dissociation

darnold1975

Mel’s Corner: Illusions of Control

Mel’s Corner: Illusions of Control

05/11/2015

“Peace: It does not mean to be in a place where there is no trouble, noise, or hard work.  It means to be in the midst of those things and still be calm in your heart.”

– Lady GaGa

Having a spouse with dissociative identity disorder can be quite hard.   Often times events can be quite hurtful and you will have full memory while the spouse has none.  That is a hard thing to accept.  How can a person say or do something then have no memory of it? And then treat you like nothing ever happened?  I started to question my own reality.  Maybe it didn’t happen, maybe I’m wrong, and maybe I’m the one with the problem.

The way my wife’s system works is when she becomes too overwhelmed she will have alters who will “pop out” to take over a situation.  Depending on what alter comes out, depends on how the situation is handled.  Also alters can tend to just come out if they feel like they need to take control or if they feel she is not doing an adequate job of taking care of the situation.  Often times a protector comes out.  Different systems have different alters who are protectors.  My wife just happens to have a more aggressive, angry protector because that’s what worked for her for so many years.  What that means for me is I tend to get the back lash of situations a lot.

ying yang fire water

 I’ve found that in order for me to survive those situations where things become overwhelming for me emotionally, I have to remind myself that I’m talking to her protective alter, and this alter was developed to help protect the system.  Although it’s not ok to have behavior this way, often times there is nothing I can do about it but ride out the storm.  During these times I’ve learned that the serenity prayer has brought me much comfort.  I usually like to break it down to the situation.

 God, grant me the serenity to accept the things I cannot change.  I can’t change the fact my wife will always have DID.  I can’t change the alters that she has in her system.  Sometimes even the situation is beyond my control.

The courage to change the things I can.  I can change how I react, what I say and how I approach her and the situation.  This one is harder than it sounds, although I can change my reaction, often times emotion has taken over and I have to pause to change my reaction.  This one takes much practice, and even today I become overwhelmed and my reptilian brain (fight or flight) takes over.  I find that stepping away from the situation when I can brings me more clarity.  I also find my therapy background tends to come out during this period as well. Many times it’s “safe” thing for me to just switch over and treat it as a therapeutic process thus protecting my feelings.  There are days when I just loose it and break down.  Those days I do get angry with God for even having a disease like DID.  Although it served its purpose when the abuse happened, it’s no longer needed and it’s something that never will go away.  There are times I need a friend to tell me that everything is going to be ok.  It’s during these times I have to look beyond myself and know that I need strength from a power greater than myself.  Somewhere deep inside I know everything will be ok, it always is, but for some reason I just can’t access that part of myself.  Hearing it from someone else gives me that spark of hope I needed to get through the situation and continue to believe that all will turn out ok.

And the wisdom to know the difference.   Wisdom only comes with time.  Only after touching the stove a few times do you learn that it’s actually hot.  Wisdom has taught me when to challenge an alter’s thinking and when to back away and let the system reset.  Time has also taught me to pick up on subtle cues that tell me which alter is out.  Some alters take great joy in trying to fool me into thinking they are someone else in the system and I’m sure they succeed many times in fooling me.  There are sometimes I even question myself as to whom I am talking to.

There is a longer version on the serenity prayer that adds these additional lines:

Living one day at a time;

Enjoying one moment at a time;

Accepting hardships as the pathway to peace;

Taking, as He did, this sinful world

As it is, not as I would have it;

Trusting that He will make all things right

If I surrender to His Will;

So that I may be reasonably happy in this life

And supremely happy with Him

Forever and ever in the next.

Amen

 

The part I find most helpful in the addition is “living one day at a time”.  There have been times that a day is too overwhelming and I have to live a minute or hour at a time.  Making it through those small amounts of time get me through the day and then eventually through the situation.  There are periods that can be months long of chaos.  Times where an alter is out of control for days.  Thankfully in our journey those long periods of chaos are not as frequent as they have been.

 

“I’m sorry, Gemma. But we can’t live in the light all of the time. You have to take whatever light you can hold into the dark with you.” ~ Libba Bray, A Great and Terrible Beauty

I believe there are many situations in life we look back on and think, that wasn’t as bad as it felt in the moment. We made it through that situation and will make it through this one.  Pain is relative.  For example if I’m in physical pain, the worst possible pain I’ve experienced (a 10 on the scale), is childbirth.  For me that’s all I can compare it to.  When I was a child it would have probably been vaccinations would have been my 10.  Looking on that today, getting a shot is nowhere near the pain of childbirth, so pain is relative to what we know.  I’ve had people tell me that they don’t know how I do it every day that I have to be a strong person.  While that might be true, this is my normal.  I wouldn’t know what to do if my life wasn’t like this.  Now could I survive under constant stress, pressure and turmoil, no.  That’s why I’m glad that the chaos has breaks, even if they are short breaks, it allows me to catch my breath to go through the next wave without drowning.  I think most people don’t know what they could do because they might not have been faced with the situation.    I think this from the promises listed in the Big Book of AA sums it up.   ” We will not regret the past nor wish to shut the door on it.”  We have to learn from the past, or else we are destined to repeat it.  Not learning, we react the same way each time and we will get the same outcome, but if we learn and grow then we move through that situation with a new perspective.

#Thispuzzledlife

darnold1975

Battle Wounds From A War

Battle Wounds From a War

5.1.15

“Cutting is not attention seeking. It’s not manipulative. It’s a coping mechanism–a punitive, unpleasant, potentially dangerous one–but it works. It helps me cope with strong emotions that I don’t know how to deal with. Don’t tell me I’m sick, don’t tell me to stop. Don’t try to make me feel guilty, that’s how I feel already. Listen to me, support me, help me.”

—A Bright Red Scream

Big Trigger Warning for those not in a good place to be able to handle the topic of self-injury.  This post will be explicit for the topic to be as real as possible.  If you are in early recovery from self-injury please use your own judgment carefully before proceeding.  You have been warned.

I’ve been in this position before. My heart is pounding. My skin is crawling. My thoughts are racing.  The rage is building to a dangerous level that I’m not sure I can contain.  “I hate myself for this.  Ladies aren’t suppose to have such hateful thoughts.  Why must I always get this angry?  Am I capable of hurting someone?  I think I might be.  What would people think if they knew?  “You should’ve just had it beaten out of you when you were younger and you wouldn’t be acting like this.  You disgust me!  You’re flawed and no one ever has or ever will like you.  If you had been liked your birth mom she wouldn’t have given you up.  You must be psychotic.  You’ll never amount to anything just look at you.”  These are just some of the things I’ve heard since I started this behavior as a child.

Like bullets from a war zone, the thoughts and feelings hit my heart and mind over and over.  I try to shake the feelings of hopelessness, embarrassment, helplessness and intense feelings of being unwanted and the unforgiving loneliness.  I try to sit with the feelings as I have done before.  This time is different. I haven’t felt this level of intensity.  Every time I take in a breath my upper back feels like it’s being pounded by a sledgehammer.  I try distracting with music and my head just pounds more.  The thoughts become louder and louder.  I need relief and I need it NOW!  Nothing I know that has helped ward off this is helping at this moment.

just scars

I begin to feel my body going numb starting with my face and working its way throughout my body.  Soon, I no longer feel or hear, I just see.  Someone resembling myself is going through a very familiar ritual of gathering supplies strategically kept close by.  I know what is about to happen.  I’m out of balance and need to make all of the craziness in my head stop.  By now, I feel completely detached from even my own limbs.

The blue tourniquet is tied around my upper arm unsure how tight.  My left arm is cradled in a towel. Brand new blades are fully exposed and glistening in the light.  My heart is pounding with excitement and anxiety all at one time.  My only thoughts are, “I’ve got to have relief NOW!”  The other part is knowing that relief is only minutes away.  I look at my arm and I’m paralyzed as I watch the blade being picked up and placed against my skin.  In one quick swoop the blood begins coming out.  This is done another 10-20 times. My body seems to instinctively know when enough is enough and how deep is deep enough.  After 27 years, we have had some practice with this.

The endorphins flood my bloodstream with enough force to relax both my mind and body to a point of complete relaxation.  I continue to enjoy the relief that I had just experienced and was letting whatever poison that seemed to be occupying my mind with such hatred leave my body.

This is always done privately because, what if someone knew?  I didn’t want to die.  I just needed to regain balance and this has worked for many years.  Deep breaths now and my ‘system’ has seemingly returned to normal.  I have all my bandages prepared beforehand so, everything is waiting for the deed to be done.  I bandage this wound, still not completely feeling all parts of my body, like it’s something sacred.  Soon, I begin to worry about who and how I’m going to cover up this behavior yet again.  I make my plans and stick with it.  I don’t dare seek medical attention even though I need several stitches because of the fear of being disrespected  by being told, “I am just attention seeking. You did it so I don’t feel sorry for you.  That was just a sorry attempt at suicide which she obviously didn’t want to do too badly.”  So, I take care of it and watch it heal as I have many times before.  But, the guilt and the shame of the current episode start to invade my thoughts.  And so the cycle continues…..

If you were to see my forearms they might look to some of you like a scene out of a horror movie.  When I look at my arms, I think “Damn, look at what all I have survived.”  Yes, once again, this behavior began at age 13.  My eighth grade school year that would forever change my  life.  Individuals who engage in this behavior typical have a range of reasons for beginning and continuing the behavior.  My initial reasons for beginning this behavior was because of intense anger that I was forced to hold inside.  I was in a ‘no win’ situation with the teacher, my predator, so no emotion could be shown.  I was so angry that I wasn’t completely sure what I was capable of doing.  What we now know and understand is that when feelings get stuffed for so long they manifest in other ways.

razors

“The truth about childhood is stored up in our body and lives in the depth of our soul. Our intellect can be deceived, our feelings can be numbed and manipulated, our perception shamed and confused, our bodies tricked with medication. But our soul never forgets. And because we are one, one whole soul in one body, someday our body will present its bill.”

-Alice Miller, A Bright Red Scream

It never ceases to amaze me how people are about watching trauma shows on television about emergency rooms across the nation with gunshot wounds, stab wounds, car wrecks, etc covered in blood and guts and yet freak out like the thought of cutting oneself means ‘run for the hills.’  I think maybe part of the issue is something that’s accidental versus intentional.  Self-harm often gets labeled as some type of pseudo-suicide attempt when in actuality that has absolutely nothing to do with suicide.  True self-harm is also not a behavior that is a bandwagon type of behavior.  Self-harm is about using what seems to be a last ditch effort to hold on to life without committing suicide.  I’m also not saying that everyone who dies by sliced wrists, forearms, legs, stomachs, faces and heads aren’t as a result of suicide vs. self harm.  But, self-harm also can become an addiction.  The endorphins released at the time of the injury can last for about 30 minutes.  Medical professionals seem to think that just because someone states that they were not able to feel at the time of the behavior that they can’t feel when being stitched up.  Often times the nurses and doctors have personally given me a feeling of being ‘less than’ or have treated by wound like I had absolutely no feeling by being rough with my arm.  After the 30 minutes is up, you can feel every single bit of pain.

I’m not harmful to other people with my instruments.  I found a way when I was much younger to deal with my anger.  As maladaptive as it might be, it worked to help me survive what my mind thought I needed help with.  I realize that this is a behavior that must change for long term recovery and to encourage a healthy ‘system.’  Trauma and PTSD can have you fine one minute and not the next.  This behavior I continue to struggle with from time to time. Self-harm does not consist of just cutting, there’s also burning, breaking bones, exposing skin to extreme temperatures, eating disorders, hair pulling (trichotillamania), etc.

I’m no longer really embarrassed but just accepting that  cutting is also a part of where I’m at in my process right now.  I had gone several years previous without cutting but jumping into trauma therapy and the effects of PTSD can make it very difficult to deal with.  I’ve made much progress over the years in trying to recover from cutting. It’s definitely a slow process for us even with a very supportive and understanding wife.

I’m not ashamed nor do I flaunt my scars.  Our only difference is that our tears are red.  I’ve been in a war my whole life and kind of see them as “Battle Wounds from a War.”  Please think and educate before you judge.

#Thispuzzledlife

darnold1975

And So Our Day Begins….

And So Our Day Begins…..

1.29.15

 “All men make mistakes, but a good man yields when he knows his course is wrong, and repairs the evil. The only crime is pride.”

― Sophocles, Antigone

My body awakens with a severe headache. Legs slowly begin to cramp. Body aches with a detox feel.  In my heart I know it’s my body releasing trauma that’s been trapped for many years. I don’t freak out about it because I know what it is. However, it doesn’t make it feel any better.

Session is later this morning.  Everyone inside is always on edge. It’s like being in a classroom hoping and praying that your name isn’t called. Somehow the topic turns down a familiar road. Except this morning there is extreme nausea.  I now regret driving here but beg for more at the same time. I medicate have taken my pre-therapy dose of phenergan.  I also have been sitting outside the office listening to my music and smoking cannabis wax waiting for the relief from some of the nausea and anxiety. I always arrive early just to take time to prepare for what could possibly be discussed.  My goal for the day:  Don’t puke in the therapist office.

Eating disorder came out unscathed again! Wheww!!!! And none of the ‘yuckies’ today either. Just an intense amount if physical pain with a brain to match an out of control daycare center.

I tried the best I could to comprehend my therapist’s end of the session instructions.  I felt like I was in a spinning tunnel. Insiders were really upset, some were mad, sad and/or both.  Recent life events has been both a blessing and a curse.  My system’s walls have been dropped now leaving me emotionally very vulnerable.  Driving has become a topic of concern the last few months. This morning, I can say that I was actually scared to drive. This is the one thing I feel I have left is driving. I don’t do it much anyway because of the symptoms of the condition.  This is hurting my heart with this realization of possibly losing some of my independence.

Where did the session go? I was just talking to her.

Right now, my body and mind knows the torture of flashbacks, and the repeated screaming at the top of their lungs. I’m nauseous and mentally I leave there saying, “I’m ok.” Knowing I’m not. There’s a little pride issue I have so there I said it.  That’s why I didn’t say anything.

I sit in the car trying to gather my bearings. My head is spinning. People are yelling from the flashbacks. Alters are in an uproar. And all at once, my body begins to cramp all over. I have my music blaring trying to keep me grounded for the moment without drawing attention. I sit for a few minutes and it turns into____?  I don’t know what time I left. 5 minutes? 20 minutes? 1 hour?

I back out slowly like a shaky toddler. I know instantly something still isn’t ok.  To save my pride, I pull out safely into traffic. But can’t quite understand where I’m going or how to get there.  I look up and I’m turning onto the base. Yay! I made it home but how? Wow! Having a moment like that can wake you up. The rest of the day….yea not sure about it either.  I’ll get the daily recap later this afternoon from Mel. As far as the rest goes, brief notes telling me what topic was discussed in therapy are all I remember from the day.

So much to discuss, so little time. I feel like I’m doing everything I can. I have even told my therapists which topics I will try to ‘crawfish’ out of because of the uncomfortability. I write on this blog because everyone one of us deserves to be heard fully for once. Hopefully, better days ahead.


#Thispuzzledlife

darnold1975

Out Of The Darkness, Into The Light Part2

Out of the Darkness, Into the Light Part 2

1.29.15

“I want everyone that has been abused by someone in their childhood to know that you can get past it. Having DID is not the end of the world; it’s the beginning of your new life. DID allows the victim of exceptional abuse the ability to “forget” the abuse and continue living. Without it, I may have gone crazy as a teen and spent my life in  a psychiatric hospital.” 
― Dauna Cole, A Shattered Mind: One Woman’s Story of Survival and Healing

One of the major issues with this disorder are what most people refer to as ‘alters’ or other personalities.  What I’m going to try to do is to paint the picture for you in a way that I’ve been learning how to understand this.  So, imagine you have an apartment complex and each person has their own room.  Except in these rooms, there are horrible memories that are behind doors and no one can get in without a key.  The only people that have these keys are my therapists and my alters which help keep anything else from hurting me.  This is what has protected me throughout the years.  However, some of the coping strategies that worked then DO NOT work now.

Alters can also range in age depending on at what age the abuse occurred.  As dysfunctional as things can get at times the alters as a whole are referred to as a ‘system.’  Until consciousness together can be shared, there might always be memory loss.  The amnesic episodes are, at the very least, scary as hell.  The memories that I often have include only flashes of pictures of the day or days. The information date, time and situation is usually not available.

Alters and systems are as individual as a finger print.  There is no ‘cookie cutter’ way of treating DID.  The most important thing to me hands down is the relationship with my therapists.  Without that relationship, recovery is futile for any issue or disorder.  I trust my therapists enough to take me into the depths of the most terrifying events that have ever happened to me.  This relationship that has been  allowed to happen, as close to trusting, as possible has taken 2 years now with one therapist.  However, both the ups and downs of these relationships has lead to the progress now being made by leaps and bounds.  Painful as this process is, I can only hope that things actually get better.

The tenets in these rooms represent parts of the person you know as Dana.  I will not get into discussing how many or their names.  I can tell you that while growing up with some of those reading this blog alters were already formed or forming.  Not only do these alters hold memories, but they also function in different ways.  However, sometimes the problem with the alters is that they function completely independent from the individual known as the ‘host.’  This is usually the mood swings that you might see. Alters develop out of traumatic events and sometimes more than one during a single traumatic event.   Just to put to rest for those that don’t know my parents, no they were not any part of the abuse.

Alters actually develop when the brain compartmentalizes the traumatic event, memories, etc.  The trauma is so overwhelming and the mind and body both have to survive, that the only way the individual knows instinctively to survive is by developing a new alter even though they may be unaware at the time.  Often times, it is many years down the road that survivors even realize that they have alters.  Therefore, many survivors are trapped in the cycle of the mental health system being misdiagnosed for years and much money spent on treatment for the wrong diagnoses.

Often times, many people say, “I’ve been through worse things and I don’t have alters.”  The only answer I have found is that what’s traumatic for one person may not necessarily be traumatic for another person.  There is also a genetic predisposition to being able to dissociate.  And dissociation is key to the formation of alters.  What is known is that trauma of any kind effects the brain permanently.  Severity depends on how long and what type of trauma was occurred.

You can most definitely have PTSD without meeting criteria for DID.  DID cannot exist without a diagnosis of PTSD since that is a large part of how the disorder forms.  DID also usually always entails some form of early childhood sexual abuse although ‘splitting’ in adulthood is uncommon.

“Another of the difficulties of having DID is the denial. DID is a disorder of denial. It has to be because if the original person knew about the alters and felt their pain, they would either go crazy and be hospitalized permanently, or would die.” 
― Eve N. Adams, A Shattered Soul

#Thispuzzledlife

darnold1975

Out Of The Darkness, Into The Light

Out of the Darkness, Into the Light Part 1

1.1.2015

 “Dissociative parts of the personality are not actually separate identities or 
personalities in one body, but rather parts of a single individual that are not yet 
functioning together in a smooth, coordinated, flexible way. P14” 
― Suzette Boon

Since this begins a new year, I thought I would start it off with a ‘boom’ of reality from our world.  The topic that I will discuss is one that has such stigma attached to it that it’s has taken me months to muster the guts to discuss it.  This is a topic that hits home in the best/worst kind of way.  I’ve written for months now explaining some of the many symptoms that I experience mostly on a daily basis.  2014 was no doubt one of the most difficult for me, Mel and Marshall.  However, we as a family including my brother have shed tears together, as well as, have a lot of laughter. I have also smoked a ton of medical marijuana just to be able to live day to day.

I figured that a few months ago when I ‘came out’ out as a medical marijuana consumer, the thought crossed my mind that even though people can be cruel when it comes to mental illness, that since this blog is about MY healing I would ‘come out’ about my particular illness.  Many have read my blog since day one and for that I thank you.  I would also like to say that while reading this particular post that you just keep an open mind.  I’m not going to try to change your opinions or perceptions of mental illness.  I’m simply going to try and paint you a picture of mine to the best of my ability.

I have Dissociative Identity Disorder (DID).  Now for those with no therapy background, I can tell you that this is the same thing as Multiple Personality Disorder.  And now your opinions and thoughts begin to race. The only references that most of you have are those of the books/movies The Three Faces of Eve and Sybil.  Hollywood did a horrible job painting a picture of what those of us with this disorder look like and how we function on a daily basis.  Guess what?  I’m still the same Dana that you grew up with and loved.  I just have a world that has formed inside my brain that I didn’t realize everyone didn’t have.  I didn’t question it because to me that has been my normal.  Does this diagnosis make me ‘crazy?’ Should it make you fear for your family’s life if I happen to be around? Does this make you want to run as fast as you can in the opposite direction?  I can promise you that all of that energy would be wasted.

The symptoms that I have mentioned in other posts are all true and are a part of daily life for me.  I can’t tell you what it’s like living with a spouse with this particular disorder because only my wife can answer that.   I can tell you that it’s the most intricate puzzle I’ve ever had to try and figure out.  Having only had this correct diagnosis for almost 1.5 years we, as a family, have had to adjust.  We were already adjusting prior to Marshall being born.  His birth somehow set off a bomb inside my brain that retriggered everything that has happened to me.  Not his fault or mine, just our reality.

With both my wife and I having Master’s Degrees in Counseling, we were baffled when we never even considered this diagnosis as one that would fit.  Even in graduate school, because of limited time to study the Diagnostic and Statistical Manual of Mental Disorders we didn’t see the signs.  If you want to know why we had limited time to study on this manual, just take a look at it one time and you’ll see that it could take years to be taught thoroughly and it’s like computers changing all the time.  This diagnosis is still part of a great debate about whether or not it’s an actual diagnosis. I can’t answer for other families but for our family it’s very much a REAL diagnosis.

Some people have, in fact, asked Mel if she felt safe around me with Marshall.  The answer is always the same….yes.  There’s a lot of self education we’ve had to do because of the stigma within the mental health communities, as well as, those outside that community.  We don’t have all the answers yet to how and why and neither does science. I can tell you that the very slow journey of recovery from a lifetime of trauma actually began when the correct diagnosis was given.  Now I finally had answers to why sometimes I would answer myself and had what I thought were ‘loud’ thoughts.

To see me today, I’m the same goofy ass, class clown that was and still is friends with Levi Pierce.  I have scars on my arms.  It’s nothing to be afraid of, it’s how I survived.  You don’t have to be afraid to have your kids around me. I’m not going to cook them and eat them.

DID, as I’ll refer to the diagnosis from now on, is not near as scary as the picture that has been painted.  Does it have scary moments? Of course.  So does Bipolar, Major Depression, Schizophrenia and any other disorder.  This disorder requires a very patient and understanding spouse, as well as, professionals to be able to deal with some unpleasant moments.

The title of my blog “This Puzzled Life” is all about putting these scary pieces back together enough for me to be able to enjoy doing what I love…..helping people.  Once piece at a time is how I’ll learn to live with this disorder.  Trial and error is how it’s been for almost 1.5 years now with the correct diagnosis.  Prior to the correct diagnosis it was and still is at times a total nightmare.  Also, life continues regardless if I have a disorder or not.  Friends and family still pass away which can complicate things.  But, this too, is just the way life operates.

 With very patient but firm therapists, I’m finally being able to look very closely at some of the horrors.  The ‘alters’ or other personalities, if you so wish to call them, have their own story because they were created by the mind at very key times in the abusive history.  Alters together are called a ‘system.’  Each ‘alter’ has his/her own function within the system.   Each person with DID has a system much like that of a finger print.  Not every therapy works the same like a cookie cutter.  Do not be afraid to ask what you don’t understand.  Your fears come from what you don’t understand.

“DID is about SURVIVAL.  As more people begin to appreciate this concept, individuals with DID will start to feel less as though they have to hide the shame.”

–Anonymous

There are also no psychotropic meds that are specifically designed for this disorder.  This also explains why for the first 3 years of seeing a psychiatrist none of the meds worked for an extended period of time.  Some antidepressants, anti-psychotics, axiolitics work well for some alters and not for other alters.  I was taking Parkinson’s medications for the side effects of other medications while feeling horrible from the side effects.  So, that represents toxicity to me.  My psychiatrist offered as a last resort the state’s Medical Marijuana Program because of all the mood swings, PTSD, hallucinations and every other symptom I would have at that time.  Now believe what you want about medical marijuana, but I can personally tell you that that medication as it is so treated, is one of the reasons my wife, son, friends and family still have someone they love living.  The memories of the trauma alone are more than I can handle.  The effects of PTSD steal your sanity one image, smell, thought or sound at a time. The body memories while very painful become a little more tolerable with the marijuana and acupuncture.

This is why I’m also so big on people recognizing and working on their own trauma.  That way people like me who set out to enjoy life don’t have to wait 40+ years to understand what that means.  I’m representative of people who were too proud or stubborn to face their own demons.  This too was not a “choice.”  I understand the concept of ‘free will.’ Where was my free will?  That’s right, there was none.

People from all walks of life have this diagnosis but go on for years with the wrong diagnosis because so much can mimic other diagnoses.  There are also those still that live with this diagnosis and are very successful members of society.  The trauma didn’t just occur overnight.  It’s has happened my whole life so, the process won’t resolve itself overnight.  There is a lot of painful elbow grease that has to be put into this recovery.  The point is to keep putting one foot in front the other.  I’ve never backed down from a fight and won’t start now.  You just can’t take the athlete out of me.

I will take you through the victories and the setbacks of this journey.  Hopefully, I’ll help educate you while also healing me.  The only thing I ask is keep an open mind.

#Thispuzzled

darnold1975

Illusions of Halloween

Illusions of Halloween

10.21.14

“The moment of betrayal is the worst, the moment that you know beyond any doubt that you’ve been betrayed:  that some other human being has wished you that much evil.”

—-Margaret Atwood,  The Empathy Trap book page

These last several months has left me both mentally and physically drained to a low that I have never experienced.  Sometimes I have wondered if the universe is trying to point out something that I just can’t seem to see or understand.  The stress alone has left me 40 lbs lighter.  No complaints from me about that.  I think both me and my wife have felt every emotion possible at its highest intensity.  Have I allowed myself to do too much at times? Undeniably, yes.  Have I neglected my own needs psychologically, physically, mentally and emotionally?  Indeed I have.  Do I regret it? Not one minute of it.  I don’t feel compelled or obligated.  I am who I am. And I do what I do out of love for other people.

I’ve been told over the last few months, “No one ever said you had to do it or you weren’t asked to do it.”  My response has always been, “Why should I have to be asked to do something for someone that’s just the right thing to do?”  I don’t feel that I deserve any pats-on-the-back or high fives for simply taking some time to comfort someone in need.  Should I do this more in moderation?  Yes of course.  But, I know only one way to be a friend…..110% at all times when possible.

I’ve tried to figure this entire struggle lately with very few satisfying answers.  The only things I have become “one” with are my own tears.  I think that whatever emotional block that I had been struggling with prior to going back south for a visit has certainly been remedied.  I have emerged someone different and even more confused.  How do I deal with my own trauma like I need to while continuing to be supportive to those in need?  Well, right now, I don’t have those answers.  I just know that promises were made to both friends and family that I would stand by and support them in any way possible.  And since I don’t know how to turn my back on people, I’ll continue to be there for them while also trying to find my balance.

This time of year has many unpleasant anniversaries and memories associated with it.  I have always loved the fall and Halloween.  This year the familiar smells in the air are enough to turn my stomach.  I normally would be hunting for the best haunted house, haunted barn, haunted corn maze or anything that I was hopefully to get a good scare from in the region.  However, at this point in my life, there are very few days that are fun and enjoyable.  All I can seem to attribute this lack of contentment to is just where I am on my path of healing.  The word “trust” is one that has become again a word that is attached to the word “fear.”

Just this past weekend, our family went to McCall’s Pumpkin Patch in Moriarty, NM that we have been going to since before Marshall was born.  It has always been a place where my “inner child” comes alive and enjoys having fun.  Since Marshall was born, we always take this time to have fun taking fall pictures of him.  This year was different.  I was very apprehensive about all the people that would be there and just the thought of going scared the absolute shit out of me.  I didn’t totally understand but I think back to the sacrifices that my parents always made to attend all of my many softball/basketball games.  Instantly, I put on a smile and thought, “I, too, must do this for our son.”

Mel had all medications ready just in case.  And I will also add that I was medicated before we even left the house.  Secretly, my goal was to get through this as quickly as possible and get back home to my place of “safety.”  I must admit that seeing our son having such a good time brought joy to my heart.  The fear that I had from just being there was beginning to make me nauseous.  I sipped on my medical marijuana shooter to try and help combat all of the anxiety and nausea that was beginning from somewhere deep in my soul.  Something was beginning but what and why?  I knew that part of it had to do with being around so many people that was for sure.  I knew, though, that there was something more painful attached to this reaction, but what?  Halloween had always been something fun for me or had it?  I tried to ignore everything as best I could for the sake of Marshall and Mel to have an enjoyable day.

The last thing we always do before leaving is the hay ride.  However, after being around what seemed like ½ of the total population of New Mexico, I was done.  I told them to go ahead  and I would just wait under a covered area where a lot of families were eating and taking a break from the activities.  Never going anywhere in public without my IPod, I sit at a table and try to do some deep breathing and try and enjoy some music until they got finished.  Apparently, I was seen as an easy target to squeeze out because a rather large family decided that they would occupy the rest of the space at the table.  So, I politely got my shit and left them with the damn table.  I would like to interject that there is not a whole lot that I miss about where I was raised.  The common courtesy of simply asking if it was ok to sit there was something that I truly missed at that exact moment.  I would’ve gotten up anyway but, you know, the whole “principle” of the matter thing.  Anyway, I find a place on a hay bale and sit there in eager anticipation for the return of the pumpkin hunters.   I soon realize that I’m not able to keep an eye on everything but this time I’m alone.  My mind begins to panic and all I can think is, “Get me out of here NOW!”  Then the flashes of images that I can’t seem to connect with begin.  Really?  All I knew was that I was terrified.  The nausea sets in and I keep swallowing to prevent the ultimate embarrassment of vomiting in public.  I was scared and alone and that was all I could comprehend.  I felt like at any moment someone was going to do something horrible to me.  I just didn’t feel protected.  My deep breathing quickly became like a dog panting.  My eyes searched the area like a tiger looking for a meal.  And then…….I’m in the truck almost back in ABQ not remembering if something had happened.  I had a really bad headache and tried to put the pieces together and couldn’t.  Yea…..Happy Halloween.

#Thispuzzledlife

darnold1975

Family Day

Family Day

9.8.14

“Some people’s lives seem to flow in a narrative; mine had many stops and starts. That’s what trauma does. It interrupts the plot. You can’t process it because it doesn’t fit with what came before or what comes afterwards.” 
― Jessica Stern 

And then you have a random day where everything seems wonderful.  I’ve been in public without getting sick.  I’ve stopped and talked to a friend and laughed.  I’m only dealing with minimal physical ailments this morning.  Maybe the weed, klonopin, Valium and ativan are working.  I’m not asking questions. I’m just going to enjoy the ride.  Reality will be back soon enough.  At least I’m not sick despite all of the medication.

I wish I had had the break from some of the side effects from when we went and took pictures on Sunday.  I was all dosed up and ready to face the people and overstimulation of my brain.  The plan was to take Marshall to the botanical gardens and let him ride the choo-choo.  Off our little family goes to find the choo-choo.  Did I mention that I had been dosed with a good bit of meds before I left the house?  I vaped on my wax pen all the way to our destination at the Botanical Gardens.

Everything was going fine. Marshall was enjoying running around being a kid.  Mel was…well….being a mixture of a professional photographer and a mommy.   Today was going to be the day that Marshall and I had “mommy/son pictures.”   Other families were there having picnics and just enjoying a nice, cool Sunday late morning and taking in the scenery.  The people were spread out so, at least, I wouldn’t have to worry about them touching me.  I had my wax pen ready, my sunshades to hide my life full of shame and my IPod ready to face any type of external or internal stimulation.

Marshall was showing me things and asking, “Bite you?” So, our conversation was typically, “No, baby, flowers don’t bite.”  Then he sees the koi pond. The koi have instantly become sharks.  He starts shouting to get our attention, “Sharks, Sharks!” Yep, this momma was proud that our son knows the difference between a fish and a shark.  I look behind me thinking because I thought I heard someone call my name.  It was a seemingly peaceful pathway filled with small trees, bushes and ground covering.   “Here we go,” I thought but not knowing why.  I notice my stomach getting a little nauseated but took a couple of vapes off my pen and hoped that the feeling would go away.  I soon noticed that my jaw began hurting. The muscles in my body began cramping. The nausea became stronger.  I told Mel that I was going to sit down a few minutes to rest, but really hoping that I just didn’t throw up.

 The longer I sat there, the worse I felt.  As a tear, dropped from my eye underneath the sunshades and shaky voice, I told Mel we needed to go home.  An unimaginable fear I must’ve been ‘triggered’ but I hadn’t realized it. Then, the headache hit.  Not as bad as the one last week, when I had acupuncture where I never remembered the visit, but plenty bad enough to feel miserable.

Once again, my physical symptoms have messed up another family outing. And soon the shame and guilt hit me like a “tornado propelled bumble bee.”  I had no warning but thought it was probably in the lineup somewhere.  I felt like collapsing from just sheer embarrassment, even though, people around me didn’t seem to notice. I just sat down again and tried to wait for the feeling to pass. After several minutes, I decided no more waiting and listening to music. I suddenly had to GET THE HELL AWAY FROM WHERE I CURRENTLY WAS!  Something still seemed to scare me, but I didn’t know what.

I tried to remember what we were doing, and what had just happened to cause such a scare.  I couldn’t remember what I had said, done or thought. All I could do was hope that ‘it’ was over soon.

MY wife, being the very understanding person she is, told me everything was ok and we could come back another day.  The disappointment laid somewhere deep within me, not her.  She had no idea the level of disappointment I was experiencing.  Everything was fine and now it wasn’t.  Marshall didn’t seem to notice and neither did the people passing by. So, now I act like everything is fine, right?  I stood up and the familiar feeling hit me but this time it scared me. My body didn’t feel like I could control itself but I was moving.  It was as if I was watching this awkwardly walking human being that I didn’t recognize. ‘Things’ just weren’t ok for some reason.

We were still able to get some good pictures of me and Marshall.  But, the disgrace of the signs and symptoms of disorders can be embarrassing even if other people don’t seem to see them.  Some things can’t be hidden.  Some things have been hidden for years and are now noticeable.  I just wanted to get back to my ‘familiar’ surroundings….HOME!

#Thispuzzledlife

darnold1975

Memories That Come To Life

Memories That Come To Life

8.21.14

“I feel no emotional connection to these outwardly human gestures.
I am not there, because I never left Afghanistan.”
― Jake Wood, Among You: The Extraordinary True Story of a Soldier Broken By War

We recently went to the “small, southern town” thinking that I could do some ‘special’ therapy there.  This is a ‘trial and effort’ type of situation for us in dealing with my disorder.  We soon realized that doing therapy and even being in the state was causing more harm than good.  I couldn’t relax enough mentally or physically to be able to do the therapy.  There are just too many harmful emotions and people that are associated with that area.  When we do visit, I’m constantly watching EVERYTHING and EVERYONE.  Saying that someone is ‘safe’ doesn’t mean shit to me!  I luckily don’t remember what all of what was said and done.   I do remember how the feeling was like having my skin peeled off.

It’s a very conflicted feeling of wanting to be there but not wanting to step foot near that area.  Most of my high school teammates, my parents, our really close friends, people who support us, the fields that I put my body on the line to be a good athlete, the great memories of the terms “team” and “family, and the house I grew up in.  But also, are the memories of the all the abuse.  I always make a point to go by and visit both my friends, former classmates and my grandmother’s grave at their respective cemeteries.   I sit late at night next to the leftfield line where I experienced what the term ‘love’ was all about for the first time.  I think many times about how much fun we had as players and the things we got away with because we were high school athletes.  But, those thoughts always become overshadowed by what was going on, seemingly in another life.

I ride around that city and all I see and think is the horror that no one claims to know about but me.  There are those that I know recall what happened to me with the teacher.  They knew about it, knew it was wrong, and did nothing about it.  Everywhere, I seem to go in that city is a very bad reminder of what happened.  Some people have tried to say, “Just let the past go!”  Tell me how and I’ll do it.  That’s usually where the conversation about that ends.  I usually feel like I can’t escape the ‘nightmare’ that I had already lived.  I just wanted to go to my NEW home, Albuquerque.  Petal will always be the town where I was raised, taught manners, good food and respect.   But a lot of healing has to take place for me to be able to consider it anything other than a ‘nightmare.’  I have a lot of people there that I’m very close too.  However, I can’t even enjoy a visit with them because I’m so on edge about everything.

I was told by my ex-husband about the molestation that, “that happened a long time ago, what in the hell can you do about it now?” I have never forgotten that statement. I instantly felt like I had been emotionally raped because it wasn’t a big deal to him.  He told me later, “I have spoken with your parents about the molestation incident and they told me that they don’t believe that it happened because you would’ve told them about it.”  I didn’t know it then, but they still had no idea what had actually happened. I had made sure of that for a very long time.  I was devastated from what he told me.  I figured that with him being my husband that surely he would be empathetic that it happened.  I don’t know if he ever believed me or not.  But, I do know that there was never any empathy shown towards me about that subject in any way.  “Dana, it’s a &@*# play with it!” is not the way to help that person heal.  It actually re-traumatizes them. I now know what he told me was a lie. All I’ll say about that topic is that I rarely talk about it because of the shame of the abuse.

I’m actually reading a book that is explaining exactly what ‘wife rape’ is.  The book actually explains a lot to me.  I find myself reading the same paragraph over and over at times. So, reading a book is usually a feat.  I start seeing the canvas of words slowly form a picture of what looked like me.  I read further and could so identify with some of the other survivors.  I thought, “Now, I have an explanation for part of the 14 year ‘mind fuck.’” However, what I noticed is that slowly a repeat of an incident began to unfold.  I couldn’t stop it. I was silenced.  I saw his mouth and lips move.  I saw the redness of his face.  Some saw me as being lucky to be married to such a well known guy.

Unfortunately, his abuse was reserved for the party of 1…..me.  He was different around other people.   I knew him for who he was.  He was the product of the abuse from his father.  I was told, “There are no marks on you! No one will believe you anyway!  You’re the one with the mental history!”   Then the feelings began to rush to my heart, stomach and brain where the nausea and migraine ensued.  I looked around and realized that I was sitting in my chair. For a split second, though, everything was very real but from a different time.  I looked down and the book was still opened to the page I had been reading.  I vaped a little mmj (medical marijuana) and then went and tried to relax in the bed while my body thought that I had just been on a run from a dog.  Everyone else was already fast asleep.

Both my days and nights are like this at times.  The visions and memories are so real, in fact, that vomiting often follows.  It seems like it never ends.  I hope for better days sometimes.  Right now, it feels like I’m feeling it all over again.  All I know to do it hit it, whatever it is, ‘head on each time.’ Even if you are scared, you NEVER dodge an opponent!  You always step on the court or up to the plate ready to play ball!

#Thispuzzledlife

darnold1975

More Traveling

More Traveling

8.19.14

“She was a stranger in her own life, a tourist in her own body.” 
― Melissa de la Cruz, The Van Alen Legacy

I always feel the need to speak about toddler events in the mornings because well…..sometimes they’re just funny.  So, I was doing the usual getting Marshall ready for school and loaded in the car.  I asked him if he would like some cheetos since that’s what we had in the car for him as a snack.  He shook his head and said, “Momma D, no cheetos…only toes!” “Ok, Marshall, mommy will only call them ‘toes’ from now on.”  Sometimes this kid makes me really laugh.

The term “traveling” has a much different definition to me than the general public seems to understand.   When “traveling, “I’m definitely anywhere I want to be.  I could be on the beach somewhere enjoying the sun or checking out the lesbian buffet.  Every place can be new or one that seems to bring much emotional comfort.  However, sometimes the memories of abuse invade and I to go elsewhere without even knowing it.  To the average person, a function such as this doesn’t seem that different from seemingly “ignoring” the spouse or a boss.  Everyone at some point wishes they were somewhere different especially when at work or just needing a vacation.  Most people don’t use this as a defense mechanism but rather just ‘daydreaming.’

As a child, throughout my molestation, I was mentally forced to be somewhere else.  I couldn’t possibly deal with things as they were.  Each time I knew of another “episode,” my mind would go elsewhere.  I had no idea that the ‘dissociation’ had occurred. I just knew that I couldn’t physically and mentally handle the situation at hand.  The specifics about the molestation are going to be left to my very brave therapists.

Over time, this natural and sometimes forced dissociation becomes second nature.  Just I like said in an earlier post about with PTSD symptoms happening when there is an actual or ‘perceived’ threat, this has now become an automatic type of coping mechanism.  Since, I have apparently been doing this since very early childhood even without my knowing, this behavior has become a daily response to anything ‘perceived’ as threatening.  To put these ‘threats’ in perspective for you, I can give you examples of ‘perceived threats.’ Things such as: loud noises, too many people in one area, too much visual, tactile and auditory stimulation, social situations, being by myself, being touched by someone, hollering, bad weather, and many more situations.  As you can imagine, I have varying reactions to therapy because I’m processing everything that happened on different levels.  So, seeing me as the person you know is completely different from what and how they see me as a person.  I’m still the same person you know and grew up with if you see me.  You probably won’t know anything has ever happened or is wrong.  After all, we are taught from a very young age to keep things in the family even if the family doesn’t know.

Dealing with the trauma on such different levels, my therapists and wife get to see very unique sides of me.  Dissociation is very natural for me especially while in therapy.   Sometimes I can stop it and sometimes I can’t.  This can and does present problems in therapy at times, but we work through it and figure out what’s happening.  The goal is to try and minimize “traveling,” while getting use to not using it at all to function daily?  Is this possible?  Really, I don’t know.  I am trusting in the people that I work with to guide me through this healing process.  I have to admit that I wish there was some kind of ‘rapid’ trauma treatment that I can do while under sedation.  Almost like processing without being conscious of what is going on.  This, unfortunately, isn’t part of the process.  The part of the process I’m currently in is one of both mental and physical chaos.  I do the best that I can because that’s what I was taught by both my parents and coaches even when it’s scary as hell.

I write because everything else scares me to the point of vomiting.  I have lost 40lbs because of the stress on both me and my family.  I’m not currently restricting in regards to eating disorder behavior.  Even though, I definitely have a lot of “eating disorder” thoughts and some behaviors especially in public or with certain people.  But, I go sometimes for days without knowing that I haven’t eaten.  I have even overdosed on medication and had no idea until a couple of days later that this had occurred.  I go for minutes, hours, day and sometimes weeks with not knowing what has transpired.  I simply understand this as “traveling.”  Sometimes I have done things in that ‘state’ that I am and will continue to be embarrassed about. Things are said and done are like a game that I think people are playing with me to make me feel bad.  I have bought things, gone places, eaten, not eaten, had conversations, had arguments and have had ‘rage’ events that I have no memory of happening.

I carry a lot of guilt and shame once I understand days later what has happened.  Does this sound like a quality of life to you? My perpetrators have left a war for me to deal with everyday.  I simply try to win one battle at a time until the war is over.  Medical marijuana just helps with a lot of the horrible physical and mental symptoms that I have from all of this. It doesn’t take back anything that happened. I have to take a lot of this medication to be able to go out in public or therapy because everything’s so painful.  For those that think that ”a drug is a drug,” you’re right it’s just like insulin being used as a medicine.  And sorry my disordered behavior has nothing to do with marijuana except to keep both the public and me safe.   I have a quality of life now that I haven’t had before.  Not everyone uses this plant as a medication or recreationally within limits.  There are actually people who no longer think about suicide because they the government has made a medication legal that can also give them a quality of life that they never saw possible. There are a lot more people that use and die from prescribed medications that the trusted doctors administer.  Please educate yourself on this, someone you know might can and could benefit from this plant one day.  It just might be you!

#Thispuzzledlife

darnold1975

Traveling

Traveling

8.16.14

“The trauma said, ‘Don’t write these poems.
Nobody wants to hear you cry about the grief inside your bones.” 
― Andrea Gibson, The Madness Vase: By Andrea Gibson

This morning begins as usual just stirring in our bed trying to wake my senses up.  Automatically, I look around the room to see if I should be alarmed by anything new or out of place.  I sit up on the side of the bed and soon the physical symptoms are on me like a ‘pit bull on a steak.’  The horrible headache that is becoming increasingly worse by the minute is initially unphased by my medical marijuana lying close by.  My body feels pain down to its cells.  I’m having muscle cramps making me question if all of the effort to get better is actually worth it. Why do I hurt like this? If my body is purging itself of the poisons created by the trauma on a cellular level, then I wish it would hurry the hell up.  I did notice that I started getting sick yesterday afternoon.   I  discounted it from being in public for a few minutes yesterday.   Today is different….every morning that this is happening has me feeling that I’m paying penance for something. When is my next acupuncture session? At least, I get a couple of days of almost no physical symptoms.   Alas, the marijuana is working well enough for me to get Marshall dressed and taken to school.  This morning is all about physical symptoms. The feeling is not consciously about social anxiety. But, rather…”Don’t let me puke on the way or when I pull up at the daycare.”

I think to myself…

 “I finally make it back home.  Now, I’m locked in and safe. But, now I’m alone. Anything could happen. Instant ‘shock and awe’ stomach cramps. Can I ever have a day, that for most people is just a mediocre ‘ok day?’ My body and mind is on fire!  The feel of air on my skin is like hot tar being poured on me. My back feels like I was impaled with something sharp. My muscles all over my body feel like they have begun disintegrating. My jaw and teeth feel like they could fall in my lap at any moment. My body must be detoxing, but from what? It must’ve been something I did yesterday. But what did I do and where did we go if anywhere?”

Losing time for some people is nothing more than daydreaming, missing an exit on the interstate, or getting enthralled in a good book.  However, the term “losing time” for me and my family can have very scary and unique meanings from the average family. Everyone, at one time or another, forget your keys or something that you meant to take with you to the store. You suddenly remember, that it’s the list that you have made with what you needed. You go home, find the list where it was left, get back in the car, and head off to the store. No harm, no foul. You don’t qualify for a diagnosis because of it. As a former therapist said to me, “Welcome, to the Human Race!”

My first memory of losing any type of time was in the 8th grade.  While being in that closet, I went elsewhere. It seemed somewhat familiar but ‘safe.’ I don’t remember what the scene was or where I went, it just wasn’t in that closet. I seemed to be locked in a type of paradise.  Every once in a while I would hear, “Are you listening to me?!”

By the time I got to high school, I felt like I got a new start. I was now 20 lbs lighter even though I did it unhealthy.  I was excelling in the sports I was playing. I was dropping weight seemingly every day.  No behavior problems reported by teachers.  I was pushing my body passed its limits but I was ok or so I thought.  This was the first year that I actually remember ‘losing extensive time.’  What is the difference?  Well, instead of a few moments that we all lose naturally.  I had lost an entire week.  I knew that I had ballgames that week so, how did I not remember how I played? I was doing a lot of diet pills at the time. So, that was the answer.  I remember thinking, “It’s nice to be back. But, where was I?”

Skipping a few years, to when I was married to my now EX-husband.  There were times that I remember seeing his mouth move but not hearing or knowing what was said.  That was fine with me. I didn’t know why it was like that but I was completely ok.  There were also those times when I would hear his first loud venomous word and then I would slowly fade away.  I could see him hollering at me but not hear or feel any of it.  My cutting really took off in this relationship and I realized that the same mental and physical stuff happened then too.  I didn’t think anything about it but I knew that my thoughts that I had were very, loud and continuous. I couldn’t dare mention this to the narcissist. Everything that ever happened to me was a joke and made fun. I would just keep my comments quiet and assume all the blame which is what they want.  Feelings belonged somewhere, but on my sleeves… VERY UNSAFE.

Several years later, I meet Melody and other things begin to happen.  Why would this happen around her? I didn’t understand and she surely wouldn’t either.  I just played everything off like, “I did a lot of drugs and they fried me.”    I didn’t tell her about what seemed like separate conversations to myself in my brain.  Everyone, surely has “loud” thoughts.  Heck, I wasn’t even divorce yet.  This type of stuff sometimes happened when he hollered at me or I was cutting. Why with Melody when she was a ‘safe’ person?   I was still watching and waiting for her true colors to come out and hurt me.  In the 7 years that I’ve known and loved her, I have the opportunity to see her true colors every day and they are a beautiful rainbow.  She’s genuine and I think somehow I must’ve known that back then.  We were in graduate school together and taking the same classes. So, to be able to pay attention, I would have to play games on my phone while they were lecturing.  I explained this to my professors before hand and they completely understood.  We thought that we were dealing with a college ADD thing.  Mel still had to re- explain the lecture once we got home. Once I got it and was able to ‘feel’ the connection of the material, It’s locked away.  So, graduate school was a bit more difficult for me, but that makes me no less of a graduate.  I just had to do things a little differently for me to be able to comprehend the information.   Even back in elementary days, I remember crying because I couldn’t answer the questions about the story that we had just read. Trial and error is how we acclimated to our situation and we do the same thing now.

My physical symptoms have me very sick so I’ll continue tomorrow. NAMASTE!!

#thispuzzledlife

 

#Thispuzzledlife