Mel’s Corner: The Diagnosis

Mel’s Corner: The Diagnosis….

Often times I can be asked questions about how it is living with a spouse with dissociative identity disorder, well let me assure you it’s never a dull moment.  When I met Dana over 8 years ago and we started our relationship just a few months after that, neither one of us knew she had DID.  She had been given many different diagnosis at that time and even had someone give her a rule out of DID, which we quickly dismissed, she just didn’t seem like a “Sybil”.  The first time I met an alter, I had no idea.  I thought it was just a PTSD flashback.  There would be 6 years pass before the official diagnosis.  The latter of those years proved to be very challenging.

   I’ve learned to appreciate each alter and the specific needs and talents they bring.  For instance, there is only one alter who likes ketchup, everyone else hates it and often blocks the alter who likes it from getting ketchup.  I learn likes and dislikes when it comes to food, and there have been times that one requests a certain meal only to have another come out while I’m cooking or we are eating and decide they want something else.  I’ve learned to cook what Marshall and I want and that usually works out.

   In the early days of diagnosis, there was one alter who had no idea who I was, but that has been the only one who had no idea  of me.  Now that’s not to say that I’m the “spouse” to everyone.  To the littles, I’m “Momma Mel”, to others “I’m a friend”, and even others see me as ‘the one who takes care of Dana.”

   Around the start of 2012, Dana started having large gaps of time missing and often times during this time there was a lot of aggressive/ angry behavior.  At one point it was thought she might have a seizure disorder.  We had started psych medications to stabilize her mood starting in 2010, however if a medication worked, it only worked for just a short time.  We even tried lithium and ended up in the hospital one month prior to our son being born for lithium toxicity.  That was one scary time.  Even the mental health system was no help.  We were on our own trying to figure this out and get help that was desperately needed.

  In September 2013, when dissociative identity disorder was first given as a diagnosis, I was a bit in denial.  I had to take everything in and then decide for myself based on the research and facts, did this diagnosis fit?  Having a masters in counseling my first go to was to see if Dana met criteria as listed in the Diagnostic and Statistical Manual.  I kept an open mind and I started to consider that this might be correct.  The more I met alters and got to know them, the more this diagnosis made sense.

   Most people would have no idea that Dana is a multiple.  In fact I would say unless we came out and said it, most people wouldn’t have a clue that she is a multiple.  The switching is very subtle and sometimes it’s not until later that I put it together that I’ve been talking to someone other than who I thought.  They like to try to trick me into thinking they are someone else in the system at times.  I’ve learned to adapt but even now I have moments of difficulty.  I’ve been told that the roughest time is in the beginning and the system will settle down and things will get much more manageable.  I’m starting to see that take place, I think in time we will learn more about how to deal with this disorder.

#Thispuzzledlife

All Just For A Tire

All Just for a Tire
1.30.15
“We turn skeletons into goddesses and look to them as if they might teach us how not to need.” 
― Marya Hornbacher, Wasted: A Memoir of Anorexia and Bulimia
I went out to crank the car this morning and that’s when like a wave from Hurricane Katrina hits me with body aches, migraine and nausea. My wife and I have learned to try and head these off when they begin to happen.  I also try some self talk that we do to try and help calm the ‘insiders’ down. “We do this every morning,” I say. Defiantly one screams back, “it’s where they are and what they do that scares us!”  I don’t normally go out in public much by myself but a flat tire will make you do strange things like attempt it on your own. I tell them what I need as they ATTEMPT to tell what extras I need.
My body is attacking me like thoughts of spears hitting my body like some battle from the movie Braveheart. I begin to wonder if a motor oil enema would be more comforting. I have an idea…I’ll go to the McDonald’s inside and order a small amount of food with a drink. I finally get my food and find the farthest seat in the back of the restaurant. I slowly go through my ritual of keeping my sunshades on with iPod going with my back to a flat surface. I slowly but very methodically build a fort around my food so, all those people can’t see me eating. Plans are made just in case I see someone I know. I’ll shove everything in the bag and say, “I’m in a hurry” just to get out of here. I take one bite while wondering what the other people in the restaurant are really thinking of me.

 

I eat as I always have with shame with every bite. “Don’t you know what people think of you and what you eat? Remember the pictures he made you put on the fridge? You’re becoming more imperfect with every bite!” Each bite I take, I hate myself even more. I struggle everyday wanting to be the very unhealthy weight I was in high school. But that too was a full time job.
All I can possibly think is, “This is why I stay home. I hope this ends quickly.” And again, I’m at the mercy of My past trauma. I massage my legs and try to relax but it gets worse with every person I see. I just want out and to be at home!”
OMG! I look up and a McDonald’s Employee is 5 ft from me. It’s time to pack up and go. Please don’t let her look at me. The panic can’t be put into words. My legs begin to hurt so bad I’m now limping.
A lot of times I think, “Why me?!” And suddenly I just realized, “because I have a ‘don’t give up spirit’.” But why this thought now? I remember what my brother Levi Pierce says sometimes, “Sis, sometimes you just don’t question things and just roll with it.”
Sometimes pieces of the puzzle are put together over something as simple as waiting for a new tire.
Thanks for the advice big brother!!
#Thispuzzledlife

And So Our Day Begins….

And So Our Day Begins…..

1.29.15

 “All men make mistakes, but a good man yields when he knows his course is wrong, and repairs the evil. The only crime is pride.”

― Sophocles, Antigone

My body awakens with a severe headache. Legs slowly begin to cramp. Body aches with a detox feel.  In my heart I know it’s my body releasing trauma that’s been trapped for many years. I don’t freak out about it because I know what it is. However, it doesn’t make it feel any better.

Session is later this morning.  Everyone inside is always on edge. It’s like being in a classroom hoping and praying that your name isn’t called. Somehow the topic turns down a familiar road. Except this morning there is extreme nausea.  I now regret driving here but beg for more at the same time. I medicate have taken my pre-therapy dose of phenergan.  I also have been sitting outside the office listening to my music and smoking cannabis wax waiting for the relief from some of the nausea and anxiety. I always arrive early just to take time to prepare for what could possibly be discussed.  My goal for the day:  Don’t puke in the therapist office.

Eating disorder came out unscathed again! Wheww!!!! And none of the ‘yuckies’ today either. Just an intense amount if physical pain with a brain to match an out of control daycare center.

I tried the best I could to comprehend my therapist’s end of the session instructions.  I felt like I was in a spinning tunnel. Insiders were really upset, some were mad, sad and/or both.  Recent life events has been both a blessing and a curse.  My system’s walls have been dropped now leaving me emotionally very vulnerable.  Driving has become a topic of concern the last few months. This morning, I can say that I was actually scared to drive. This is the one thing I feel I have left is driving. I don’t do it much anyway because of the symptoms of the condition.  This is hurting my heart with this realization of possibly losing some of my independence.

Where did the session go? I was just talking to her.

Right now, my body and mind knows the torture of flashbacks, and the repeated screaming at the top of their lungs. I’m nauseous and mentally I leave there saying, “I’m ok.” Knowing I’m not. There’s a little pride issue I have so there I said it.  That’s why I didn’t say anything.

I sit in the car trying to gather my bearings. My head is spinning. People are yelling from the flashbacks. Alters are in an uproar. And all at once, my body begins to cramp all over. I have my music blaring trying to keep me grounded for the moment without drawing attention. I sit for a few minutes and it turns into____?  I don’t know what time I left. 5 minutes? 20 minutes? 1 hour?

I back out slowly like a shaky toddler. I know instantly something still isn’t ok.  To save my pride, I pull out safely into traffic. But can’t quite understand where I’m going or how to get there.  I look up and I’m turning onto the base. Yay! I made it home but how? Wow! Having a moment like that can wake you up. The rest of the day….yea not sure about it either.  I’ll get the daily recap later this afternoon from Mel. As far as the rest goes, brief notes telling me what topic was discussed in therapy are all I remember from the day.

So much to discuss, so little time. I feel like I’m doing everything I can. I have even told my therapists which topics I will try to ‘crawfish’ out of because of the uncomfortability. I write on this blog because everyone one of us deserves to be heard fully for once. Hopefully, better days ahead.


#Thispuzzledlife

Out Of The Darkness, Into The Light Part2

Out of the Darkness, Into the Light Part 2

1.29.15

“I want everyone that has been abused by someone in their childhood to know that you can get past it. Having DID is not the end of the world; it’s the beginning of your new life. DID allows the victim of exceptional abuse the ability to “forget” the abuse and continue living. Without it, I may have gone crazy as a teen and spent my life in  a psychiatric hospital.” 
― Dauna Cole, A Shattered Mind: One Woman’s Story of Survival and Healing

One of the major issues with this disorder are what most people refer to as ‘alters’ or other personalities.  What I’m going to try to do is to paint the picture for you in a way that I’ve been learning how to understand this.  So, imagine you have an apartment complex and each person has their own room.  Except in these rooms, there are horrible memories that are behind doors and no one can get in without a key.  The only people that have these keys are my therapists and my alters which help keep anything else from hurting me.  This is what has protected me throughout the years.  However, some of the coping strategies that worked then DO NOT work now.

Alters can also range in age depending on at what age the abuse occurred.  As dysfunctional as things can get at times the alters as a whole are referred to as a ‘system.’  Until consciousness together can be shared, there might always be memory loss.  The amnesic episodes are, at the very least, scary as hell.  The memories that I often have include only flashes of pictures of the day or days. The information date, time and situation is usually not available.

Alters and systems are as individual as a finger print.  There is no ‘cookie cutter’ way of treating DID.  The most important thing to me hands down is the relationship with my therapists.  Without that relationship, recovery is futile for any issue or disorder.  I trust my therapists enough to take me into the depths of the most terrifying events that have ever happened to me.  This relationship that has been  allowed to happen, as close to trusting, as possible has taken 2 years now with one therapist.  However, both the ups and downs of these relationships has lead to the progress now being made by leaps and bounds.  Painful as this process is, I can only hope that things actually get better.

The tenets in these rooms represent parts of the person you know as Dana.  I will not get into discussing how many or their names.  I can tell you that while growing up with some of those reading this blog alters were already formed or forming.  Not only do these alters hold memories, but they also function in different ways.  However, sometimes the problem with the alters is that they function completely independent from the individual known as the ‘host.’  This is usually the mood swings that you might see. Alters develop out of traumatic events and sometimes more than one during a single traumatic event.   Just to put to rest for those that don’t know my parents, no they were not any part of the abuse.

Alters actually develop when the brain compartmentalizes the traumatic event, memories, etc.  The trauma is so overwhelming and the mind and body both have to survive, that the only way the individual knows instinctively to survive is by developing a new alter even though they may be unaware at the time.  Often times, it is many years down the road that survivors even realize that they have alters.  Therefore, many survivors are trapped in the cycle of the mental health system being misdiagnosed for years and much money spent on treatment for the wrong diagnoses.

Often times, many people say, “I’ve been through worse things and I don’t have alters.”  The only answer I have found is that what’s traumatic for one person may not necessarily be traumatic for another person.  There is also a genetic predisposition to being able to dissociate.  And dissociation is key to the formation of alters.  What is known is that trauma of any kind effects the brain permanently.  Severity depends on how long and what type of trauma was occurred.

You can most definitely have PTSD without meeting criteria for DID.  DID cannot exist without a diagnosis of PTSD since that is a large part of how the disorder forms.  DID also usually always entails some form of early childhood sexual abuse although ‘splitting’ in adulthood is uncommon.

“Another of the difficulties of having DID is the denial. DID is a disorder of denial. It has to be because if the original person knew about the alters and felt their pain, they would either go crazy and be hospitalized permanently, or would die.” 
― Eve N. Adams, A Shattered Soul

#Thispuzzledlife

Out Of The Darkness, Into The Light

Out of the Darkness, Into the Light Part 1

1.1.2015

 “Dissociative parts of the personality are not actually separate identities or 
personalities in one body, but rather parts of a single individual that are not yet 
functioning together in a smooth, coordinated, flexible way. P14” 
― Suzette Boon

Since this begins a new year, I thought I would start it off with a ‘boom’ of reality from our world.  The topic that I will discuss is one that has such stigma attached to it that it’s has taken me months to muster the guts to discuss it.  This is a topic that hits home in the best/worst kind of way.  I’ve written for months now explaining some of the many symptoms that I experience mostly on a daily basis.  2014 was no doubt one of the most difficult for me, Mel and Marshall.  However, we as a family including my brother have shed tears together, as well as, have a lot of laughter. I have also smoked a ton of medical marijuana just to be able to live day to day.

I figured that a few months ago when I ‘came out’ out as a medical marijuana consumer, the thought crossed my mind that even though people can be cruel when it comes to mental illness, that since this blog is about MY healing I would ‘come out’ about my particular illness.  Many have read my blog since day one and for that I thank you.  I would also like to say that while reading this particular post that you just keep an open mind.  I’m not going to try to change your opinions or perceptions of mental illness.  I’m simply going to try and paint you a picture of mine to the best of my ability.

I have Dissociative Identity Disorder (DID).  Now for those with no therapy background, I can tell you that this is the same thing as Multiple Personality Disorder.  And now your opinions and thoughts begin to race. The only references that most of you have are those of the books/movies The Three Faces of Eve and Sybil.  Hollywood did a horrible job painting a picture of what those of us with this disorder look like and how we function on a daily basis.  Guess what?  I’m still the same Dana that you grew up with and loved.  I just have a world that has formed inside my brain that I didn’t realize everyone didn’t have.  I didn’t question it because to me that has been my normal.  Does this diagnosis make me ‘crazy?’ Should it make you fear for your family’s life if I happen to be around? Does this make you want to run as fast as you can in the opposite direction?  I can promise you that all of that energy would be wasted.

The symptoms that I have mentioned in other posts are all true and are a part of daily life for me.  I can’t tell you what it’s like living with a spouse with this particular disorder because only my wife can answer that.   I can tell you that it’s the most intricate puzzle I’ve ever had to try and figure out.  Having only had this correct diagnosis for almost 1.5 years we, as a family, have had to adjust.  We were already adjusting prior to Marshall being born.  His birth somehow set off a bomb inside my brain that retriggered everything that has happened to me.  Not his fault or mine, just our reality.

With both my wife and I having Master’s Degrees in Counseling, we were baffled when we never even considered this diagnosis as one that would fit.  Even in graduate school, because of limited time to study the Diagnostic and Statistical Manual of Mental Disorders we didn’t see the signs.  If you want to know why we had limited time to study on this manual, just take a look at it one time and you’ll see that it could take years to be taught thoroughly and it’s like computers changing all the time.  This diagnosis is still part of a great debate about whether or not it’s an actual diagnosis. I can’t answer for other families but for our family it’s very much a REAL diagnosis.

Some people have, in fact, asked Mel if she felt safe around me with Marshall.  The answer is always the same….yes.  There’s a lot of self education we’ve had to do because of the stigma within the mental health communities, as well as, those outside that community.  We don’t have all the answers yet to how and why and neither does science. I can tell you that the very slow journey of recovery from a lifetime of trauma actually began when the correct diagnosis was given.  Now I finally had answers to why sometimes I would answer myself and had what I thought were ‘loud’ thoughts.

To see me today, I’m the same goofy ass, class clown that was and still is friends with Levi Pierce.  I have scars on my arms.  It’s nothing to be afraid of, it’s how I survived.  You don’t have to be afraid to have your kids around me. I’m not going to cook them and eat them.

DID, as I’ll refer to the diagnosis from now on, is not near as scary as the picture that has been painted.  Does it have scary moments? Of course.  So does Bipolar, Major Depression, Schizophrenia and any other disorder.  This disorder requires a very patient and understanding spouse, as well as, professionals to be able to deal with some unpleasant moments.

The title of my blog “This Puzzled Life” is all about putting these scary pieces back together enough for me to be able to enjoy doing what I love…..helping people.  Once piece at a time is how I’ll learn to live with this disorder.  Trial and error is how it’s been for almost 1.5 years now with the correct diagnosis.  Prior to the correct diagnosis it was and still is at times a total nightmare.  Also, life continues regardless if I have a disorder or not.  Friends and family still pass away which can complicate things.  But, this too, is just the way life operates.

 With very patient but firm therapists, I’m finally being able to look very closely at some of the horrors.  The ‘alters’ or other personalities, if you so wish to call them, have their own story because they were created by the mind at very key times in the abusive history.  Alters together are called a ‘system.’  Each ‘alter’ has his/her own function within the system.   Each person with DID has a system much like that of a finger print.  Not every therapy works the same like a cookie cutter.  Do not be afraid to ask what you don’t understand.  Your fears come from what you don’t understand.

“DID is about SURVIVAL.  As more people begin to appreciate this concept, individuals with DID will start to feel less as though they have to hide the shame.”

–Anonymous

There are also no psychotropic meds that are specifically designed for this disorder.  This also explains why for the first 3 years of seeing a psychiatrist none of the meds worked for an extended period of time.  Some antidepressants, anti-psychotics, axiolitics work well for some alters and not for other alters.  I was taking Parkinson’s medications for the side effects of other medications while feeling horrible from the side effects.  So, that represents toxicity to me.  My psychiatrist offered as a last resort the state’s Medical Marijuana Program because of all the mood swings, PTSD, hallucinations and every other symptom I would have at that time.  Now believe what you want about medical marijuana, but I can personally tell you that that medication as it is so treated, is one of the reasons my wife, son, friends and family still have someone they love living.  The memories of the trauma alone are more than I can handle.  The effects of PTSD steal your sanity one image, smell, thought or sound at a time. The body memories while very painful become a little more tolerable with the marijuana and acupuncture.

This is why I’m also so big on people recognizing and working on their own trauma.  That way people like me who set out to enjoy life don’t have to wait 40+ years to understand what that means.  I’m representative of people who were too proud or stubborn to face their own demons.  This too was not a “choice.”  I understand the concept of ‘free will.’ Where was my free will?  That’s right, there was none.

People from all walks of life have this diagnosis but go on for years with the wrong diagnosis because so much can mimic other diagnoses.  There are also those still that live with this diagnosis and are very successful members of society.  The trauma didn’t just occur overnight.  It’s has happened my whole life so, the process won’t resolve itself overnight.  There is a lot of painful elbow grease that has to be put into this recovery.  The point is to keep putting one foot in front the other.  I’ve never backed down from a fight and won’t start now.  You just can’t take the athlete out of me.

I will take you through the victories and the setbacks of this journey.  Hopefully, I’ll help educate you while also healing me.  The only thing I ask is keep an open mind.

#Thispuzzled

Lessons From 2014

Lessons Learned from 2014

12.30.14

 “Tell me and I forget, teach me and I may remember, involve me and I learn.” 
― Benjamin Franklin

The year 2014 while very trying has taught me many lessons…..

1)Toddlers tell their teachers at school that while their mommy is pregnant that really their little brother is locked in a closet at home.

2) Sometimes potty training is just not possible with some kids.

3) Loyalty while detrimental at times reaffirms you as a person and your dedication to friends and family.

4)After 20+ years after all the grime and muck of life, people’s hearts can remain the same.  I said HEARTS not behavior.  These are two completely different things.

5) One of the most important lessons I’ve learned this year is that life can vanish in an instant.  And the world will continue moving on.

6) Sometimes people are actually sicker than we know at the time.

7) Stopping the ‘trauma cycle’ is an option instead of a requirement.  Just because someone was evil to you, doesn’t give you a right to spread that same evilness in a different way.

8) When you look up and no one is around, first look in the mirror.

9) Being loyal doesn’t mean leaving those behind who have supported you from the beginning.

10) Being a mommy is an AWESOME and very difficult job.

11) Why some animals eat their young has become more clear with a toddler in the house.

12) Realizing that sayings your parents have told you throughout life are true is sometimes a bitter pill to swallow.

I’m quite sure that there are more lessons that I’ve learned this year.  The memory I once took for granted is no longer there.  However, lessons were learned and taught this year and yes they were are still are very painful.

The time with my brother, Levi Pierce and his family were probably some of the best times of my life.  He and I stayed up late at night talking and crying together.  He comforted me as I did for him.  After 20+ years, he’s still the same soft hearted guy that I knew as a child.  Make no mistake, you will never see that if you disrespect him in any way including through his family.

I have lots of difficulties because of my own trauma and he has his own set of issues.  The love and the friendship have never diminished.  The stars realigned at a perfect time once again.  I can only thank the universe for allowing me to learn these lessons even though they were and still are very difficult.  My loyalty to people hasn’t and will never change.  However, those that I trust with that very intimate part of my life have.  Both me and my family/friends have suffered because of my view of “loyalty.”  This is something that I must also work on for myself and those around me.

It has finally become very clear to me how very dangerous “black and white” thinking can be.  There has to be grey areas.  Through both therapy and life, I’m learning some very difficult lessons.  All I can do is embrace these “gifts.”  Right now they feel like spears have been impaled in my head and heart.  To me, I find truth and lessons in both the journey and the destination.

I was told by a therapist several years ago, “That everything that happens is a gift.  It doesn’t always come in pretty packages with big beautiful bows.  But, it’s still a gift.”  Right now, I’m trying to dig through some things and find the ‘gift’.  Maybe just maybe if I just continue to do the right thing that these gifts and purposes for these trials will reveal themselves to me.  And through this my heart will not change but I will grow.

“When we acknowledge it was our bad decisions we made that put us in these bad situations, only then can we accept them, get over it, and move forward.”

–Anonymous

#Thispuzzledlife

Three Years Of Life

Three Years of Life

12.3.2014

“I fell in love with a little boy and I’ve never been the same since.”

—-Anonymous

At 8:00 pm MST, our precious little boy will turn 3 years old.  Three years ago today we were anxiously awaiting his arrival and our challenge as new parents.  These three years have brought smiles, laughter and tears.  Marshall entered this world as a little preemie at 35 weeks.  I was very quickly allowed to get his first picture within moments of his birth.  He was taken to the NICU where he would remain for the next 18 days.  While we were glad that he was here, it was gut wrenching to know that we would be going home without our little angel that we had been planning almost since we became a couple.  I remember thinking, “OK he’s here, now what do we do?”  I was scared to death but happy all the same.  All of a sudden, the sun became much brighter and a love that I had never experience before began growing daily.  My greatest fear was losing this precious little being.  So, minimizing my time in the NICU was of utmost importance, or so I thought.  Today, I can say that I would love to have that time back with him as a brand new infant.  That was just where I was in my process at the time.

 

Christmas 2011 has got to be one of the best Christmas’s ever because we were a family and our little baby boy was finally home after 18 days of constant worry about whether or not he would make it.  This little handsome guy is, hands down the reason that we’ve been able to make it through some very dark times as a couple, individual and family.   Some nights we have both been up crying because we just didn’t know what to do to help him feel better.   I would certainly go through all the frustration of the last 3 years just to have our beautiful, sensitive, little superhero son in our lives.  I must admit that there are times when one begins to make sense as to why some animals eat their young.

We are now in the very independence gaining and boundary testing toddler years.  Sometimes I don’t know whether to choke him or just sit and hold this beautiful little boy that we have both the honor and privilege to call “Son.”  As a minority family, the response to his birth from outsiders was less than supportive as a collective majority.  You can’t convince these two moms by guilt with religion or any other tactic that we ever made a mistake by creating this little guy.

Whatever your beliefs, I can say this with a very clear conscious when I say that, “God entrusted us as parents with this precious being and thought that he was the perfect little boy to be able to handle any kind of disappointments that comes with being part of a minority family.”

Marshall knows one thing that he loves his mommies and his mommies love him.  Really, it’s that simple and what counts.

#Thispuzzledlife

The Birthday That Will Never Be Forgotten

The Birthday That Will Never Be Forgotten

12.4.2014

 “How much tragedy has to happen before I slip wide open?” 
― Alisa Mullen, Unrequited

As much as I want to celebrate another year of survival from both physical and mental issues, sadly it has been overshadowed by the loss of one of our twin children.  My wife, Melody and I weren’t really concerned about the doctor’s visit because there was never a problem with any of the previous visits.  She is considered high risk every time because of us doing invitro fertilization.  We see the perinatologists which basically knows every time the babies hiccup.  We are also at about the 12.5 week stage so, chance of miscarriage was much lower.

My brother Levi Pierce and wife are in the exam room while I’m frantically trying to get there in time for the measurements and everything that entails.  We had been preparing Marshall for two babies while he was trying to reassure us that there were four. Toddlers are just funny.  I get there in time for the technician to tell me that she was waiting to take all the measurements until I got there anyway.

After having my regrets about not really knowing how to bond as a first time parent with Marshall, this pregnancy was just different.  I could feel it so strongly on an emotional level that I had never experienced.  It was so beautiful.  It wasn’t something that I ever discussed with Mel or anyone else.  For some reason because that level of emotion and bonding with such little creatures I wanted to enjoy all by myself.  I had already completely embraced the reality of us having twins and the ways that we would have to work even more as a team.  We hadn’t told anyone yet for some realities just don’t match our realities.  Nevertheless, these babies already had our hearts.

With all three of us eagerly waiting for all of the measurements, I was so excited to get to have my only somewhat physical contact with our children.  She goes through each thing she measures, stomach, legs, head circumference, etc.  “Baby B” as it was named by the doctors for twin pregnancy,  was measuring a little smaller but not a big deal because this is a twin pregnancy.  And then even though she passed the words off as really no big deal that the doctor could probably detect it, the words “I can’t find a heartbeat came out of her mouth.”  My heart hit the exam room floor.  I could only think, “Did she just say that one of our babies is dead?”  In my heart, though, I knew.  Neither I nor my brother could hold the tears back as my extremely emotionally strong wife did. Hopes were there but the doctor also confirmed that there was no heartbeat.

I will forever remember December 4th not only as my birthday but also the day one of our children was born in Heaven.  2014 had been an extremely emotional year but this, I must say, has knocked the wind out of me.  This venture was new and I didn’t know how to comfort me or my wife.  All I could think about was, “Our baby will never get to meet any of the amazing people in our lives.” I was a snot crying mess to say the least.  I had never allowed myself to be this vulnerable in public.  It felt as though, I had just been shot in the chest.  My brother just simply got up and left the room.  Mel was able to hold it together until we left the doctor’s office.  And then it was my turn to try and comfort my grieving wife.  Any additional information they might’ve given us, I never heard. I could do nothing but feel my own soul crying out for our baby.

From that day, the term “miscarriage” will never been the same as it did before it happened to us.  The few that knew were trying to be encouraging by telling us that we had another baby still left to take care of.  The anger that flew all over me was the thought that the statement meant, “You can just go get another one at the store. No big deal.”  My initial thoughts were, “That was our child, not a broken toy.”  That instant reaction was valid but completely due to grief.  I don’t remember the rest of the day.  And really, it’s ok with me.  In the following days, I laid my head on her stomach and sobbed.  I realize that “this is just part of life” and “lots of people have miscarriages.”  But, we still just lost OUR  child.

We will no doubt love this other little baby and welcome him into the world with open arms just like we did Marshall.  Our hearts will never forget the day we lost our precious little 12 week baby. Happy Birthday to me.

#Thispuzzledlife

And 2 More Makes 3…..

And 2 More Make 3……..

10.21.14

“God touched our hearts so deep inside, our special blessing multiplied.”

 ~Author Unknown

I must admit that I had a Maury Povich moment when we went to our fertility specialist today.  I was hoping that if we saw more than one yolk sac that I would hear those magical words…”You are NOT the father!”  No, I’m convinced it was a brief moment of psychosis when I heard the word….”TWINS!”  I’m not sure where the idea of throwing myself into a bubbling vat of Ebola came from but I assure you it was brief.  I totally started thinking, “Where did the twins come from?  There aren’t any in my biological family?  I don’t understand?”  Ok, so maybe it was full blown “situational psychosis.” Already being a parent to a toddler has taught me that brief moments of “situational psychosis” seems to be accepted as a daily action most assuredly in public.  So, my little stand alone moment in the doctor’s office was most definitely appropriate, I think.  If someone tells you that they got that same news and didn’t at the very least think, “What the hell?!” I would have to say that they’re not telling you the truth, the whole truth and nothing but the truth.   I must admit that I’ve had several laughs since that moment only a few hours ago about why I was actually having those thoughts.

Sometimes events surrounding fertility treatment can also be quite funny.  I can’t tell you how much fun I have with the people at Walgreens when I tell them that I need to pick up my wife’s birth control pills.  For once, I can understand what it must be like for a man to pick up tampons and pads. I usually don’t know whether to laugh or run.  I just get the typical strange looks from the employees.  So, I must respond in a rather humorous manner.  I usually tell them, “Yea, we don’t need any slip ups! The doctors told me I had a low sperm count but you can never be too safe.”  I usually just get a nod and a head tilt similar to that of a puppy.   Sometimes you just have to have fun with ignorance.  My brother, Levi Pierce, taught me that a long time ago.

I know that some will just from reading the blog and not even being around our family daily will think, “OMG, so much has happened already and your lives have been so chaotic. Why now?”  Well, let me see if I can “splain it to you, Lucy.”  So, the term “chaotic” does not even begin to explain what our lives have been like the last several years.  Truly, we both wanted to wait a little bit longer just to be able to catch our breath.  Here’s what it all comes down to………as a lesbian couple who are currently moms, we can’t just decide when the “perfect time” or “more appropriate time” would be better because without the fertility insurance that we have our costs to have a child runs $30,000+ every month we try.  Most straight or gay couples have to have the savings or the ability to take out another mortgage to be able to do this even once.  This, however, is not us.  Melody was blessed with a job that has same sex benefits including fertility benefits.  That was all about to come to a screeching halt as of less than a month ago because Mel’s current job within that company was about to be eliminated.  That meant that we would have fertility insurance only until the end of December. So, our ‘baby making’ days were looking like they were going to end and very soon.  We were scared and very sad.  We looked at everything and said, “Well, now is not really the optimal time but we had to jump on this last opportunity.”  With very minimal cost to us, we proceeded with the process of trying to get her pregnant by December.

As a gay couple, we have to take many things into consideration before having a child.  The fertility process takes up most of the brain and emotional space backed up by legal concerns.  We definitely want to move ‘closer’ but definitely not back exactly where we grew up.  Unfortunately, that area of the country is not in the majority when it comes to equality for gay rights.  We currently live in a state where both our marriage and my rights as a non-biological mother are also honored without having to adopt because we are legally married.  We, by no means, are obligated to explain why we made the decision to have another child to anyone.  Here’s just a little “bird’s eye view” of what it takes for us to be parents.  No daddies other than “donor daddies” are in this house or are involved in this process.  These babies were actually fertilized into embryos the same time our almost 3 year-old son, Marshall.  These were our “frozen babies” which also have to be paid for yearly to be kept on ice.  I’m also knocking on 40 years-old so, we really needed to get on the ball despite what all has been going on.

We transferred two embryos just like we did with Marshall in the hopes that only one would take.  However, unlike when we conceived Marshall and lost the other embryo, both of these took.  That is a chance that we as a gay couple have and had to be willing to take each time.  We could have transferred only one and taken the chance of not conceiving and running out of time.  As life would have it, Mel was offered a different job with the same company and we now have the same benefits. When you don’t know for certain what life might hand you, you have to be willing to take risks and live with the outcome.   We transferred two frozen embryos a couple of years and neither of them took.  And then it seemed that life had once again hit the gas pedal.

 I have personally always taken risks. Some decisions were good and some were not.  Mel and I have, for the most part, had to deal with this alone in the beginning because our “lifestyle” was not accepted.  We have proven that we can be parents and make it happen on our own if need be.  Is this a decision that I regret? Absolutely not!  I wouldn’t change our trials of not being accepted as a family by both society and certain family members for the gift that we have both been given as a couple and as a family.  Life has taught us many things through the gift of our son.  He makes everything seem ok among the chaos.  Has it been easy? No, but nothing ever has been for either of us even before we met.

So, sometimes when you think you have everything planned the way you want it, the universe has a good chuckle and says, “oh yea, watch this!”  We do now and will continue to embrace our roles as spouses and parents.  But, make no mistake; we are finished with baby making after this go round.  And no we don’t have to worry about having tubes tied or accidental pregnancies.  Just a bonus, I thought I might add.  We are going to embrace these babies and continue to live our life as a normal family with sometimes abnormal circumstances.

I have a total of four reasons for both living and to attack my very puzzled past and present with a vengeance.  Painful as hell is what this recovery has been and will continue to be for a while.  Mel and I are both warriors that face life like this……”Tell us we can’t accomplish something, and we can assure you that you will be proven wrong.”  This isn’t a spiteful stance just one of the signs of a strong couple who loves each other dearly. And a family that perseveres no matter how it might look; what people think; or what it takes to have a minority family and keep it together.  We struggle just like every other family ours is just made up of two mommies, a little boy, two yolk sacs and a lot of love.

I would totally go through all of the abuse of 14 years from my previous heterosexual marriage again to know that in the end I would eventually hit the jackpot!

#Thispuzzledlife

Illusions of Halloween

Illusions of Halloween

10.21.14

“The moment of betrayal is the worst, the moment that you know beyond any doubt that you’ve been betrayed:  that some other human being has wished you that much evil.”

—-Margaret Atwood,  The Empathy Trap book page

These last several months has left me both mentally and physically drained to a low that I have never experienced.  Sometimes I have wondered if the universe is trying to point out something that I just can’t seem to see or understand.  The stress alone has left me 40 lbs lighter.  No complaints from me about that.  I think both me and my wife have felt every emotion possible at its highest intensity.  Have I allowed myself to do too much at times? Undeniably, yes.  Have I neglected my own needs psychologically, physically, mentally and emotionally?  Indeed I have.  Do I regret it? Not one minute of it.  I don’t feel compelled or obligated.  I am who I am. And I do what I do out of love for other people.

I’ve been told over the last few months, “No one ever said you had to do it or you weren’t asked to do it.”  My response has always been, “Why should I have to be asked to do something for someone that’s just the right thing to do?”  I don’t feel that I deserve any pats-on-the-back or high fives for simply taking some time to comfort someone in need.  Should I do this more in moderation?  Yes of course.  But, I know only one way to be a friend…..110% at all times when possible.

I’ve tried to figure this entire struggle lately with very few satisfying answers.  The only things I have become “one” with are my own tears.  I think that whatever emotional block that I had been struggling with prior to going back south for a visit has certainly been remedied.  I have emerged someone different and even more confused.  How do I deal with my own trauma like I need to while continuing to be supportive to those in need?  Well, right now, I don’t have those answers.  I just know that promises were made to both friends and family that I would stand by and support them in any way possible.  And since I don’t know how to turn my back on people, I’ll continue to be there for them while also trying to find my balance.

This time of year has many unpleasant anniversaries and memories associated with it.  I have always loved the fall and Halloween.  This year the familiar smells in the air are enough to turn my stomach.  I normally would be hunting for the best haunted house, haunted barn, haunted corn maze or anything that I was hopefully to get a good scare from in the region.  However, at this point in my life, there are very few days that are fun and enjoyable.  All I can seem to attribute this lack of contentment to is just where I am on my path of healing.  The word “trust” is one that has become again a word that is attached to the word “fear.”

Just this past weekend, our family went to McCall’s Pumpkin Patch in Moriarty, NM that we have been going to since before Marshall was born.  It has always been a place where my “inner child” comes alive and enjoys having fun.  Since Marshall was born, we always take this time to have fun taking fall pictures of him.  This year was different.  I was very apprehensive about all the people that would be there and just the thought of going scared the absolute shit out of me.  I didn’t totally understand but I think back to the sacrifices that my parents always made to attend all of my many softball/basketball games.  Instantly, I put on a smile and thought, “I, too, must do this for our son.”

Mel had all medications ready just in case.  And I will also add that I was medicated before we even left the house.  Secretly, my goal was to get through this as quickly as possible and get back home to my place of “safety.”  I must admit that seeing our son having such a good time brought joy to my heart.  The fear that I had from just being there was beginning to make me nauseous.  I sipped on my medical marijuana shooter to try and help combat all of the anxiety and nausea that was beginning from somewhere deep in my soul.  Something was beginning but what and why?  I knew that part of it had to do with being around so many people that was for sure.  I knew, though, that there was something more painful attached to this reaction, but what?  Halloween had always been something fun for me or had it?  I tried to ignore everything as best I could for the sake of Marshall and Mel to have an enjoyable day.

The last thing we always do before leaving is the hay ride.  However, after being around what seemed like ½ of the total population of New Mexico, I was done.  I told them to go ahead  and I would just wait under a covered area where a lot of families were eating and taking a break from the activities.  Never going anywhere in public without my IPod, I sit at a table and try to do some deep breathing and try and enjoy some music until they got finished.  Apparently, I was seen as an easy target to squeeze out because a rather large family decided that they would occupy the rest of the space at the table.  So, I politely got my shit and left them with the damn table.  I would like to interject that there is not a whole lot that I miss about where I was raised.  The common courtesy of simply asking if it was ok to sit there was something that I truly missed at that exact moment.  I would’ve gotten up anyway but, you know, the whole “principle” of the matter thing.  Anyway, I find a place on a hay bale and sit there in eager anticipation for the return of the pumpkin hunters.   I soon realize that I’m not able to keep an eye on everything but this time I’m alone.  My mind begins to panic and all I can think is, “Get me out of here NOW!”  Then the flashes of images that I can’t seem to connect with begin.  Really?  All I knew was that I was terrified.  The nausea sets in and I keep swallowing to prevent the ultimate embarrassment of vomiting in public.  I was scared and alone and that was all I could comprehend.  I felt like at any moment someone was going to do something horrible to me.  I just didn’t feel protected.  My deep breathing quickly became like a dog panting.  My eyes searched the area like a tiger looking for a meal.  And then…….I’m in the truck almost back in ABQ not remembering if something had happened.  I had a really bad headache and tried to put the pieces together and couldn’t.  Yea…..Happy Halloween.

#Thispuzzledlife