The Teachings of a Pandemic

 

A person in public without a mask during a

 pandemic is a walking septic tank.”

 ― Abhijit Naskar.

***This is just a little nugget of gold during the pandemic that I never posted.***

Until very recently I’ve thought that my days of writing were days of long ago. I was writing one day and the next day I fell into a big dark hole of nothingness. My last blog entry on September 25, 2020, entitled Beyond the Mask is about how my life was beyond typical Halloween themes and rewritten into a language that I still wouldn’t understand. Today I sit, one year later, with the latest ideas and revelations about my ongoing therapy. And realizing how sometimes the simple reasons for a smile would once been seen as insignificant.

A pandemic has a way of wiping the smiles off the faces in society. And sometimes society tries to force the pandemic out only for the pandemic to re-emerge with the upper hand. I fell victim to Covid-19 twice with the most recent adventure only a couple of weeks ago. This time, however, I had to cuddle with a blood clot in one of my lungs. How I contracted Covid-19 was sort of perplexing since I hate being in public to a point of phobias at times. And the seclusion for safety by the virus had me fearing everything that much more. So, these days I’m having to force myself to go in public even if it’s just riding in my vehicle or walking down the street. 

What I have enjoyed are the relationships with my cat Coco, my new cat Tinkerbell and my children. Copeland and Marshall have a healthy fear of the virus with comical threats “that they might not breathe again if they take their masks off.”   The boys tell me things like, “Momma I love you so much that I’m going to fart on you next time I see you.”  What boy mom doesn’t melt when her babies say things like that? “And when I see Coco, I’m going to fart on her too!”  Yep, we keep it real like that. I will take that any day over losing one of my children to the virus.

Coco has gone from my sweet kitten to a very voluptuous and very entitled cat. Oh, how I love my Coco! Me and the boys have renamed her as “Coco Momma Lita.”  These days we just refer to her as “big and beautiful.”  Nothing could’ve prepared me for the next little beauty in our lives……Tinkerbell. Or “Tink” for short. Early on I thought the scene might play out like it did for Marley the little kitten that I will never forget. Again, I adopted her from a vet clinic and again this kitten was sick with a big, bad dose of intestinal worms.

Me and this little calico beauty were just meant to be together. I had never seen so much diarrhea in all my life. The stress was unimaginably high for us both. I was headed straight towards psychosis and all she knew was play, play, play and poop. I was lucky in that she was able to hold her own until the medicine began working. But this little girl was determined to make it, and I was determined to somehow make it through a bout of psychosis. All you must know is that it’s scary and you can’t hear what I hear. 

While I took a break from writing my therapy didn’t end. I’ve continued to meet with coach, and I’ve found a new love for scrapbooking. And my “head mates” like that activity too. So, during this pandemic I’ve still found a way to give “my guys” a voice even on telemedicine. So, what has this pandemic taught me? Persistence.

“With COVID-19, we’ve made it to the life raft. Dry land is far away.” 

Marc Lipsitch, epidemiologist

**Don’t forget to watch the video!**

#thispuzzledlife

Coronavirus And Social Distancing

Coronavirus and Social Distancing

Day 1: I have stocked up on enough non-perishable food and supplies to last me for months, maybe years so that I can remain in isolation for as long as it takes to see out this pandemic Day 1 + 45 minutes: I am in the supermarket because I wanted a Twix
—Sir Michael Tweet

With all the necessity of social distancing due to the Coronavirus, I am reminded how not too long ago I chose social distancing on my own. For a couple of years, I chose to have limited contact with the outside world so that I could focus on my therapy. Then I felt the relief of knowing that I had begun to heal enough to make some adult baby steps back into a world that could put me into sensory overload within minutes. I remember the many time I would begin having cold sweats and vomiting from having to go to Walmart or drive on the interstate or just to drive back and forth to therapy. My anxiety would get the best of me and I would, at times, must pull over at a gas station and try to get grounded enough to be able to drive the rest of the way home. And then to walk into my dark and cold bedroom and collapse on the bed for a couple of hours before I could even turn a light on.

It was a very lonely way of living, but worth the pain of the loneliness. Today, the social distancing I’m still separated from friends, but my family is just within feet if I need company. And this time its all about trying to survive a pandemic. I’m usually working on some type of therapy assignments. I’ve put in the work that could’ve earned me another degree but its all worth it. I’m going through a lot of growing pains in my therapy right now. Coach is leading the way and I’m doing the work.

Corona Virus. Virus Cells Or Bacteria Molecule. Flu, View Of A V

At times I miss my way of life in Texas, but I sure enjoy having people around that I have a lifetime of familiarity with. I continue to battle anxiety, depression and the flooding of memories when life was much more difficult. Now the battle is also about trying to dodge a virus that seems to kill anyone in its way. I’m trying to find a source of humor as I always do but I have a healthy fear instead. Solitude allows for people to focus on what’s important in life in a way that daily life tends to help distract. And for many people it’s boring or uncomfortable. For me, I don’t try to bombard my brain too much with news that’s scary. I just try to be informed and leave it at that.

I worry for friends and family and our nation at what’s happening throughout our nation and the world. But I also try to have a focus on continuing to help heal wounds that have opened. I look at my severely scarred arms and feel the pit in my gut as my heart also opens and drips red tears at days gone by. My misty eyes and brain tell me there was a time when the pain was much worse at the loss of friends. I still cry for my teammates that were hurting at that time when their worlds were changed forever. I cry for yet the loss of more friends that I’ve buried deep in my psyche until recently when those memories have become unearthed. I must tell myself that now my tears are about healing and they won’t last forever.

Growing pains hurt and there’s no other way to put it. Change is sometimes uncomfortable. Acceptance of situations and their reality can hurt. And becoming a new and better me continues to hurt with each painful step forward. Just the knowing of my own capabilities of breaking the chains that have safely kept me bound for many years scares me. Trusting enough to unbind myself as painful as it might be sending a pain and fear over me that cannot be described all in the name of healing. And to know that my tears and fears are validated as I do this work leaves me grateful with each assignment.

May everyone be protected and able to work on some part of ourselves while our nation and communities struggle to fight a pandemic that’s killing our loved ones. Work on relationships that are here today because tomorrow it could be just a painful memory. God bless our country and loved ones.

We have toilet paper—no worries
—unknown
#thispuzzledlife

“Hey Pot. This Is Kettle.”

“Hey Pot, This Is Kettle”

“I decry the injustice of my wounds, only to look down and see that I am holding a smoking gun in one hand and a fistful of ammunition in the other.”
― Craig D. Lounsbrough

One thing that most people will tell you about me is that it’s hard to have any kind of a relationship with me unless you have thick skin or can separate behavior from the truth. Why is this? Well, I can only say what I believe to be the truth. I most often self-sabotage relationships in order to keep from getting hurt. This doesn’t mean that the person I sabotage the relationship with did anything wrong. Sounds odd? Trust me it is.
So much of my life has been about wearing masks that being on the hunt for my authentic self is proving very difficult. Everything about relationships scares me. I fear people leaving and/or dying. And I also fear people hurting me. Not so surprising if you take note of my trauma history. Confusing for me and other people yes. What makes me angry is that before all the chaos in my life began relationships held very high priority for me. They were never replaceable. The relationship that I had with that person was as individual as they are.

When this sabotaging happens it’s because I’ve gotten scared. Either the person has seen someone other than “the clown.” When people begin to see me as someone other than that friend they like to hang out with and laugh I get very scared. Because in my experience those that see the nice side of me first might leave me at the first sign of trouble. I fear judgement. And I fear their rejection if they don’t like the truth. So, instead of just waiting to see the outcome, I control the outcome.

pot calling kettle black

I had good relationships at one that that once they saw the effects of abuse on me, they run. Once they’ve seen the scars, been around my extremely intense mood shifts and paranoia they leave. As a result, I bought into the belief that “I wasn’t worthy of good relationships because everyone leaves eventually.” This in turn adds fuel to the fire of self-hatred and my self-harm escalates. Next relationship the cycle continues until you get tired of the painful emotional toll that it takes, and you become a prisoner of to your home to keep from having contact with people out of fears. I then sabotaging through self-harm and isolation further worsening my condition. This then leads to more depression and anxiety and lack of social stimulation. Therefore, anytime I try to be around other people, in public, the overstimulation is just too much because I live a rather bland existence.

This is something that coach and I face with me. Not to mention the scared alters always paranoid and looking for danger at any turn. But I continue to work towards a more permanent solution so that I can keep meaning relationships in the future. First, I must get used to being in public around people and all the different verbal and visual stimulation of everyday life. Fingers and toes crossed that this goes well. I can promise you that I win the “Most Harded” award every year.  Not something to brag about but always true.  I always chuckle when I tell someone that they’re being hardheaded. Their response, “Isn’t that the pot calling the kettle black?” All I can say, “Why yes, it is.”
#thispuzzledlife

The Lost Child (Poetry)

The Lost Child (Poetry)

People have seen me as feral

And needing to be whipped more as a child

One thing is for sure…..

She needs to be tamed and not allowed to run wild.

 

A gentle giant came into her life,

And taught her fundamentals and the power of a

smile.

To never give up is how an athlete lives,

Direction received by a lost child.

 

You broke her down brick by brick until she was stripped

almost to zero.

But you forgot the one thing that wouldn’t stop…a beating heart

that was looking for another hero.

The lies, humiliation and manipulation cut like blades on the arms of a child

How do you tame this child running wild?

 

Prince Charming is how he portrayed himself

But she wouldn’t be put up on a shelf.

For the bricks already torn down exposing her soul

Would further be destroyed and she would be left out in the cold.

 

Tears were seen as childish and weak

How do you hide that which hurts so deep?

Internally you step back and let your “new friends” deal with this creep.

Do what you have to do but don’t make a peep.

 

Getting an education would lead to freedom they said.

But no one saw what he had already done to her naive and vulnerable head.

“You’ll never be anything without me” he would say

She left him with the last bit of energy she could muster and got out that

very day.

 

Brave as she was most never knew

To leave and stay gone never to return to the hellish days with him, for she

was finally through.

Back to the world and running wild

She would still need guidance but only through love for this lost child.

 

Her ROCK she’s known for several years said, “some people can’t see the

beauty of a person” and with that she shed some of her first tears.

What would she do now with the freedom of a new life?

She would be introduced to her soul mate that she would later take as her wife.

 

Her passion she would do but not for long

The grip he still has on her was not yet gone.

Someone else she was becoming and started to resemble him

They would both feel the pains of having to sink or swim.

 

Two little boys would be the apples of their eyes

But when her ROCK disappeared she couldn’t silence her cries.

For she would be floundering with no direction and again running wild.

With a broken heart and hurting soul of a lost child.

 

How could she possibly heal from so many quickly leaving?

It appeared that she would be setting out on another road of more

painful grieving.

The decision was made to start completely over again

Not knowing what would happen or if she would ever again have friends.

 

Her life became a floor surrounded by four walls

In another state she would once again walk these new, dark halls.

For again she’s living a life and running fast and wild,

But her new coach would see past the actions and into the

heart of a lost child.
By Dana Landrum-Arnold

#thispuzzledlife

The Healing Power of Strangers

The Healing Power of Strangers

“The wound is the place where the light enters you.”
― Rumi

Today was therapy day which was the first session since our big internal revelation about functioning as a team.  After some formalities in conversation we start our work with the our internal group all in one place.  Our protector stands at the plate with a serious, yet also playful, tone as the one who would take direction for the group.  Her blazing stare along with those of her “posse” is enough to cause hesitation and chills with many.  She stares at all members with an almost, “I dare you to step out of line” gaze.  “Coach” then directs her to address those most ostracized. She reluctantly begins to speak to these nicely as she’s told.  When asked what she thought she responds with, “those words tasted like vinegar rolling of my lips.”  The therapeutic point was eventually made, understood and internalize later in the session. And yes, we are still chewing on all of that.

The topics that I despise the most is food, eating and body image soon became the topic of conversation.  The correlations between this struggle and particular traumas were addressed.  And then came the topic about a specific food that I can almost never turn down….SUSHI!!!!!  The is an internally approved food but one in particular like to eat sushi like it’s the only “life force” for survival.  The protector is explained to about the importance of not being so rigid with food choices and abusive comments.  And of course when even internal children are around they pick up on things said by “coach” too.  The kids start shouting with excitement, “Chicken nuggets and ketchup packets…HOORAY!”  Then statements spoken are, “Can we have sushi tonight? Please!!!”  Rolling her eyes she sternly but calmly says, “No.”

We get our assignment for the coming week and I tell “coach” goodbye until next time.  I leave there nervous about the teen’s distaste and controlling nature about eating.  And our little natives were definitely restless.  Over and over I would hear, “Please let me have some sushi!!”  “Yea and chicken nuggets and candy too!!!!  And Ketchup!!!”  I knew that she wouldn’t tolerate much more but the  chants would not stop.  She tries to stay restrained but frustration leads to her snapping at those chanting, “Stop it!  Just stop it!  I said No!”  The children always seem to be protected from the majority of her abuse and they certainly know this.  A certain little 7 year-old says, “Coach says for you to not be an asshole.  And you’re being an asshole. I’m going to tell her!”  This, thankfully, seems to be the only bad word that he says but he can definitely use it liberally at times.  She huffs and puffs like she’s about to blow the house down and says through gritted teeth, “Fine go get some sushi then!”  Cheers ring out while she grumbles.

change your thoughts

We FINALLY settle on a place for the beloved sushi and make a B-Line for the restaurant.  Once there I have a couple of tokes of my medicine with the hope that I can head off the already rising anxiety.  I soon start to relax and get out of the car to watch the sushi piece-by-piece going to meet its maker.  I quickly notice different people in the restaurant and hope that no one can seem me.  Luckily, everyone’s attention seems to be on their own meal or conversation and they don’t notice me.  I fix my plate and then sit down at my table.  I start indulging in this little momentary slice of heaven.  Even when eating completely alone in my room I will start rocking while eating.  This doesn’t change when I’m in public.  It seems to ease the pain of the entire event.  I eat a couple of pieces and then the paranoia and anxiety explode with the thoughts, “This is bad!  This is bad!”  I put on my iPod to try to drown out the loud thoughts while continuing to rock.  I look at my plate scared to eat another piece.  My hands start shaking and I feel like I’m about to throw up.  I look at my plate again and think, “But sushi is an approved food what’s the problem?”  I realize the chaos is not from the protector but is coming from the one he married.  She feels the weight and the stabs of his words, “Look at yourself.  You eat like you’re in prison!  Everyone is watching you.  You disgust me!”

About 15 minutes has now gone by and the whole mood has now changed.  And then…..we make eye contact with another patron.  “Go! You’ve got to leave now because they just saw you”, I hear.  I quickly get up and try to exit the restaurant as quickly and as inconspicuous as possible. I go to pay for my meal and notice a bald woman, at the register,  who was obviously taking cancer treatments.  I’m thinking, “Ok just please hurry.”  I make small talk when it’s my turn to pay about how good the sushi was trying not to convey the difficulties of my recent struggle.  The employee says, “Oh you like sushi?  Sushi good for you.  You not here long.”  I say, “Yea, I’m kind of on a tight schedule.”  All I want is to be out that front door and away from food.

I start walking to my car when the bald woman whom I’ve never met says, “I can tell you struggle with being here.”  I try to blow it off and give a short answer so that I can move on.  “Yea I struggle with being in public and eating issues”, I tell her.  I keep walking to my target and she continues to follow closely beside me.  I keep thinking, “Please don’t say anything intrusive lady.  She is NOT in the mood.”  The lady boldly says, “Honey can I pray for you?”  Sirens go off internally by much more fierce protectors.  “No religion!  No religion!”  I freeze. I start looking for particles of fairy dust in the area and thinking, “Damn I must’ve overpaid her today or something.  How is this happening?”  I oblige her by saying, “Yes, please do.”  She prays specifically for my eating disorder issues and for some reason I know she means no harm.

I relax my guard a bit and we begin to talk briefly.  I find out that she moved to Texas from New York to take part in her own healing not related to the cancer.  After only a couple of minutes she says, “Honey, you’ve got to change to speaking healing in your words.”  Ok….I start looking around for “coach” thinking she has me on hidden camera.  Does this woman have a earpiece where “coach”  is telling her to say these things?  The whole moment seems surreal but comforting.  I told her, “You know I’ve been told those same things recently.”  She says, “No truer words.  You might want to listen.” I tell her goodbye and thank her again for her kindness.  I have no idea what her name was but something powerful had again happened at a time when I needed it.

I sit in my car for a few minutes trying to decipher everything that had just happened.  Why? I wonder.  She was a total stranger.  Why does she even care?  I get home a few minutes later with my fortune cookie still intact.  I always love to read my fortune even if it says, “Your ship will come in before your dock rots.”  This time I open the cookie up to have this written on the slip of paper, “Change your thoughts and you change the world.”  Wow…just…wow.

“No act of kindness, no matter how small, is ever wasted.”

—Aesop

#thispuzzledlife

Remembering The Day Half My Heart Got Wings

Remembering The Day Half My Heart Got Wings

“The times you lived through, the people you shared those times with — nothing brings it all to life like an old mix tape. It does a better job of storing up memories than actual brain tissue can do. Every mix tape tells a story. Put them together, and they can add up to the story of a life.”
― Rob Sheffield, Love Is a Mix Tape

Recently I was asked to write about how it’s been the last three years since my dear Sarah’s death.   The last month has been one of many struggles personally and internally with ‘coach’ doing her best to bust open the rusty chest.  I usually seem to resist in my own way by attempting to appear much stronger than I actually am.  But then on the hot car ride, more like a convection oven on wheels with no air conditioning in the hot Texas sun,  to whatever residence I’m currently occupying are the awaiting late nights and very lonely tears in whatever solitude I might find.

The one thing I am coming to understand that no matter how much you consciously or unconsciously try to either force progress or resistance, the moment only seems to reveal itself when it’s time.  Mind you this is not a conscious resistance but more one of years of conditioning.  This has often led to much frustration on my part behind a curtain of smiles and laughter.  Nevertheless, I have been wanting and wishing for this much needed painful moment like “Lasterday” as our 6 year-old says.

With the struggles and seemingly endless supply of frustrations of everyday life something either good or bad was bound to happen.  Knowing and subsequently feeling the almost familiar impending doom of something unidentifiably, uncomfortable and scary about to reveal itself, all I could do was wait for whatever it was that was about to happen.  Usually, these feelings come with some form of outwardly aggressive behaviors that lead to some unpleasant event.  However, the moment that I had been wanting and needing the last 3.5 years would finally reveal itself.

I’m not actually sure why this particular time was the right time for this level of grief but nevertheless it would happen.  I’m usually pretty damn good at covering up a lot of painful feelings through my humor but Texas struggles seem to be the site of more and more private tears.  Maybe it’s just part of the process but “coach” has been gentle and we have trusted and allowed her guidance. The total mental exhaustion sometimes doesn’t leave much energy for writing.  And in these times solitude and rest seem to be about the only event in which I can muster any energy.

half heart

The struggles of living in an internal world that most can’t comprehend and an outer world that I don’t fit in bares a very heavy weight on both my mind and my heart.  And particularly when I feel like I’m trying to move through life with shoes made of concrete are the times when I want to quickly pick up the phone and call Sarah for her guidance and reassurance.  The reality of the loneliness and emptiness of every such situation the last 3.5 years since her death only brings about tears with little to laugh about when I selfishly need her right then.  And the emptiness seems not able to be filled by anyone but her still at this time.  I have searched but diamonds like that are not easily found.

These past few weeks have brought the feelings of loneliness, abandonment and grief that I buried back in February 2015 and has been recently staring me in the face.  Only when I didn’t avoid the eye contact with my demon did the finality and the pain of her death bring me to my knees in anguish.  My eyes swollen many mornings from several long nights of stinging tears made me look like I had taken a beating from a prized fighter.  It wasn’t until I was reading a former blog post called Passing The Torch that I realized that one possible contributing factor was that her approaching birthday of July 11th was drawing near.  This just seemed to make the grief that much more painful.  I knew that I had been missing her but her birthday just seemed to creep up on me like a dark figure until there was no escape from the shadowed figure.  I didn’t want anyone else’s comfort.  I wanted HER and ONLY HER.  The only way I was able to explain how it felt was like it was the day of her death and my heart was hemorrhaging.  I just hurt all over.

A most well voiced lady one day wrote and spoke about death so eloquently.  Dr. Maya Angelou, describes this feeling perfectly…..

When I Think Of Death

When I think of death, and of late the idea has come with

alarming frequency, I seem at peace with the idea that a day

will dawn when I will no longer be among those living in this

valley of strange humors.

I can accept the idea of my own demise, but I am unable to

accept the death of anyone else.

I find it impossible to let a friend or relative go into that

country of no return.

Disbelief becomes my close companion, and anger follows in

its wake.

I answer the heroic question ‘Death, where is thy sting?

‘ with ‘ it is here in my heart and mind and memories.’

—-Maya Angelou

Very simply put I have been lost since the day Sarah took her last breath.  I was fortunate to have been in the room when she did that very thing.  She and I both made a promise that we would be in each other’s lives until the very end.  I, honestly, never thought that it would be so soon but I was blessed to have seen and been a part of many different areas and roles of her life.  My life was blessed, as well as, 1000’s of other people mainly other addicts and alcoholics that she chose to plant the initial seed of recovery in some way into their lives.  And to have she and her husband Doug at my undergraduate college graduation several years back was a day that I couldn’t stop smiling.  I look forward to joining her, at some point, once again in an effort to make part of my heart whole again.  For 15 years, I was blessed to have a beautiful, authentic and loving creature touch mine in a way that I will respectfully always call her my “Chosen Mom.”  Because the day she died was the day that half of my heart also got wings.

#thispuzzledlife

The Magnitude Of Waves

The Magnitude of Waves

“A successful man is one who can lay a firm foundation

with the bricks others have thrown at him”

– David Brinkley

My life in the last few years has become one of seclusion.  Not total seclusion at this particular time but if that became a necessity again it would be a very easy transition.  My brain already chaotic with chatter and confusion makes the simplest of tasks, in public and private, incredibly difficult.  Isolation is something that I struggle with as it is a comfort zone for me and my quirkiness.

We as a human species require some form of human interaction.  This also explains why so many inmates that are placed in segregation for periods of time begin to decompensate and seem to start to atrophy mentally almost immediately.  And although having only limited resources within a controlled prison environment inmates will become creatively destructive just to pass the time in order to fight an internal collapse.  And there are others who become creative in a way to establish their own form of “hustle” in order to survive in these institutions.

I’ve been asked several times by different people, “What do you do in there all day?”  I have, in a sense, simplified (which is  sometimes debatable) my life by leaning on the things I enjoy such as:  listening and singing copious amounts of music; watching documentaries and reality shows; spend hours of researching different topics; reading scholarly journal articles; working on the inevitable therapeutic assignments; and writing so that my story and truth can finally be told.  I also spend a lot of time locked away in a sometimes dangerous playground….the one between my ears.  I, like other inmates of society, have a lot of time to think about my past, present and uncertain future for hours on end.  I also get to know more every day about the inner workings of internal “teammates.”

waves

In the wake of therapeutic activities guided by “coach” and the recent  agreement of a very reluctant teen to be more compassionate with other members others are finally being heard.   The issues of not being heard by others both internally and externally seems to be the general consensus throughout my system for many years.  While these “parts” of me feel separate they are still all a part of me.  Does this mean that I also have not been willing to listen to my parts who are still suffering?  Am I also negating my own thoughts and feelings that were convincingly told to me that they were wrong no matter what?  Maybe this is, in fact, a harsh reality that has been brought into the “tough love” of realization.

After lessons recently learned in therapy, I have been trying to listen intently to how each alter is doing in all facets of existence.  I always knew that the crippling waves of just about any feelings were connected to these warriors.  Deciphering who they belong to has been challenging to say the least.  The very loud and vocal ones are not that difficult to distinguish certain connections.  The ones who have been silenced seldom divulge the truth for fear of retaliation internally and externally then and now.

When it came her turn to speak this young bride with a steady stream of tears and visible anxiety begins to reveal her feelings not HIS.  And soon the pressure could not be withheld and the levees were breached.  The level of grief and torment I realized I never knew existed within her.  Grieving was incredibly dangerous to acknowledge around him.  The insults, ridicule and humiliation for her true feelings had to be buried to survive.  But that’s all they were…buried not eradicated.  Years of sitting in an ever expanding vat of deadly emotion being forced into submission was now boiling like hot lava.  Waves of heavy, depressive emotion crawl into my guts and soul like the waves from the ocean from a very angry Hurricane Katrina.  They make their way onto the land ripping precious items back out to the sea despite internal resistance.  And like the destruction of these powerful forces of nature after the waves subside, you never see specifically the precious items of “self” that are missing.  All you see is the destruction that  of the  once vile ways that humans can treat others and leave them for dead.

I look over to the still rebellious but somewhat compliant teen just to notice her reaction.  Her scowls, growling and ever growing distaste for the situation was evident.  I look at her with some slight form of confidence and fear to say, “Coach gave you direction for what you need to do.  And now I WILL tell and not keep it secret.”  I look back at the young bride and the first time with true compassion I tell her, “It’s time that you’re finally heard.  Coach is anxiously awaiting your story.  Use your voice.  Don’t fear her.  Help is here.”  She being one with eating and body image issues I thought I would again try to lighten the mood.  I tell her, “Don’t fear the tears because you’re losing water weight when you cry.”  The destruction has been left but the rebuilding has started.

#thispuzzledlife

Advocates

Advocates

“Momma D, Why Do You Act Weird Sometimes?”

–Marshall Landrum-Arnold

The above is a question from our 6-year-old son.  The one thing I’ve learned about having this disorder is that no matter how hard I try to be “normal” I’m not.  The term “normal” is truly a subjective term that only fits perfectly on a washing machine.  Maybe I should say socially acceptable.  Regardless of what term I or anyone else tries to use the fact of the matter is that a lot of times I’m just not.  I have awaken many times to face the day with the attitude that I don’t nor will I ever have some type of mental disorder.  No sooner than the words roll off my tongue do I realize that I, in fact, have a mental disorder that can, at times, be completely debilitating.

I have come across many people who are of the opinion that “you just need to look at things differently” “you just have to think more positive” or “the past is in the past.”  I would instantly become infuriated even if the emotions didn’t reach my face.  A lot of statements are not malicious but rather out of ignorance.  Also, with trauma you just can’t “unbreak the plate.”  There is no possible way to just pretend that things didn’t happen…..THEY DID HAPPEN.  Everyone around you can be in total denial with their heads in the sand but the fact is that the images, words, feelings, body memories and mental torture goes everywhere I go all day long every single day.

Having a diagnosis like Dissociative Identity Disorder is not one that’s easily hidden from those closest to you.  When you have a spouse and children the inevitable will surely happen.  I’m talking about sometimes very rapid mood changes, alters emerging, rages, voiced self-hatred, noticeable self-harming behaviors, etc.  I realize that not everyone with this disorder operates the same as “systems” are as unique as fingerprints.  But for our little family we have chosen to educate our children as things happen.  Please understand that I’m not talking about telling our children my trauma history in detail.  We educate them on an age appropriate level.

We’ve educated and continue to educate our children about being from an LGBT family and how families look differently.  I have found that children are pretty satisfied once their questions are answered even with the most simplest of answers.  Throw the taboo topic of mental illness that most cringe to discuss in there and more questions emerge.

As a child, I credit my parents for exposing me to individuals with mental retardation and other disabilities.  Maybe this is why I don’t shy away from anyone with a disability.  I truly accept anyone as they are regardless of disability or difference.  Within our little family there’s no denying “difference.”  Marshall has been noticing for a couple of years now that I’m just that….Different.  He might not know the name for what’s happening when alters come out or when I become completely non-functional.  But make no mistake that he knows something’s wrong.

One of my biggest hurdles everyday is anxiety.  I can range from just a little uncomfortable to vomiting and diarrhea.  So, while living in Albuquerque I found that the gentle vibration of a moving vehicle combined with my favorite music can soothe the soul.

survival

 One day Marshall was riding with me which was always our special time to sing together and get a snack from somewhere without little brother.  He said, “Momma D, can I ask you something?” Me thinking this would be a typical little boy question similar to “Why do birds poop when they fly?”  But what he asked me for the first time caught me by surprise.  He said, “Momma why do you freak out and act weird sometimes?”  Instead of further fueling the shame of the having the disorder by saying, “Don’t ask questions like that.”  I simply asked him for clarification by saying, “Baby what exactly are you talking about?”  He said, “Like when loud motorcycles drive passed you and other loud noises scare you. Or when we are playing with my toys and you act like a kid.”  I told him, remember age appropriate, “Son when momma was younger she had some people that scared me really, really bad.” He said, “Did they like jump out and scare you?”  Not being too far off the mark in some instances I said, “Well sort of but mommy just got really scared and things still scare me a lot.”  He said, “And that’s why you freak out sometimes and get scared by loud noises?”  I said, “Yes, baby.”  He then asked, “Is that why sometimes you have to go to the hospital?  Like to help you not be so sad and mad?”  I thought to myself, “Why is he so perceptive?”  But I replied, “Yes, baby.”  He said, “Is that why you see people like Tina so they can help you not be so mad and sad?”  Proud to answer the questions of such a smart little boy I said, “Yes baby.”  His instant reply was, “Ok can we go to Toys R’ Us and not tell momma Mel?”  I chuckled as I said, “Heck yea!”  You will be entertained to know that all teenage and child alters were shouting with excitement when I said that.  When we arrived at the store he said to me what Mel has told me many times prior to going into a very overstimulating situation like a toy store, “Momma D, I will sit in the buggy and will put my hands on your hands to help keep you to the ground. (He was talking about staying grounded.) Don’t worry, it’s just a store and people and they won’t hurt you.”

These were some simple situations with some very powerful answers and outcomes.  And how you choose to educate or not educate your family about mental illness is your business.  Some might disagree with how we choose to do this with our children.  My answer has always been, “That’s the beauty of living in a free nation.  We don’t have to agree.”  But what a disservice it would be for this little boy if we weren’t honest with him.  I wasn’t inappropriate in any manner.  I was simply answering something that had been bothering him in a very age appropriate manner. I didn’t get into specifics about my trauma as at age 6 he is not mature enough to handle that.

The fact is this…..I’m one of his mommas and he and Copeland both love and miss me dearly.  He knows I’m different and yet without judgment he still loves me unconditionally.  Being away from Mel and the kids living in Texas and working with someone determined to help me is extremely difficult.  Take away all of my mental issues and what’s still left is a momma and a wife who misses her family dearly.  Things I’m missing being away from them I’ll never be able to get back.  Through necessity we are raising our family to be….ADVOCATES.

“A lot of people are living with mental illness around them.

Either you love one or you are one.”

–Mark Ruffalo

#thispuzzledlife

It’s Not About The Food

It’s Not About The Food

“Girls developed eating disorders when our culture developed a standard of

beauty that they couldn’t obtain by being healthy.  When unnatural thinness

became attractive, girls did unnatural things to be thin.”

–Mary Pipher

One of the things that I’ve learned the most about my many maladaptive behaviors is that the perfect storm had arrived to ensure me having eating disorders when I was a very impressionable teenager.  Not only was it teenagers having issues with body image.  It was also the abuse that occurred during that time and the things that were said and my impression about what had occurred and what was done.  As a part of the abusive teacher’s very hateful nature was the being humiliated about myself as a human being in front of my peers.  I was put on display a lot of the time and made to stand in front of the class while being made fun of without having any type of recourse.  If I ever said anything back I was punished by both she and the administration who clearly had no idea to what extent her abusive nature was.  She on more than one occasion, would tell me when the rodents would get into my food in my locker “It doesn’t look like you need food anyway.”

My high school years during which I kept those eating disorders alive and well I became a sickly 83lbs and ruined any of my hopes of playing athletics in college.  What I was left with was a life of painful eating disorders that I still struggle with daily.  These behaviors were further compounded when I met my ex-husband who disguised his personal reason for wanting to help me by encouraging the eating disorders in his own way.

skinny back

I was made to weigh for him sometimes weekly because “I’m not going to be married to a fat ass” he would always say.  He would also tell me that “it’s ok to have fat friends but you don’t have to look like them.”  He micromanaged my food to the extent that that I was only allowed to eat what he approved of and nothing else.  To make sure this happened he would allow me only 10 pistachios and 10 olives to eat while at work working two jobs.  He would also, on occasion,  sit out in the parking lot to make sure I didn’t eat anything that was not what he allowed.  When I would tell him that I was hungry his supportive line was “No pain no gain.”

He would also leave random newspaper clippings around the house about the latest weight loss diets and/or make me take pictures of myself in swimsuits or naked, put them on the refrigerator and tell me “next time your fat ass gets hungry look at this picture and maybe you won’t want to eat.”  He would also make comments if we went out to eat about how all the people were looking at me because I was a fat ass.  He would say, “If you don’t like them staring at you then don’t be a fat ass.”  If we had dinner with his family he would wait until we left to criticize either what I ate or how I ate. And many times these comments were said where other people could hear them.  He would also say, “Did you have to eat that much of whatever we had for dinner?  You eat like a prisoner who’s about to have their tray stolen!  And that is why I have to tell you how, when and where to eat.  Because you’re too dumb to do it on your own.  You’ve already proven that time and time again.”  Eating quickly became the most dreaded activity I had to deal with on a daily basis.  My goal was to try to get through life with him and eating as little as possible.  As you can imagine I didn’t do that to his standards either.

The message that was conveyed to me was that no matter what I did it would never be to his irrational standards.  I was also expected to be at the gym to workout mornings at 5:00 am.  Being a well known guy in the city he knows many people and that included the employees at the gym.  So, he would call to verify be being there and what types of workouts I was doing.  If I ran 4 miles he would want to know what I didn’t “gut it out” and run 5 miles.

scales

Years of his verbal abuse, threats, and sexual abuse slowly broke me down.  People who don’t understand why individuals stay in relationships like this often say, “Well he only did what you let him do”  cannot possibly comprehend what this does to your psyche.  Those types of hurtful comments are why most suffer in silence and don’t ask for help.  After all, sometimes it was the easiest and safest thing to do by just going along with whatever his demands no matter what they were.  He had me convinced that I was nothing without him.  He and his brother tormented me for years and continue to do so internally.  But again they were both raised by a father who was also a malignant narcissist and a mother who worked at home without an education until much later in life.  So really she had nowhere to go with three children and no education.  So for many men and women in these types of relationships that don’t leave usually have a damn good reason for staying.  There’s always more to the story behind those closed doors than what you realize.  My own parents had no idea the extent of the abuse that I was having to deal with on a daily basis. Such is a life with a malignant narcissist.

To this day, if someone tries to take a verbal jab at me while in a public place or group setting my “verbal sniper” becomes activated and a one-sided war will ensue.  Get me in that little conservative and very judgmental city and I “turn into a werewolf” as my wife puts it.  I have found that striking the first blow is a way that I can set the tone that I will NOT be hurt by whoever it is that I feel is a personal threat either imagined or real.  All I have to do is see this as a possible threat.  Anyone that I perceive as a authority figure, I absolutely will not make eye contact with if at all possible.

scales attached

I guess the message I’ve tried to convey is that eating disorders and other maladaptive behaviors are about something much deeper than society sees them.  You see the signs and symptoms and I feel the weight of the trauma every minute of every day.  To this day I will chose not to eat because the internal war about what to eat is just too painful.  When I do eat I can never be full and satisfied because full means fat to me.  If I do feel full I have to purge with laxatives to get rid of that feeling.  It’s not a binging thing it’s an eating thing.  I’ve said it before and I’ll say it again…..IT’S NOT ABOUT THE FOOD.

Understand this as well….I’m done trying to live my life carrying my trauma and the trauma those two boys in adult  bodies.  I will NOT continue to be a part of the cycle of not working on my own trauma just to have mine and theirs to be spewed out onto other innocent and unsuspecting people.  This is a work in progress no doubt but the cycle dies with me.  I’ve proven that I can live through it.  Now it’s time to prove I can live without it.  All I need was to find a coach to help with this and I did.

“I failed eating, failed drinking, failed not cutting myself into shreds. Failed friendship. Failed sisterhood and daughterhood. Failed mirrors and scales and phone calls. Good thing I’m stable. ”
― Laurie Halse Anderson, Wintergirls

#Thispuzzledlife

Circling The Drain

Circling the Drain

11.19.15

“Even in times of trauma, we try to maintain a sense of normality until we no longer can. That, my friends, is called surviving. Not healing. We never become whole again … we are survivors. If you are here today… you are a survivor. But those of us who have made it thru hell and are still standing? We bare a different name: warriors.”
― 
Lori Goodwin

The behavior they see is but a snowcap on top of a huge mountain of anguish.  They refuse to see the truth even when it’s partially revealed because it’s much easier to sift through and pick out the nicer parts of the story.  To most people, we should be walking around thanking God for such a beautiful day to experience life.  But to us…..it’s all about survival.  It always has been.  They ask us to see things through their eyes but refuse to even glance through ours.  Hell, the truth is that OUR truth would have most people retching at the sugar coated version.  Now, imagine living in it day after day….  Oh to outsiders, we should be so happy and grateful that we have a loving spouse, beautiful and healthy children.  To us….it’s still about  survival.

Many times we have heard, “Dana, all that happened a long time ago and it’s just water under the bridge.  Be thankful for what you do have because it could’ve been so much worse.”  “Oh, her father was mean like that to her too.” And to those that say that, I pity their ignorance.  If trauma was that easy to get over, therapists would be out of jobs.  The analogy about not being able to unbreak a plate couldn’t be any closer to the truth.  Some have also said, “Oh well I went through much worse than that and nothing’s wrong with me.”  My thoughts are, “Congrats have fun with that bucket of denial that nothing’s wrong.”  Some have even said, “Well, you’ve survived and aren’t living in it now.  So, now you can move on and enjoy your life.”  Let’s see…even if I make my pros and cons list about how grateful I am for things in my life I still have an overwhelming fear of food, active eating disorder, social anxiety, PTSD, stomach problems, digestive problems, suicidal/homicidal ideations almost daily, a 6 year degree that I can’t use, no memory, rage issues, problems driving, active self harm issues, a non-existent sex life, frequent switching all of which I cannot control and the biggest complaint I get is my attitude.

277

 You see, when everyone is getting dressed for work, we get ready to battle our demons alone yet another day.  To the average person this looks like a lazy person who just doesn’t want to work and is another cause for the ever increasing issues of being a drain on society.  Truth is, they would have the barrel in their mouths much sooner.  When I was asked one time about having PTSD if I had served our country as a soldier in the war I simply replied, “I didn’t serve our country, but I’ve been fighting a war all of my life.”  People usually do the typical double take and look away.  Now, if just that made them uncomfortable what do you think they would do with the gory details or god forbid had to live it? Guess what? I relive each and every detail every day and night that I take a breath.  At times the memories have me hugging the toilet while waiting for the next wave of vomit to come rushing out of my mouth from the increasing anxiety that has my body feeling like it’s being ripped apart.  I would just like to state that any vomiting is not from my eating disorder as I despise the act. The migraine is pounding so hard that a sledgehammer is a welcoming thought.  The tears flow a constant stream as the voices scream their demeaning insults from as few as 10 years ago to as far back as 35 years ago.  All I want is for someone to come help rescue me but again it’s the familiar feel of having to fight on my own yet again with no guide.  Where is everyone?!  I panic but I shouldn’t because I’ve been here many times. I just want someone to make it STOP!!!!  And then another wave of vomit, that I had been anxiously awaiting, arrived.  I lay my head on the seat of the toilet and just begin sobbing and thinking, “When is enough, enough?”

#Thispuzzledlife