limited time to study the Diagnostic and Statistical Manual of Mental Disorders we didn’t see the signs.  If you want to know why we had limited time to study on this manual, just take a look at it one time and you’ll see that it could take years to be taught thoroughly and it’s like computers changing all the time.  This diagnosis is still part of a great debate about whether or not it’s an actual diagnosis. I can’t answer for other families but for our family it’s very much a REAL diagnosis.

Some people have, in fact, asked Mel if she felt safe around me with Marshall.  The answer is always the same….yes.  There’s a lot of self education we’ve had to do because of the stigma within the mental health communities, as well as, those outside that community.  We don’t have all the answers yet to how and why and neither does science. I can tell you that the very slow journey of recovery from a lifetime of trauma actually began when the correct diagnosis was given.  Now I finally had answers to why sometimes I would answer myself and had what I thought were ‘loud’ thoughts.

To see me today, I’m the same goofy ass, class clown that was and still is friends with Levi Pierce.  I have scars on my arms.  It’s nothing to be afraid of, it’s how I survived.  You don’t have to be afraid to have your kids around me. I’m not going to cook them and eat them.

DID, as I’ll refer to the diagnosis from now on, is not near as scary as the picture that has been painted.  Does it have scary moments? Of course.  So does Bipolar, Major Depression, Schizophrenia and any other disorder.  This disorder requires a very patient and understanding spouse, as well as, professionals to be able to deal with some unpleasant moments.

The title of my blog “This Puzzled Life” is all about putting these scary pieces back together enough for me to be able to enjoy doing what I love…..helping people.  Once piece at a time is how I’ll learn to live with this disorder.  Trial and error is how it’s been for almost 1.5 years now with the correct diagnosis.  Prior to the correct diagnosis it was and still is at times a total nightmare.  Also, life continues regardless if I have a disorder or not.  Friends and family still pass away which can complicate things.  But, this too, is just the way life operates.

 With very patient but firm therapists, I’m finally being able to look very closely at some of the horrors.  The ‘alters’ or other personalities, if you so wish to call them, have their own story because they were created by the mind at very key times in the abusive history.  Alters together are called a ‘system.’  Each ‘alter’ has his/her own function within the system.   Each person with DID has a system much like that of a finger print.  Not every therapy works the same like a cookie cutter.  Do not be afraid to ask what you don’t understand.  Your fears come from what you don’t understand.

“DID is about SURVIVAL.  As more people begin to appreciate this concept, individuals with DID will start to feel less as though they have to hide the shame.”

–Anonymous

There are also no psychotropic meds that are specifically designed for this disorder.  This also explains why for the first 3 years of seeing a psychiatrist none of the meds worked for an extended period of time.  Some antidepressants, anti-psychotics, axiolitics work well for some alters and not for other alters.  I was taking Parkinson’s medications for the side effects of other medications while feeling horrible from the side effects.  So, that represents toxicity to me.  My psychiatrist offered as a last resort the state’s Medical Marijuana Program because of all the mood swings, PTSD, hallucinations and every other symptom I would have at that time.  Now believe what you want about medical marijuana, but I can personally tell you that that medication as it is so treated, is one of the reasons my wife, son, friends and family still have someone they love living.  The memories of the trauma alone are more than I can handle.  The effects of PTSD steal your sanity one image, smell, thought or sound at a time. The body memories while very painful become a little more tolerable with the marijuana and acupuncture.

This is why I’m also so big on people recognizing and working on their own trauma.  That way people like me who set out to enjoy life don’t have to wait 40+ years to understand what that means.  I’m representative of people who were too proud or stubborn to face their own demons.  This too was not a “choice.”  I understand the concept of ‘free will.’ Where was my free will?  That’s right, there was none.

People from all walks of life have this diagnosis but go on for years with the wrong diagnosis because so much can mimic other diagnoses.  There are also those still that live with this diagnosis and are very successful members of society.  The trauma didn’t just occur overnight.  It’s has happened my whole life so, the process won’t resolve itself overnight.  There is a lot of painful elbow grease that has to be put into this recovery.  The point is to keep putting one foot in front the other.  I’ve never backed down from a fight and won’t start now.  You just can’t take the athlete out of me.

I will take you through the victories and the setbacks of this journey.  Hopefully, I’ll help educate you while also healing me.  The only thing I ask is keep an open mind.

#Thispuzzled