The Magnitude Of Waves

The Magnitude of Waves

“A successful man is one who can lay a firm foundation

with the bricks others have thrown at him”

– David Brinkley

My life in the last few years has become one of seclusion.  Not total seclusion at this particular time but if that became a necessity again it would be a very easy transition.  My brain already chaotic with chatter and confusion makes the simplest of tasks, in public and private, incredibly difficult.  Isolation is something that I struggle with as it is a comfort zone for me and my quirkiness.

We as a human species require some form of human interaction.  This also explains why so many inmates that are placed in segregation for periods of time begin to decompensate and seem to start to atrophy mentally almost immediately.  And although having only limited resources within a controlled prison environment inmates will become creatively destructive just to pass the time in order to fight an internal collapse.  And there are others who become creative in a way to establish their own form of “hustle” in order to survive in these institutions.

I’ve been asked several times by different people, “What do you do in there all day?”  I have, in a sense, simplified (which is  sometimes debatable) my life by leaning on the things I enjoy such as:  listening and singing copious amounts of music; watching documentaries and reality shows; spend hours of researching different topics; reading scholarly journal articles; working on the inevitable therapeutic assignments; and writing so that my story and truth can finally be told.  I also spend a lot of time locked away in a sometimes dangerous playground….the one between my ears.  I, like other inmates of society, have a lot of time to think about my past, present and uncertain future for hours on end.  I also get to know more every day about the inner workings of internal “teammates.”

waves

In the wake of therapeutic activities guided by “coach” and the recent  agreement of a very reluctant teen to be more compassionate with other members others are finally being heard.   The issues of not being heard by others both internally and externally seems to be the general consensus throughout my system for many years.  While these “parts” of me feel separate they are still all a part of me.  Does this mean that I also have not been willing to listen to my parts who are still suffering?  Am I also negating my own thoughts and feelings that were convincingly told to me that they were wrong no matter what?  Maybe this is, in fact, a harsh reality that has been brought into the “tough love” of realization.

After lessons recently learned in therapy, I have been trying to listen intently to how each alter is doing in all facets of existence.  I always knew that the crippling waves of just about any feelings were connected to these warriors.  Deciphering who they belong to has been challenging to say the least.  The very loud and vocal ones are not that difficult to distinguish certain connections.  The ones who have been silenced seldom divulge the truth for fear of retaliation internally and externally then and now.

When it came her turn to speak this young bride with a steady stream of tears and visible anxiety begins to reveal her feelings not HIS.  And soon the pressure could not be withheld and the levees were breached.  The level of grief and torment I realized I never knew existed within her.  Grieving was incredibly dangerous to acknowledge around him.  The insults, ridicule and humiliation for her true feelings had to be buried to survive.  But that’s all they were…buried not eradicated.  Years of sitting in an ever expanding vat of deadly emotion being forced into submission was now boiling like hot lava.  Waves of heavy, depressive emotion crawl into my guts and soul like the waves from the ocean from a very angry Hurricane Katrina.  They make their way onto the land ripping precious items back out to the sea despite internal resistance.  And like the destruction of these powerful forces of nature after the waves subside, you never see specifically the precious items of “self” that are missing.  All you see is the destruction that  of the  once vile ways that humans can treat others and leave them for dead.

I look over to the still rebellious but somewhat compliant teen just to notice her reaction.  Her scowls, growling and ever growing distaste for the situation was evident.  I look at her with some slight form of confidence and fear to say, “Coach gave you direction for what you need to do.  And now I WILL tell and not keep it secret.”  I look back at the young bride and the first time with true compassion I tell her, “It’s time that you’re finally heard.  Coach is anxiously awaiting your story.  Use your voice.  Don’t fear her.  Help is here.”  She being one with eating and body image issues I thought I would again try to lighten the mood.  I tell her, “Don’t fear the tears because you’re losing water weight when you cry.”  The destruction has been left but the rebuilding has started.

#thispuzzledlife

Advocates

Advocates

“Momma D, Why Do You Act Weird Sometimes?”

–Marshall Landrum-Arnold

The above is a question from our 6-year-old son.  The one thing I’ve learned about having this disorder is that no matter how hard I try to be “normal” I’m not.  The term “normal” is truly a subjective term that only fits perfectly on a washing machine.  Maybe I should say socially acceptable.  Regardless of what term I or anyone else tries to use the fact of the matter is that a lot of times I’m just not.  I have awaken many times to face the day with the attitude that I don’t nor will I ever have some type of mental disorder.  No sooner than the words roll off my tongue do I realize that I, in fact, have a mental disorder that can, at times, be completely debilitating.

I have come across many people who are of the opinion that “you just need to look at things differently” “you just have to think more positive” or “the past is in the past.”  I would instantly become infuriated even if the emotions didn’t reach my face.  A lot of statements are not malicious but rather out of ignorance.  Also, with trauma you just can’t “unbreak the plate.”  There is no possible way to just pretend that things didn’t happen…..THEY DID HAPPEN.  Everyone around you can be in total denial with their heads in the sand but the fact is that the images, words, feelings, body memories and mental torture goes everywhere I go all day long every single day.

Having a diagnosis like Dissociative Identity Disorder is not one that’s easily hidden from those closest to you.  When you have a spouse and children the inevitable will surely happen.  I’m talking about sometimes very rapid mood changes, alters emerging, rages, voiced self-hatred, noticeable self-harming behaviors, etc.  I realize that not everyone with this disorder operates the same as “systems” are as unique as fingerprints.  But for our little family we have chosen to educate our children as things happen.  Please understand that I’m not talking about telling our children my trauma history in detail.  We educate them on an age appropriate level.

We’ve educated and continue to educate our children about being from an LGBT family and how families look differently.  I have found that children are pretty satisfied once their questions are answered even with the most simplest of answers.  Throw the taboo topic of mental illness that most cringe to discuss in there and more questions emerge.

As a child, I credit my parents for exposing me to individuals with mental retardation and other disabilities.  Maybe this is why I don’t shy away from anyone with a disability.  I truly accept anyone as they are regardless of disability or difference.  Within our little family there’s no denying “difference.”  Marshall has been noticing for a couple of years now that I’m just that….Different.  He might not know the name for what’s happening when alters come out or when I become completely non-functional.  But make no mistake that he knows something’s wrong.

One of my biggest hurdles everyday is anxiety.  I can range from just a little uncomfortable to vomiting and diarrhea.  So, while living in Albuquerque I found that the gentle vibration of a moving vehicle combined with my favorite music can soothe the soul.

survival

 One day Marshall was riding with me which was always our special time to sing together and get a snack from somewhere without little brother.  He said, “Momma D, can I ask you something?” Me thinking this would be a typical little boy question similar to “Why do birds poop when they fly?”  But what he asked me for the first time caught me by surprise.  He said, “Momma why do you freak out and act weird sometimes?”  Instead of further fueling the shame of the having the disorder by saying, “Don’t ask questions like that.”  I simply asked him for clarification by saying, “Baby what exactly are you talking about?”  He said, “Like when loud motorcycles drive passed you and other loud noises scare you. Or when we are playing with my toys and you act like a kid.”  I told him, remember age appropriate, “Son when momma was younger she had some people that scared me really, really bad.” He said, “Did they like jump out and scare you?”  Not being too far off the mark in some instances I said, “Well sort of but mommy just got really scared and things still scare me a lot.”  He said, “And that’s why you freak out sometimes and get scared by loud noises?”  I said, “Yes, baby.”  He then asked, “Is that why sometimes you have to go to the hospital?  Like to help you not be so sad and mad?”  I thought to myself, “Why is he so perceptive?”  But I replied, “Yes, baby.”  He said, “Is that why you see people like Tina so they can help you not be so mad and sad?”  Proud to answer the questions of such a smart little boy I said, “Yes baby.”  His instant reply was, “Ok can we go to Toys R’ Us and not tell momma Mel?”  I chuckled as I said, “Heck yea!”  You will be entertained to know that all teenage and child alters were shouting with excitement when I said that.  When we arrived at the store he said to me what Mel has told me many times prior to going into a very overstimulating situation like a toy store, “Momma D, I will sit in the buggy and will put my hands on your hands to help keep you to the ground. (He was talking about staying grounded.) Don’t worry, it’s just a store and people and they won’t hurt you.”

These were some simple situations with some very powerful answers and outcomes.  And how you choose to educate or not educate your family about mental illness is your business.  Some might disagree with how we choose to do this with our children.  My answer has always been, “That’s the beauty of living in a free nation.  We don’t have to agree.”  But what a disservice it would be for this little boy if we weren’t honest with him.  I wasn’t inappropriate in any manner.  I was simply answering something that had been bothering him in a very age appropriate manner. I didn’t get into specifics about my trauma as at age 6 he is not mature enough to handle that.

The fact is this…..I’m one of his mommas and he and Copeland both love and miss me dearly.  He knows I’m different and yet without judgment he still loves me unconditionally.  Being away from Mel and the kids living in Texas and working with someone determined to help me is extremely difficult.  Take away all of my mental issues and what’s still left is a momma and a wife who misses her family dearly.  Things I’m missing being away from them I’ll never be able to get back.  Through necessity we are raising our family to be….ADVOCATES.

“A lot of people are living with mental illness around them.

Either you love one or you are one.”

–Mark Ruffalo

#thispuzzledlife