fear

darnold1975

Advocates

Advocates

“Momma D, Why Do You Act Weird Sometimes?”

–Marshall Landrum-Arnold

The above is a question from our 6-year-old son.  The one thing I’ve learned about having this disorder is that no matter how hard I try to be “normal” I’m not.  The term “normal” is truly a subjective term that only fits perfectly on a washing machine.  Maybe I should say socially acceptable.  Regardless of what term I or anyone else tries to use the fact of the matter is that a lot of times I’m just not.  I have awaken many times to face the day with the attitude that I don’t nor will I ever have some type of mental disorder.  No sooner than the words roll off my tongue do I realize that I, in fact, have a mental disorder that can, at times, be completely debilitating.

I have come across many people who are of the opinion that “you just need to look at things differently” “you just have to think more positive” or “the past is in the past.”  I would instantly become infuriated even if the emotions didn’t reach my face.  A lot of statements are not malicious but rather out of ignorance.  Also, with trauma you just can’t “unbreak the plate.”  There is no possible way to just pretend that things didn’t happen…..THEY DID HAPPEN.  Everyone around you can be in total denial with their heads in the sand but the fact is that the images, words, feelings, body memories and mental torture goes everywhere I go all day long every single day.

Having a diagnosis like Dissociative Identity Disorder is not one that’s easily hidden from those closest to you.  When you have a spouse and children the inevitable will surely happen.  I’m talking about sometimes very rapid mood changes, alters emerging, rages, voiced self-hatred, noticeable self-harming behaviors, etc.  I realize that not everyone with this disorder operates the same as “systems” are as unique as fingerprints.  But for our little family we have chosen to educate our children as things happen.  Please understand that I’m not talking about telling our children my trauma history in detail.  We educate them on an age appropriate level.

We’ve educated and continue to educate our children about being from an LGBT family and how families look differently.  I have found that children are pretty satisfied once their questions are answered even with the most simplest of answers.  Throw the taboo topic of mental illness that most cringe to discuss in there and more questions emerge.

As a child, I credit my parents for exposing me to individuals with mental retardation and other disabilities.  Maybe this is why I don’t shy away from anyone with a disability.  I truly accept anyone as they are regardless of disability or difference.  Within our little family there’s no denying “difference.”  Marshall has been noticing for a couple of years now that I’m just that….Different.  He might not know the name for what’s happening when alters come out or when I become completely non-functional.  But make no mistake that he knows something’s wrong.

One of my biggest hurdles everyday is anxiety.  I can range from just a little uncomfortable to vomiting and diarrhea.  So, while living in Albuquerque I found that the gentle vibration of a moving vehicle combined with my favorite music can soothe the soul.

survival

 One day Marshall was riding with me which was always our special time to sing together and get a snack from somewhere without little brother.  He said, “Momma D, can I ask you something?” Me thinking this would be a typical little boy question similar to “Why do birds poop when they fly?”  But what he asked me for the first time caught me by surprise.  He said, “Momma why do you freak out and act weird sometimes?”  Instead of further fueling the shame of the having the disorder by saying, “Don’t ask questions like that.”  I simply asked him for clarification by saying, “Baby what exactly are you talking about?”  He said, “Like when loud motorcycles drive passed you and other loud noises scare you. Or when we are playing with my toys and you act like a kid.”  I told him, remember age appropriate, “Son when momma was younger she had some people that scared me really, really bad.” He said, “Did they like jump out and scare you?”  Not being too far off the mark in some instances I said, “Well sort of but mommy just got really scared and things still scare me a lot.”  He said, “And that’s why you freak out sometimes and get scared by loud noises?”  I said, “Yes, baby.”  He then asked, “Is that why sometimes you have to go to the hospital?  Like to help you not be so sad and mad?”  I thought to myself, “Why is he so perceptive?”  But I replied, “Yes, baby.”  He said, “Is that why you see people like Tina so they can help you not be so mad and sad?”  Proud to answer the questions of such a smart little boy I said, “Yes baby.”  His instant reply was, “Ok can we go to Toys R’ Us and not tell momma Mel?”  I chuckled as I said, “Heck yea!”  You will be entertained to know that all teenage and child alters were shouting with excitement when I said that.  When we arrived at the store he said to me what Mel has told me many times prior to going into a very overstimulating situation like a toy store, “Momma D, I will sit in the buggy and will put my hands on your hands to help keep you to the ground. (He was talking about staying grounded.) Don’t worry, it’s just a store and people and they won’t hurt you.”

These were some simple situations with some very powerful answers and outcomes.  And how you choose to educate or not educate your family about mental illness is your business.  Some might disagree with how we choose to do this with our children.  My answer has always been, “That’s the beauty of living in a free nation.  We don’t have to agree.”  But what a disservice it would be for this little boy if we weren’t honest with him.  I wasn’t inappropriate in any manner.  I was simply answering something that had been bothering him in a very age appropriate manner. I didn’t get into specifics about my trauma as at age 6 he is not mature enough to handle that.

The fact is this…..I’m one of his mommas and he and Copeland both love and miss me dearly.  He knows I’m different and yet without judgment he still loves me unconditionally.  Being away from Mel and the kids living in Texas and working with someone determined to help me is extremely difficult.  Take away all of my mental issues and what’s still left is a momma and a wife who misses her family dearly.  Things I’m missing being away from them I’ll never be able to get back.  Through necessity we are raising our family to be….ADVOCATES.

“A lot of people are living with mental illness around them.

Either you love one or you are one.”

–Mark Ruffalo

#thispuzzledlife

darnold1975

My Own Prison

My Own Prison

“To be able to break free from prison, one must know how they became imprisoned to begin with.”

—Anonymous

One of the things I’ve learned through the process of trying to live with this disorder are “triggers.”  Triggers are anything that can set off a memory that can take someone back in time to when the original trauma.  It’s like being in an instant time machine.  A trigger can be anything related to sight, sound, smell or taste.  These seemingly innocent moments to most people can set off internal and external eruptions in others.  This can often lead to strong and immediate reactions by those they affect.

I don’t have all of the answers about these little disruptive beasts yet.  And no matter how much I want all of the answers immediately I have to always keep in mind that it has taken me 42 years to become this dysfunctional and repair work does not happen overnight.  I guess to be cliché this process is “a marathon not a sprint.”

The ultimate goal of therapy is to be able to acknowledge these events but not let them overtake you.  Before this can happen specific triggers must first be identified and the event can be processed.  Recently, I did a therapeutic assignment related to this very thing.  One of my personal and very strong triggers is the feelings of being trapped either physically and/or emotionally.  This is one of the biggest reasons why I don’t have much success in lockdown psychiatric units and inpatient programs.  My ultimate goal is ALWAYS TO GET OUT!

confinement

While doing this assignment I looked specifically at individual traumatic situations where these fears were imposed and I was instantly blown away.  I had no idea how “trapped” I have felt the majority of my life.  When I began breaking down the different time periods for these situations things have begun to make a little more sense.  I felt myself becoming nauseous and beginning to float away while looking deep inside for these answers.  Here are just a few that were identified.

  1. Being molested by people older, at the young age of 5 years old, and not feeling powerful enough to make it stop while also holding these secrets left me feeling trapped.  These abusers were also our neighbors and were always around me because of how close our two families were even at church.
  2. As a teenager, I was trapped as some sick form of sport and/or punishment in a closet where I was verbally abused, humiliated and tormented on a daily basis.  I was like a dog that was chained to a tree and forced into aggression.  I was often sent to the office to face false accusations by the administration where no verdict other than GUILTY was ever considered.  I always felt as though no one would listen and that no one cared what was happening.  The times I reported that this teacher was “being mean” ultimately got back to her and the abuse intensified.  I was often belittled and embarrassed in front of my classmates.  The reality of that situation was that there was no way out….period.  That was the first time that I ever had any type of suicidal feelings of any kind.  Her words still burn deeply as the day that were first said.
  3. Anyone who has experienced domestic violence, in any form, knows the fear and panic of wanting and needing to leave but terrified of the repercussions.  I was also followed and constantly watched.  The mental anguish from his degrading comments and vile actions left me feeling completely lost, broken and fearing my own decisions.  No matter what decision I made it would always be wrong.  He had me convinced that I would never be able to do anything without him because I was too dumb.  The most powerful statement he ever made to me was “You’ll never get rid of me.” And so far this statement has not been untrue.  I was trapped.

trapped

These are just a few examples of feeling trapped.  And now….I’m trapped by all of the memories, images and statements that were made by those individuals.  I still can’t seem to break free from the abuse as it torments me daily.  The paranoia of being watched, followed or being attacked has me questioning the intensions of others.  Instead of waiting to see if the paranoia holds validity, I protect myself by being very verbally aggressive to innocent people who just happen to making seemingly non-malicious comments or glances.  Essentially, I’m in a perpetual state of being triggered.  Waiting for a happy ending that never happened during my trauma and today only fuels my impulsiveness in this area.

Being around too many people with too much stimulation sends me and my “protectors” into overdrive and into a state of fight or flight.  It seems to overload my brain, thus, making me think I’m in danger.  The anxiety becomes so uncomfortable that the only thing I can do is just “get away” in whatever form that might take.  I seem to tame this only by being alone and secluded from most people including those I dearly love.  I have become a prisoner of myself and life.  The dichotomous view of life leaves me imprisoned by my fears within four walls of my bedroom.  Outside of these walls I’m simply prepared for battle in one way or another by indiscriminately striking out at anything that moves. The situation that comforts me is also the walls of my self-created but protective prison.  My abuse was very real and still is. And I’m a work in progress.

#thispuzzledlife