Passing The Torch

Passing the Torch

2.17.15

 “I know now that we never get over great losses; we absorb them, and they carve us into different, often kinder, creatures.” 
― Gail Caldwell, Let’s Take the Long Way Home: A Memoir of Friendship

Let me start off by saying that I am one of thousands of addicts/alcoholics whose life was touched by Sarah G. Pardue.  I remember vividly lying in my bed, depressed and mad at the world that I was sitting in some “rehab” that was meant for people who lived on skid row or had no teeth.  I was very quickly but gently told that addicts come in many different forms and that I just so happened to be one of them.  I didn’t know who she was but there was something about her that attracted me to her.  Not in a sexual way, but like there was more that I wanted and needed to know about this person.  She very gently told me, “Dana, we’ll take this one step at a time.”  I was so sour at the world that instead of thanking her for her kindness.  I simply said, “Really, is that available stitched on a pillow.” I promptly proceeded to roll my eyes.

I guess maybe that comment or instincts kicked in about how I might be as a client.  I was like a feral cat that was just angry and hurt.  She had that perfect balance for me.  She knew exactly how to push me without being condescending or aggressive.  And she knew that I needed that very nurturing side to let me know that she was a human that didn’t have any intentions on hurt me.

I, unfortunately, can’t remember all 90 days of being a patient at Pine Grove’s Women’s Next Step Program, but I remembered the therapist that would forever change my life in a very unique kind of way.  I was once handed a “character defect” worksheet where there were like one hundred or more on there that we were to circle as our personal character defects that have entangled our lives with addiction.  I very quickly looked at both sides; handed the sheet back to her and said, “Nope. None of these describe me or my current, past or present behavior.”  She had that “momma look” in her eye that can spark fear in Satan himself.  She simply and very non-confrontational said, “Really? Would you like us all as a group help you pick out which ones belong to you?”  I promptly answered, “No. I’m sure I can find a few.”

After 90 days of treatment at the “resort” as the husband at the time use to refer to it, I head out on my own with promises that I would one contact her in the event that I found my birth family or completed school.   She had done a lot of something most people don’t really know how to do for me that made a huge impression on my life……SHE LISTENED.  To that struggling drug addict, that meant more than that next ‘high’ for me.  I will admit that I didn’t go willingly.  I also didn’t leave willingly even though I had completed the program and for once I was safe from most things.  I cried because I was leaving a “special” and somewhat sterile environment from the outside world that was so mean.

About 5 years later, I tracked her down at work to tell her that I had gone back to school to become a drug/alcohol therapist and was currently in my undergraduate work.  I also called to tell her that I had found my biological brother, 2 half brothers, my birth mom and birth father and was flying to meet them.  We agreed to talk when I got back from my trip and that’s when the re-connection emotionally began for me.  From that point forward, I felt like I owed her the unpayable because she had done the one thing that no one besides my parents and certain close friends had never done, at that point, not give up on me.  She always saw some form of potential that even today I still can’t see.

I allowed her to slowly begin and to love me until I could love myself.  Under the hard exterior, I was melting like butter.  I was a kid again with an adult separate from my parents that seemed to love me and listen anytime I said anything.  She knew that I was still married to my ex-husband and I was also doing internships under her and a couple other people.  It was like everything had come full circle.  She and her now deceased husband Doug Pardue became like surrogate parents to me.

They used some very tough love approaches to some of my behaviors and some I didn’t appreciate.  I always, knew though, that it was done out of love.  They would have “good cop, bad cop” sessions with me that made the show Cops look like pretend.  I don’t know if some of you know what being “12 Stepped” means but  I can tell you that I’ve had both of their shoes broken off in my hind parts, more than once to get my attention, in an attempt to save my life from whatever behavior was consuming me.

For whatever reason, the stars lined up perfectly again and she is now simply called “mom.”  Our friendship grew into something much more special.  She has been a “life force” for me for the last 14 years.  They both saw me at my worst as a struggling addict of all kinds of addictions.  And they were both there celebrating the victory of completing my undergraduate degree in psychology while finally leaving a very emotionally and sexually abusive marriage.  Their compassion and my independence that I gained while becoming educated led to me believing that I was not nor would I ever be all those things I had been told all those years by him.  I was the only one that could make that change.  I wanted someone to come rescue me.  This time, though, the realization was that I had to do this scary part on my own.

I became part of their family and she and I had lots of talks about life.  We always told each other that we loved one another no matter what.  I also was getting to learn from the one that I considered as the “master” of counseling.  I watched her every move both at work and home.  I wanted to learn everything I could possibly learn from the “Yoda of 12-Step.” The key that she taught me about working with others was not with words but with actions.  She quite simply taught me the definition of compassion.  I’ve never lost the feeling of an innocent stranger that was getting paid a salary, that for once, cared about what I had to say about what had been done to me and how I felt.

A few months down the road she introduced me to my now legally married wife.  She played matchmaker which was never intended.  I’m glad the universe saw fit that we be together. We have a beautiful little boy and one on the way to thank all because of Sarah G. Pardue.  Both she and Doug took me under their wings and showed me again that a healthy love was possible.   I might not ever fully understand why they did that.  However, greatful doesn’t begin to describe the feelings I have about what they did both directly and indirectly in changing the direction of my life.

I did complete a master’s degree in counseling in 2009.  I have fallen in love with working with the ones that always seem to be the “leftovers of society.”  Truly, this is partially due to my own trauma.  But the other reason is because of the example that she set for me time after time.  She didn’t just talk recovery, she lived recovery.  The clients that she worked with saw this and you couldn’t help but to gravitate to something you don’t see every day in a person……AUTHENTICITY.

Sarah fulfilled her passionate dream of working with drug addicts/alcoholics and touched many lives.  There is only 1 of the 30 women that I was in treatment with, at the time that I stay in contact with.  She also happens to be the only one that never relapsed.  I’ve had my struggles for sure. And the other former patient has been a prayer warrior for Sarah during her time of grief and acceptance of the death of her husband and her own illness that took her life.

As I sit in this hospital room, waiting for her time to meet her maker, past friends and family members.  I also think about how much she impacted my life in a positive way.  I’m just one addict that she took time with and let them know that there was still value in a person who had been told for so long that there was no value left.  She did addiction work for 20+ years.  How many addicts/alcoholics lives did she impact in ways that no one will ever know?  To me her concept of counseling was very simple, “Read the person, not the book.”  She taught me things about counseling that no book could ever convey.  You just have to be able to watch the miracle happen.

What an example of true love, compassion and everything authentic that many of us as her patients, friends, family and co-workers got to see displayed even when she no longer went to work.  The word RECOVERY has her picture out beside it. What a beautiful person that God loved me enough to allow into and bless my life.  And because of her love and continuous fight against the war on the “disease of addiction” my future clients will also in some very special way will be touched by her as well.  With tears in my eyes and streaming down my face, I can say that there are many people that will always remember the legacy that she left on the hearts of many addicts/alcoholics that didn’t deserve another chance.

 I have taken that same compassion and concept into my own style of counseling.  She has passed the torch to be paid forward as she did with many of us.  I remember that everyone is individual and will have individual needs. Above all, she taught me compassion before judgment because in everyone there is some worth.  Thank you for loving me, Sarah G. Pardue!!!!!

And she is now with the love of her life, Doug Pardue.  You two will be dearly missed.

Sarah G. Pardue

7/11/53-2/11/15

   

“You were born a child of light’s wonderful secret— you return to the beauty you have always been.” 
― Aberjhani, Visions of a Skylark Dressed in Black

#Thispuzzledlife

Mardi Gras And Tears

Mardi Gras and Tears

2.7.15

“Mardi Gras, baby. Mardi Gras. Time when all manner of weird shit cuts loose and parties down.”

— Sherrilyn Kenyon

I’m back in the little southern town because of a very close friend who is dying from cancer. I normally go visit my grandmother’s grave while here but I just can’t bring myself to do it right now. My wife and son are getting ready to watch the small town Mardi Gras parade that is in every way a family parade. No uncovered boobies here.  All I can do is cry because I want to be at the hospital with my friend and to keep my promise that I would be there until the end. I sit in the car with my phobias, music and the most dangerous place I’ve been told I can be….in my head.

Mardi Gras parades of any kind are a very big tradition in the Deep South obviously stemming from New Orleans, LA. I try to enjoy something, even just writing this and my mind and body are in turmoil.  What my head has known for a couple of days, my heart began accepting the reality of the situation yesterday. I grieve so hard for this precious being that has been in my life 14 years. She blessed me to the point beyond words. She was my rock.

I have witnessed her help just some fried drug addicts like me with such compassion most people wouldn’t understand. My heart is just breaking. I totally understand that things happen when we get older and the circle of life continues. This woman, Sarah Pardue, is one rare jewel.   I’m wondering right now, did we both say everything we wanted and needed to each other. Or was it just understood.

The other night when we arrived from our long travels from Albuquerque, NM to Hattiesburg, MS, I walked into her room and said, “Damn, someone has to really be loved for me to come back here. We giggled a little and gave her a hug that had every ounce of love I could muster in it.  I told her, “Mom, I love you. How are you feeling right now?” Her natural therapist/motherly side came out and said, “sounds like to me that someone needs to take care Of themselves.” She knew what shape I would be in mentally seeing her and by now knowing the prognosis that I had personally feared but didn’t know.

I’ve tried to be a ‘rock’ for many. However she told me a long time ago….”even rocks have tears.” And dammit if she wasn’t right again!  Her body is there. But, “mom” isn’t. The one who I always saw as invincible had instantly become a mortal.

She has been my ‘rock’ for a long time. Now, I just feel lost.

#Thispuzzledlife

Mel’s Corner: The Diagnosis

Mel’s Corner: The Diagnosis….

Often times I can be asked questions about how it is living with a spouse with dissociative identity disorder, well let me assure you it’s never a dull moment.  When I met Dana over 8 years ago and we started our relationship just a few months after that, neither one of us knew she had DID.  She had been given many different diagnosis at that time and even had someone give her a rule out of DID, which we quickly dismissed, she just didn’t seem like a “Sybil”.  The first time I met an alter, I had no idea.  I thought it was just a PTSD flashback.  There would be 6 years pass before the official diagnosis.  The latter of those years proved to be very challenging.

   I’ve learned to appreciate each alter and the specific needs and talents they bring.  For instance, there is only one alter who likes ketchup, everyone else hates it and often blocks the alter who likes it from getting ketchup.  I learn likes and dislikes when it comes to food, and there have been times that one requests a certain meal only to have another come out while I’m cooking or we are eating and decide they want something else.  I’ve learned to cook what Marshall and I want and that usually works out.

   In the early days of diagnosis, there was one alter who had no idea who I was, but that has been the only one who had no idea  of me.  Now that’s not to say that I’m the “spouse” to everyone.  To the littles, I’m “Momma Mel”, to others “I’m a friend”, and even others see me as ‘the one who takes care of Dana.”

   Around the start of 2012, Dana started having large gaps of time missing and often times during this time there was a lot of aggressive/ angry behavior.  At one point it was thought she might have a seizure disorder.  We had started psych medications to stabilize her mood starting in 2010, however if a medication worked, it only worked for just a short time.  We even tried lithium and ended up in the hospital one month prior to our son being born for lithium toxicity.  That was one scary time.  Even the mental health system was no help.  We were on our own trying to figure this out and get help that was desperately needed.

  In September 2013, when dissociative identity disorder was first given as a diagnosis, I was a bit in denial.  I had to take everything in and then decide for myself based on the research and facts, did this diagnosis fit?  Having a masters in counseling my first go to was to see if Dana met criteria as listed in the Diagnostic and Statistical Manual.  I kept an open mind and I started to consider that this might be correct.  The more I met alters and got to know them, the more this diagnosis made sense.

   Most people would have no idea that Dana is a multiple.  In fact I would say unless we came out and said it, most people wouldn’t have a clue that she is a multiple.  The switching is very subtle and sometimes it’s not until later that I put it together that I’ve been talking to someone other than who I thought.  They like to try to trick me into thinking they are someone else in the system at times.  I’ve learned to adapt but even now I have moments of difficulty.  I’ve been told that the roughest time is in the beginning and the system will settle down and things will get much more manageable.  I’m starting to see that take place, I think in time we will learn more about how to deal with this disorder.

#Thispuzzledlife

All Just For A Tire

All Just for a Tire
1.30.15
“We turn skeletons into goddesses and look to them as if they might teach us how not to need.” 
― Marya Hornbacher, Wasted: A Memoir of Anorexia and Bulimia
I went out to crank the car this morning and that’s when like a wave from Hurricane Katrina hits me with body aches, migraine and nausea. My wife and I have learned to try and head these off when they begin to happen.  I also try some self talk that we do to try and help calm the ‘insiders’ down. “We do this every morning,” I say. Defiantly one screams back, “it’s where they are and what they do that scares us!”  I don’t normally go out in public much by myself but a flat tire will make you do strange things like attempt it on your own. I tell them what I need as they ATTEMPT to tell what extras I need.
My body is attacking me like thoughts of spears hitting my body like some battle from the movie Braveheart. I begin to wonder if a motor oil enema would be more comforting. I have an idea…I’ll go to the McDonald’s inside and order a small amount of food with a drink. I finally get my food and find the farthest seat in the back of the restaurant. I slowly go through my ritual of keeping my sunshades on with iPod going with my back to a flat surface. I slowly but very methodically build a fort around my food so, all those people can’t see me eating. Plans are made just in case I see someone I know. I’ll shove everything in the bag and say, “I’m in a hurry” just to get out of here. I take one bite while wondering what the other people in the restaurant are really thinking of me.

 

I eat as I always have with shame with every bite. “Don’t you know what people think of you and what you eat? Remember the pictures he made you put on the fridge? You’re becoming more imperfect with every bite!” Each bite I take, I hate myself even more. I struggle everyday wanting to be the very unhealthy weight I was in high school. But that too was a full time job.
All I can possibly think is, “This is why I stay home. I hope this ends quickly.” And again, I’m at the mercy of My past trauma. I massage my legs and try to relax but it gets worse with every person I see. I just want out and to be at home!”
OMG! I look up and a McDonald’s Employee is 5 ft from me. It’s time to pack up and go. Please don’t let her look at me. The panic can’t be put into words. My legs begin to hurt so bad I’m now limping.
A lot of times I think, “Why me?!” And suddenly I just realized, “because I have a ‘don’t give up spirit’.” But why this thought now? I remember what my brother Levi Pierce says sometimes, “Sis, sometimes you just don’t question things and just roll with it.”
Sometimes pieces of the puzzle are put together over something as simple as waiting for a new tire.
Thanks for the advice big brother!!
#Thispuzzledlife

And So Our Day Begins….

And So Our Day Begins…..

1.29.15

 “All men make mistakes, but a good man yields when he knows his course is wrong, and repairs the evil. The only crime is pride.”

― Sophocles, Antigone

My body awakens with a severe headache. Legs slowly begin to cramp. Body aches with a detox feel.  In my heart I know it’s my body releasing trauma that’s been trapped for many years. I don’t freak out about it because I know what it is. However, it doesn’t make it feel any better.

Session is later this morning.  Everyone inside is always on edge. It’s like being in a classroom hoping and praying that your name isn’t called. Somehow the topic turns down a familiar road. Except this morning there is extreme nausea.  I now regret driving here but beg for more at the same time. I medicate have taken my pre-therapy dose of phenergan.  I also have been sitting outside the office listening to my music and smoking cannabis wax waiting for the relief from some of the nausea and anxiety. I always arrive early just to take time to prepare for what could possibly be discussed.  My goal for the day:  Don’t puke in the therapist office.

Eating disorder came out unscathed again! Wheww!!!! And none of the ‘yuckies’ today either. Just an intense amount if physical pain with a brain to match an out of control daycare center.

I tried the best I could to comprehend my therapist’s end of the session instructions.  I felt like I was in a spinning tunnel. Insiders were really upset, some were mad, sad and/or both.  Recent life events has been both a blessing and a curse.  My system’s walls have been dropped now leaving me emotionally very vulnerable.  Driving has become a topic of concern the last few months. This morning, I can say that I was actually scared to drive. This is the one thing I feel I have left is driving. I don’t do it much anyway because of the symptoms of the condition.  This is hurting my heart with this realization of possibly losing some of my independence.

Where did the session go? I was just talking to her.

Right now, my body and mind knows the torture of flashbacks, and the repeated screaming at the top of their lungs. I’m nauseous and mentally I leave there saying, “I’m ok.” Knowing I’m not. There’s a little pride issue I have so there I said it.  That’s why I didn’t say anything.

I sit in the car trying to gather my bearings. My head is spinning. People are yelling from the flashbacks. Alters are in an uproar. And all at once, my body begins to cramp all over. I have my music blaring trying to keep me grounded for the moment without drawing attention. I sit for a few minutes and it turns into____?  I don’t know what time I left. 5 minutes? 20 minutes? 1 hour?

I back out slowly like a shaky toddler. I know instantly something still isn’t ok.  To save my pride, I pull out safely into traffic. But can’t quite understand where I’m going or how to get there.  I look up and I’m turning onto the base. Yay! I made it home but how? Wow! Having a moment like that can wake you up. The rest of the day….yea not sure about it either.  I’ll get the daily recap later this afternoon from Mel. As far as the rest goes, brief notes telling me what topic was discussed in therapy are all I remember from the day.

So much to discuss, so little time. I feel like I’m doing everything I can. I have even told my therapists which topics I will try to ‘crawfish’ out of because of the uncomfortability. I write on this blog because everyone one of us deserves to be heard fully for once. Hopefully, better days ahead.


#Thispuzzledlife

Out Of The Darkness, Into The Light Part2

Out of the Darkness, Into the Light Part 2

1.29.15

“I want everyone that has been abused by someone in their childhood to know that you can get past it. Having DID is not the end of the world; it’s the beginning of your new life. DID allows the victim of exceptional abuse the ability to “forget” the abuse and continue living. Without it, I may have gone crazy as a teen and spent my life in  a psychiatric hospital.” 
― Dauna Cole, A Shattered Mind: One Woman’s Story of Survival and Healing

One of the major issues with this disorder are what most people refer to as ‘alters’ or other personalities.  What I’m going to try to do is to paint the picture for you in a way that I’ve been learning how to understand this.  So, imagine you have an apartment complex and each person has their own room.  Except in these rooms, there are horrible memories that are behind doors and no one can get in without a key.  The only people that have these keys are my therapists and my alters which help keep anything else from hurting me.  This is what has protected me throughout the years.  However, some of the coping strategies that worked then DO NOT work now.

Alters can also range in age depending on at what age the abuse occurred.  As dysfunctional as things can get at times the alters as a whole are referred to as a ‘system.’  Until consciousness together can be shared, there might always be memory loss.  The amnesic episodes are, at the very least, scary as hell.  The memories that I often have include only flashes of pictures of the day or days. The information date, time and situation is usually not available.

Alters and systems are as individual as a finger print.  There is no ‘cookie cutter’ way of treating DID.  The most important thing to me hands down is the relationship with my therapists.  Without that relationship, recovery is futile for any issue or disorder.  I trust my therapists enough to take me into the depths of the most terrifying events that have ever happened to me.  This relationship that has been  allowed to happen, as close to trusting, as possible has taken 2 years now with one therapist.  However, both the ups and downs of these relationships has lead to the progress now being made by leaps and bounds.  Painful as this process is, I can only hope that things actually get better.

The tenets in these rooms represent parts of the person you know as Dana.  I will not get into discussing how many or their names.  I can tell you that while growing up with some of those reading this blog alters were already formed or forming.  Not only do these alters hold memories, but they also function in different ways.  However, sometimes the problem with the alters is that they function completely independent from the individual known as the ‘host.’  This is usually the mood swings that you might see. Alters develop out of traumatic events and sometimes more than one during a single traumatic event.   Just to put to rest for those that don’t know my parents, no they were not any part of the abuse.

Alters actually develop when the brain compartmentalizes the traumatic event, memories, etc.  The trauma is so overwhelming and the mind and body both have to survive, that the only way the individual knows instinctively to survive is by developing a new alter even though they may be unaware at the time.  Often times, it is many years down the road that survivors even realize that they have alters.  Therefore, many survivors are trapped in the cycle of the mental health system being misdiagnosed for years and much money spent on treatment for the wrong diagnoses.

Often times, many people say, “I’ve been through worse things and I don’t have alters.”  The only answer I have found is that what’s traumatic for one person may not necessarily be traumatic for another person.  There is also a genetic predisposition to being able to dissociate.  And dissociation is key to the formation of alters.  What is known is that trauma of any kind effects the brain permanently.  Severity depends on how long and what type of trauma was occurred.

You can most definitely have PTSD without meeting criteria for DID.  DID cannot exist without a diagnosis of PTSD since that is a large part of how the disorder forms.  DID also usually always entails some form of early childhood sexual abuse although ‘splitting’ in adulthood is uncommon.

“Another of the difficulties of having DID is the denial. DID is a disorder of denial. It has to be because if the original person knew about the alters and felt their pain, they would either go crazy and be hospitalized permanently, or would die.” 
― Eve N. Adams, A Shattered Soul

#Thispuzzledlife

Out Of The Darkness, Into The Light

Out of the Darkness, Into the Light Part 1

1.1.2015

 “Dissociative parts of the personality are not actually separate identities or 
personalities in one body, but rather parts of a single individual that are not yet 
functioning together in a smooth, coordinated, flexible way. P14” 
― Suzette Boon

Since this begins a new year, I thought I would start it off with a ‘boom’ of reality from our world.  The topic that I will discuss is one that has such stigma attached to it that it’s has taken me months to muster the guts to discuss it.  This is a topic that hits home in the best/worst kind of way.  I’ve written for months now explaining some of the many symptoms that I experience mostly on a daily basis.  2014 was no doubt one of the most difficult for me, Mel and Marshall.  However, we as a family including my brother have shed tears together, as well as, have a lot of laughter. I have also smoked a ton of medical marijuana just to be able to live day to day.

I figured that a few months ago when I ‘came out’ out as a medical marijuana consumer, the thought crossed my mind that even though people can be cruel when it comes to mental illness, that since this blog is about MY healing I would ‘come out’ about my particular illness.  Many have read my blog since day one and for that I thank you.  I would also like to say that while reading this particular post that you just keep an open mind.  I’m not going to try to change your opinions or perceptions of mental illness.  I’m simply going to try and paint you a picture of mine to the best of my ability.

I have Dissociative Identity Disorder (DID).  Now for those with no therapy background, I can tell you that this is the same thing as Multiple Personality Disorder.  And now your opinions and thoughts begin to race. The only references that most of you have are those of the books/movies The Three Faces of Eve and Sybil.  Hollywood did a horrible job painting a picture of what those of us with this disorder look like and how we function on a daily basis.  Guess what?  I’m still the same Dana that you grew up with and loved.  I just have a world that has formed inside my brain that I didn’t realize everyone didn’t have.  I didn’t question it because to me that has been my normal.  Does this diagnosis make me ‘crazy?’ Should it make you fear for your family’s life if I happen to be around? Does this make you want to run as fast as you can in the opposite direction?  I can promise you that all of that energy would be wasted.

The symptoms that I have mentioned in other posts are all true and are a part of daily life for me.  I can’t tell you what it’s like living with a spouse with this particular disorder because only my wife can answer that.   I can tell you that it’s the most intricate puzzle I’ve ever had to try and figure out.  Having only had this correct diagnosis for almost 1.5 years we, as a family, have had to adjust.  We were already adjusting prior to Marshall being born.  His birth somehow set off a bomb inside my brain that retriggered everything that has happened to me.  Not his fault or mine, just our reality.

With both my wife and I having Master’s Degrees in Counseling, we were baffled when we never even considered this diagnosis as one that would fit.  Even in graduate school, because of limited time to study the Diagnostic and Statistical Manual of Mental Disorders we didn’t see the signs.  If you want to know why we had limited time to study on this manual, just take a look at it one time and you’ll see that it could take years to be taught thoroughly and it’s like computers changing all the time.  This diagnosis is still part of a great debate about whether or not it’s an actual diagnosis. I can’t answer for other families but for our family it’s very much a REAL diagnosis.

Some people have, in fact, asked Mel if she felt safe around me with Marshall.  The answer is always the same….yes.  There’s a lot of self education we’ve had to do because of the stigma within the mental health communities, as well as, those outside that community.  We don’t have all the answers yet to how and why and neither does science. I can tell you that the very slow journey of recovery from a lifetime of trauma actually began when the correct diagnosis was given.  Now I finally had answers to why sometimes I would answer myself and had what I thought were ‘loud’ thoughts.

To see me today, I’m the same goofy ass, class clown that was and still is friends with Levi Pierce.  I have scars on my arms.  It’s nothing to be afraid of, it’s how I survived.  You don’t have to be afraid to have your kids around me. I’m not going to cook them and eat them.

DID, as I’ll refer to the diagnosis from now on, is not near as scary as the picture that has been painted.  Does it have scary moments? Of course.  So does Bipolar, Major Depression, Schizophrenia and any other disorder.  This disorder requires a very patient and understanding spouse, as well as, professionals to be able to deal with some unpleasant moments.

The title of my blog “This Puzzled Life” is all about putting these scary pieces back together enough for me to be able to enjoy doing what I love…..helping people.  Once piece at a time is how I’ll learn to live with this disorder.  Trial and error is how it’s been for almost 1.5 years now with the correct diagnosis.  Prior to the correct diagnosis it was and still is at times a total nightmare.  Also, life continues regardless if I have a disorder or not.  Friends and family still pass away which can complicate things.  But, this too, is just the way life operates.

 With very patient but firm therapists, I’m finally being able to look very closely at some of the horrors.  The ‘alters’ or other personalities, if you so wish to call them, have their own story because they were created by the mind at very key times in the abusive history.  Alters together are called a ‘system.’  Each ‘alter’ has his/her own function within the system.   Each person with DID has a system much like that of a finger print.  Not every therapy works the same like a cookie cutter.  Do not be afraid to ask what you don’t understand.  Your fears come from what you don’t understand.

“DID is about SURVIVAL.  As more people begin to appreciate this concept, individuals with DID will start to feel less as though they have to hide the shame.”

–Anonymous

There are also no psychotropic meds that are specifically designed for this disorder.  This also explains why for the first 3 years of seeing a psychiatrist none of the meds worked for an extended period of time.  Some antidepressants, anti-psychotics, axiolitics work well for some alters and not for other alters.  I was taking Parkinson’s medications for the side effects of other medications while feeling horrible from the side effects.  So, that represents toxicity to me.  My psychiatrist offered as a last resort the state’s Medical Marijuana Program because of all the mood swings, PTSD, hallucinations and every other symptom I would have at that time.  Now believe what you want about medical marijuana, but I can personally tell you that that medication as it is so treated, is one of the reasons my wife, son, friends and family still have someone they love living.  The memories of the trauma alone are more than I can handle.  The effects of PTSD steal your sanity one image, smell, thought or sound at a time. The body memories while very painful become a little more tolerable with the marijuana and acupuncture.

This is why I’m also so big on people recognizing and working on their own trauma.  That way people like me who set out to enjoy life don’t have to wait 40+ years to understand what that means.  I’m representative of people who were too proud or stubborn to face their own demons.  This too was not a “choice.”  I understand the concept of ‘free will.’ Where was my free will?  That’s right, there was none.

People from all walks of life have this diagnosis but go on for years with the wrong diagnosis because so much can mimic other diagnoses.  There are also those still that live with this diagnosis and are very successful members of society.  The trauma didn’t just occur overnight.  It’s has happened my whole life so, the process won’t resolve itself overnight.  There is a lot of painful elbow grease that has to be put into this recovery.  The point is to keep putting one foot in front the other.  I’ve never backed down from a fight and won’t start now.  You just can’t take the athlete out of me.

I will take you through the victories and the setbacks of this journey.  Hopefully, I’ll help educate you while also healing me.  The only thing I ask is keep an open mind.

#Thispuzzled

Lessons From 2014

Lessons Learned from 2014

12.30.14

 “Tell me and I forget, teach me and I may remember, involve me and I learn.” 
― Benjamin Franklin

The year 2014 while very trying has taught me many lessons…..

1)Toddlers tell their teachers at school that while their mommy is pregnant that really their little brother is locked in a closet at home.

2) Sometimes potty training is just not possible with some kids.

3) Loyalty while detrimental at times reaffirms you as a person and your dedication to friends and family.

4)After 20+ years after all the grime and muck of life, people’s hearts can remain the same.  I said HEARTS not behavior.  These are two completely different things.

5) One of the most important lessons I’ve learned this year is that life can vanish in an instant.  And the world will continue moving on.

6) Sometimes people are actually sicker than we know at the time.

7) Stopping the ‘trauma cycle’ is an option instead of a requirement.  Just because someone was evil to you, doesn’t give you a right to spread that same evilness in a different way.

8) When you look up and no one is around, first look in the mirror.

9) Being loyal doesn’t mean leaving those behind who have supported you from the beginning.

10) Being a mommy is an AWESOME and very difficult job.

11) Why some animals eat their young has become more clear with a toddler in the house.

12) Realizing that sayings your parents have told you throughout life are true is sometimes a bitter pill to swallow.

I’m quite sure that there are more lessons that I’ve learned this year.  The memory I once took for granted is no longer there.  However, lessons were learned and taught this year and yes they were are still are very painful.

The time with my brother, Levi Pierce and his family were probably some of the best times of my life.  He and I stayed up late at night talking and crying together.  He comforted me as I did for him.  After 20+ years, he’s still the same soft hearted guy that I knew as a child.  Make no mistake, you will never see that if you disrespect him in any way including through his family.

I have lots of difficulties because of my own trauma and he has his own set of issues.  The love and the friendship have never diminished.  The stars realigned at a perfect time once again.  I can only thank the universe for allowing me to learn these lessons even though they were and still are very difficult.  My loyalty to people hasn’t and will never change.  However, those that I trust with that very intimate part of my life have.  Both me and my family/friends have suffered because of my view of “loyalty.”  This is something that I must also work on for myself and those around me.

It has finally become very clear to me how very dangerous “black and white” thinking can be.  There has to be grey areas.  Through both therapy and life, I’m learning some very difficult lessons.  All I can do is embrace these “gifts.”  Right now they feel like spears have been impaled in my head and heart.  To me, I find truth and lessons in both the journey and the destination.

I was told by a therapist several years ago, “That everything that happens is a gift.  It doesn’t always come in pretty packages with big beautiful bows.  But, it’s still a gift.”  Right now, I’m trying to dig through some things and find the ‘gift’.  Maybe just maybe if I just continue to do the right thing that these gifts and purposes for these trials will reveal themselves to me.  And through this my heart will not change but I will grow.

“When we acknowledge it was our bad decisions we made that put us in these bad situations, only then can we accept them, get over it, and move forward.”

–Anonymous

#Thispuzzledlife

Three Years Of Life

Three Years of Life

12.3.2014

“I fell in love with a little boy and I’ve never been the same since.”

—-Anonymous

At 8:00 pm MST, our precious little boy will turn 3 years old.  Three years ago today we were anxiously awaiting his arrival and our challenge as new parents.  These three years have brought smiles, laughter and tears.  Marshall entered this world as a little preemie at 35 weeks.  I was very quickly allowed to get his first picture within moments of his birth.  He was taken to the NICU where he would remain for the next 18 days.  While we were glad that he was here, it was gut wrenching to know that we would be going home without our little angel that we had been planning almost since we became a couple.  I remember thinking, “OK he’s here, now what do we do?”  I was scared to death but happy all the same.  All of a sudden, the sun became much brighter and a love that I had never experience before began growing daily.  My greatest fear was losing this precious little being.  So, minimizing my time in the NICU was of utmost importance, or so I thought.  Today, I can say that I would love to have that time back with him as a brand new infant.  That was just where I was in my process at the time.

 

Christmas 2011 has got to be one of the best Christmas’s ever because we were a family and our little baby boy was finally home after 18 days of constant worry about whether or not he would make it.  This little handsome guy is, hands down the reason that we’ve been able to make it through some very dark times as a couple, individual and family.   Some nights we have both been up crying because we just didn’t know what to do to help him feel better.   I would certainly go through all the frustration of the last 3 years just to have our beautiful, sensitive, little superhero son in our lives.  I must admit that there are times when one begins to make sense as to why some animals eat their young.

We are now in the very independence gaining and boundary testing toddler years.  Sometimes I don’t know whether to choke him or just sit and hold this beautiful little boy that we have both the honor and privilege to call “Son.”  As a minority family, the response to his birth from outsiders was less than supportive as a collective majority.  You can’t convince these two moms by guilt with religion or any other tactic that we ever made a mistake by creating this little guy.

Whatever your beliefs, I can say this with a very clear conscious when I say that, “God entrusted us as parents with this precious being and thought that he was the perfect little boy to be able to handle any kind of disappointments that comes with being part of a minority family.”

Marshall knows one thing that he loves his mommies and his mommies love him.  Really, it’s that simple and what counts.

#Thispuzzledlife

The Birthday That Will Never Be Forgotten

The Birthday That Will Never Be Forgotten

12.4.2014

 “How much tragedy has to happen before I slip wide open?” 
― Alisa Mullen, Unrequited

As much as I want to celebrate another year of survival from both physical and mental issues, sadly it has been overshadowed by the loss of one of our twin children.  My wife, Melody and I weren’t really concerned about the doctor’s visit because there was never a problem with any of the previous visits.  She is considered high risk every time because of us doing invitro fertilization.  We see the perinatologists which basically knows every time the babies hiccup.  We are also at about the 12.5 week stage so, chance of miscarriage was much lower.

My brother Levi Pierce and wife are in the exam room while I’m frantically trying to get there in time for the measurements and everything that entails.  We had been preparing Marshall for two babies while he was trying to reassure us that there were four. Toddlers are just funny.  I get there in time for the technician to tell me that she was waiting to take all the measurements until I got there anyway.

After having my regrets about not really knowing how to bond as a first time parent with Marshall, this pregnancy was just different.  I could feel it so strongly on an emotional level that I had never experienced.  It was so beautiful.  It wasn’t something that I ever discussed with Mel or anyone else.  For some reason because that level of emotion and bonding with such little creatures I wanted to enjoy all by myself.  I had already completely embraced the reality of us having twins and the ways that we would have to work even more as a team.  We hadn’t told anyone yet for some realities just don’t match our realities.  Nevertheless, these babies already had our hearts.

With all three of us eagerly waiting for all of the measurements, I was so excited to get to have my only somewhat physical contact with our children.  She goes through each thing she measures, stomach, legs, head circumference, etc.  “Baby B” as it was named by the doctors for twin pregnancy,  was measuring a little smaller but not a big deal because this is a twin pregnancy.  And then even though she passed the words off as really no big deal that the doctor could probably detect it, the words “I can’t find a heartbeat came out of her mouth.”  My heart hit the exam room floor.  I could only think, “Did she just say that one of our babies is dead?”  In my heart, though, I knew.  Neither I nor my brother could hold the tears back as my extremely emotionally strong wife did. Hopes were there but the doctor also confirmed that there was no heartbeat.

I will forever remember December 4th not only as my birthday but also the day one of our children was born in Heaven.  2014 had been an extremely emotional year but this, I must say, has knocked the wind out of me.  This venture was new and I didn’t know how to comfort me or my wife.  All I could think about was, “Our baby will never get to meet any of the amazing people in our lives.” I was a snot crying mess to say the least.  I had never allowed myself to be this vulnerable in public.  It felt as though, I had just been shot in the chest.  My brother just simply got up and left the room.  Mel was able to hold it together until we left the doctor’s office.  And then it was my turn to try and comfort my grieving wife.  Any additional information they might’ve given us, I never heard. I could do nothing but feel my own soul crying out for our baby.

From that day, the term “miscarriage” will never been the same as it did before it happened to us.  The few that knew were trying to be encouraging by telling us that we had another baby still left to take care of.  The anger that flew all over me was the thought that the statement meant, “You can just go get another one at the store. No big deal.”  My initial thoughts were, “That was our child, not a broken toy.”  That instant reaction was valid but completely due to grief.  I don’t remember the rest of the day.  And really, it’s ok with me.  In the following days, I laid my head on her stomach and sobbed.  I realize that “this is just part of life” and “lots of people have miscarriages.”  But, we still just lost OUR  child.

We will no doubt love this other little baby and welcome him into the world with open arms just like we did Marshall.  Our hearts will never forget the day we lost our precious little 12 week baby. Happy Birthday to me.

#Thispuzzledlife