My Life With Ed

My Life With ED

“We turn skeletons into goddesses and look to them as if they might teach us how not to need.”
― Marya Hornbacher, Wasted: A Memoir of Anorexia and Bulimia

The topic of eating disorders is one that can cripple me to my knees.  The thought of having to discuss the topic with someone is like knocking the wind out of me.  If just the thought of this bothers me this bad then I would caution anyone with an active eating disorder or early recovery from one about very triggering information about my disordered past and present.  This post will probably be done over a couple of days due to how much it will stir internally.

If you’ve been reading my blog from the beginning, you know that the age of 13 was a very difficult year and was emotionally abusive by a teacher.  This was the year that several behaviors started for me such as:  cutting, eating disorder, drug addiction and very early alcohol abuse.  At the time, I didn’t understand that the behavior was called an eating disorder.  I just knew that I was about to start playing high school sports the following fall and I had to be faster and stronger.

The time I remember the first “dieting” type behavior was soon after the eighth grade ended.  I went on a crash diet and within about two weeks lost 20 lbs.  I had, in that short time, taught myself to dislike certain foods.  I had been using the drug Mini-Thins which was marketed as a bronchodilator at many truck stops that had both ephedrine and caffeine in its makeup.  This was well before ephedrine was taken off the market because of so many sports related deaths.  I clearly remember there being 100 tabs for $7.99.  Any allowance money went straight to those little pills.  Now you’re wondering exactly what purpose they served for me, eh?  This drug while containing a precursor for methamphetamine, completely knocked out my appetite while decreasing all water weight and supplying me the energy to play two sports without eating.

apple with tape measure

I was completely wrapped up in a big ole ball of addiction already and had no idea.  I’ve always said that addiction was the best friend that cut my throat.  It served its alleged purpose while wrapping me up in a killing machine of codependency of both behaviors and substances.  All it took for my eating disorder to continue was one compliment or another pound lost.  I soon found myself becoming a quicker ballplayer with greater stamina and explosive power.  Unfortunately, this never worked well with the aggressiveness that also developed this year.

When I went to high school, and thank goodness they weren’t drug testing athletes at that time, I was a full blown addict already out of control within only about 3 months.  My eating disorder had now progressed to weighing 12-15 times a day.  I slept in teachers rooms during lunch so I wouldn’t have to be around food.  I was now both anorexic and bulimic.  My bulimia purging was through laxative use.  I was getting drunk to the point of passing out and/or vomiting anytime I went to a “party.”  The mind bending part was that I was really climbing in my athletic play. I was a starting freshman on both the softball and basketball teams. I thought and felt like I was on top of the world.  I seemingly ‘had my cake and got to eat it too.’

The next couple of years I continued to lose weight but my playing slowly started on a downward spiral.  By my senior year, I was a sickly 83 lbs on a 5’7″ frame.  I had resorted to stealing diet pills and would frequently have mini seizures or some type of severe jerking movements and saw spots in the mornings.  I was constantly weighing myself.  I was constantly tired and cold. I would eat one small salad a week and would cry if I had to eat in public.  The questions had started long before about “why aren’t you eating?” “Are you losing weight?”  Most of the time I would just tell people that I wasn’t hungry. I had already eaten or my stomach hurt.  I would explain the weight loss off as just training harder and having a higher metabolism as a teenager.  My dreams of playing college basketball and/or softball were disappearing and I didn’t even care.  I was also now taking 25 pills a day just to maintain my habit.

fork with tape measure

People began to tell me how sickly I looked.  My eyes were dark and sunken. My face was sunken and my ribs and backbone were unhealthily showing.  My digestive system was completely messed up. Mentally I didn’t know whether to ‘scratch my watch or wind my butt.’  And my body had begun to feed on itself.  As a result, I was unable to be in top notch shape as an athlete because I always had pulled muscles in my back.  I had just watched myself as a beloved player of the game of basketball go from being able to play hard and fast the entire game to having to come out of the game shortly after tip off because of lack of energy or injuries.

When I moved from my teen years into my years of domestic abuse, I was required to weigh for my husband and to stay in a certain weight range.  I had finally started to recover minimally, I thought, pull out of my life of an eating disorder.  However, it seemed that I was being forced back into those behaviors again.  I was soon being told what I could and could not eat.  How and what I ate were criticized constantly.  I was made to take pictures of myself in bathing suits or naked and put them on the refrigerator as a reminder what I looked like when I got hungry.  And when I went to work and food establishments were nearby, I was dared to eat when it wasn’t the food I was allotted.  Sometimes I would look up from where I worked and my husband would be out in the parking lot watching me from his vehicle.  I became terrified to eat again and I was starving.  Most of the time, I would wait for him to go to bed and I would sneak food hoping to God he didn’t hear me.  Still, he would inevitably start pinching at my body and making comments about how I looked and dressed.  He would tell me, “You want to see something disgusting?  Just look in the mirror.”

Skip ahead to today and I still have a lot of hang ups around food, eating and body image.  This is probably one of the topics that haunt me the most.  I still cannot eat in public without wearing sunshades, headphones and trying to hide behind menus.  We have fears of being recognized and being talk about concerning whatever we might order or how we eat.  I’m scared to death about trying new foods.  I’m scared to make food selections.  I’m very uncomfortable with eating around people especially those that I know.  I prefer to eat privately.  These days it’s not about getting the high from the endorphins.  Now it’s strictly about fear of judgment.   Yes, I still have an eating disorder.  No, I’m not an anorexic weight.  Let me get stressed out and the first thing I do is start restricting.  There I said it.  I have a really long way to go on this recovery.   And with DID, as you may or may not can imagine, things can be extremely stressful for extended periods of time.

As my dear Sarah would tell me if I asked her advice on this one, she would say, “Dana, start at step #1.  This is a marathon not a sprint.”  Again, I can smile.

#Thispuzzledlife

All Just For A Tire

All Just for a Tire
1.30.15
“We turn skeletons into goddesses and look to them as if they might teach us how not to need.” 
― Marya Hornbacher, Wasted: A Memoir of Anorexia and Bulimia
I went out to crank the car this morning and that’s when like a wave from Hurricane Katrina hits me with body aches, migraine and nausea. My wife and I have learned to try and head these off when they begin to happen.  I also try some self talk that we do to try and help calm the ‘insiders’ down. “We do this every morning,” I say. Defiantly one screams back, “it’s where they are and what they do that scares us!”  I don’t normally go out in public much by myself but a flat tire will make you do strange things like attempt it on your own. I tell them what I need as they ATTEMPT to tell what extras I need.
My body is attacking me like thoughts of spears hitting my body like some battle from the movie Braveheart. I begin to wonder if a motor oil enema would be more comforting. I have an idea…I’ll go to the McDonald’s inside and order a small amount of food with a drink. I finally get my food and find the farthest seat in the back of the restaurant. I slowly go through my ritual of keeping my sunshades on with iPod going with my back to a flat surface. I slowly but very methodically build a fort around my food so, all those people can’t see me eating. Plans are made just in case I see someone I know. I’ll shove everything in the bag and say, “I’m in a hurry” just to get out of here. I take one bite while wondering what the other people in the restaurant are really thinking of me.

 

I eat as I always have with shame with every bite. “Don’t you know what people think of you and what you eat? Remember the pictures he made you put on the fridge? You’re becoming more imperfect with every bite!” Each bite I take, I hate myself even more. I struggle everyday wanting to be the very unhealthy weight I was in high school. But that too was a full time job.
All I can possibly think is, “This is why I stay home. I hope this ends quickly.” And again, I’m at the mercy of My past trauma. I massage my legs and try to relax but it gets worse with every person I see. I just want out and to be at home!”
OMG! I look up and a McDonald’s Employee is 5 ft from me. It’s time to pack up and go. Please don’t let her look at me. The panic can’t be put into words. My legs begin to hurt so bad I’m now limping.
A lot of times I think, “Why me?!” And suddenly I just realized, “because I have a ‘don’t give up spirit’.” But why this thought now? I remember what my brother Levi Pierce says sometimes, “Sis, sometimes you just don’t question things and just roll with it.”
Sometimes pieces of the puzzle are put together over something as simple as waiting for a new tire.
Thanks for the advice big brother!!
#Thispuzzledlife

More Traveling

More Traveling

8.19.14

“She was a stranger in her own life, a tourist in her own body.” 
― Melissa de la Cruz, The Van Alen Legacy

I always feel the need to speak about toddler events in the mornings because well…..sometimes they’re just funny.  So, I was doing the usual getting Marshall ready for school and loaded in the car.  I asked him if he would like some cheetos since that’s what we had in the car for him as a snack.  He shook his head and said, “Momma D, no cheetos…only toes!” “Ok, Marshall, mommy will only call them ‘toes’ from now on.”  Sometimes this kid makes me really laugh.

The term “traveling” has a much different definition to me than the general public seems to understand.   When “traveling, “I’m definitely anywhere I want to be.  I could be on the beach somewhere enjoying the sun or checking out the lesbian buffet.  Every place can be new or one that seems to bring much emotional comfort.  However, sometimes the memories of abuse invade and I to go elsewhere without even knowing it.  To the average person, a function such as this doesn’t seem that different from seemingly “ignoring” the spouse or a boss.  Everyone at some point wishes they were somewhere different especially when at work or just needing a vacation.  Most people don’t use this as a defense mechanism but rather just ‘daydreaming.’

As a child, throughout my molestation, I was mentally forced to be somewhere else.  I couldn’t possibly deal with things as they were.  Each time I knew of another “episode,” my mind would go elsewhere.  I had no idea that the ‘dissociation’ had occurred. I just knew that I couldn’t physically and mentally handle the situation at hand.  The specifics about the molestation are going to be left to my very brave therapists.

Over time, this natural and sometimes forced dissociation becomes second nature.  Just I like said in an earlier post about with PTSD symptoms happening when there is an actual or ‘perceived’ threat, this has now become an automatic type of coping mechanism.  Since, I have apparently been doing this since very early childhood even without my knowing, this behavior has become a daily response to anything ‘perceived’ as threatening.  To put these ‘threats’ in perspective for you, I can give you examples of ‘perceived threats.’ Things such as: loud noises, too many people in one area, too much visual, tactile and auditory stimulation, social situations, being by myself, being touched by someone, hollering, bad weather, and many more situations.  As you can imagine, I have varying reactions to therapy because I’m processing everything that happened on different levels.  So, seeing me as the person you know is completely different from what and how they see me as a person.  I’m still the same person you know and grew up with if you see me.  You probably won’t know anything has ever happened or is wrong.  After all, we are taught from a very young age to keep things in the family even if the family doesn’t know.

Dealing with the trauma on such different levels, my therapists and wife get to see very unique sides of me.  Dissociation is very natural for me especially while in therapy.   Sometimes I can stop it and sometimes I can’t.  This can and does present problems in therapy at times, but we work through it and figure out what’s happening.  The goal is to try and minimize “traveling,” while getting use to not using it at all to function daily?  Is this possible?  Really, I don’t know.  I am trusting in the people that I work with to guide me through this healing process.  I have to admit that I wish there was some kind of ‘rapid’ trauma treatment that I can do while under sedation.  Almost like processing without being conscious of what is going on.  This, unfortunately, isn’t part of the process.  The part of the process I’m currently in is one of both mental and physical chaos.  I do the best that I can because that’s what I was taught by both my parents and coaches even when it’s scary as hell.

I write because everything else scares me to the point of vomiting.  I have lost 40lbs because of the stress on both me and my family.  I’m not currently restricting in regards to eating disorder behavior.  Even though, I definitely have a lot of “eating disorder” thoughts and some behaviors especially in public or with certain people.  But, I go sometimes for days without knowing that I haven’t eaten.  I have even overdosed on medication and had no idea until a couple of days later that this had occurred.  I go for minutes, hours, day and sometimes weeks with not knowing what has transpired.  I simply understand this as “traveling.”  Sometimes I have done things in that ‘state’ that I am and will continue to be embarrassed about. Things are said and done are like a game that I think people are playing with me to make me feel bad.  I have bought things, gone places, eaten, not eaten, had conversations, had arguments and have had ‘rage’ events that I have no memory of happening.

I carry a lot of guilt and shame once I understand days later what has happened.  Does this sound like a quality of life to you? My perpetrators have left a war for me to deal with everyday.  I simply try to win one battle at a time until the war is over.  Medical marijuana just helps with a lot of the horrible physical and mental symptoms that I have from all of this. It doesn’t take back anything that happened. I have to take a lot of this medication to be able to go out in public or therapy because everything’s so painful.  For those that think that ”a drug is a drug,” you’re right it’s just like insulin being used as a medicine.  And sorry my disordered behavior has nothing to do with marijuana except to keep both the public and me safe.   I have a quality of life now that I haven’t had before.  Not everyone uses this plant as a medication or recreationally within limits.  There are actually people who no longer think about suicide because they the government has made a medication legal that can also give them a quality of life that they never saw possible. There are a lot more people that use and die from prescribed medications that the trusted doctors administer.  Please educate yourself on this, someone you know might can and could benefit from this plant one day.  It just might be you!

#Thispuzzledlife

Traveling

Traveling

8.16.14

“The trauma said, ‘Don’t write these poems.
Nobody wants to hear you cry about the grief inside your bones.” 
― Andrea Gibson, The Madness Vase: By Andrea Gibson

This morning begins as usual just stirring in our bed trying to wake my senses up.  Automatically, I look around the room to see if I should be alarmed by anything new or out of place.  I sit up on the side of the bed and soon the physical symptoms are on me like a ‘pit bull on a steak.’  The horrible headache that is becoming increasingly worse by the minute is initially unphased by my medical marijuana lying close by.  My body feels pain down to its cells.  I’m having muscle cramps making me question if all of the effort to get better is actually worth it. Why do I hurt like this? If my body is purging itself of the poisons created by the trauma on a cellular level, then I wish it would hurry the hell up.  I did notice that I started getting sick yesterday afternoon.   I  discounted it from being in public for a few minutes yesterday.   Today is different….every morning that this is happening has me feeling that I’m paying penance for something. When is my next acupuncture session? At least, I get a couple of days of almost no physical symptoms.   Alas, the marijuana is working well enough for me to get Marshall dressed and taken to school.  This morning is all about physical symptoms. The feeling is not consciously about social anxiety. But, rather…”Don’t let me puke on the way or when I pull up at the daycare.”

I think to myself…

 “I finally make it back home.  Now, I’m locked in and safe. But, now I’m alone. Anything could happen. Instant ‘shock and awe’ stomach cramps. Can I ever have a day, that for most people is just a mediocre ‘ok day?’ My body and mind is on fire!  The feel of air on my skin is like hot tar being poured on me. My back feels like I was impaled with something sharp. My muscles all over my body feel like they have begun disintegrating. My jaw and teeth feel like they could fall in my lap at any moment. My body must be detoxing, but from what? It must’ve been something I did yesterday. But what did I do and where did we go if anywhere?”

Losing time for some people is nothing more than daydreaming, missing an exit on the interstate, or getting enthralled in a good book.  However, the term “losing time” for me and my family can have very scary and unique meanings from the average family. Everyone, at one time or another, forget your keys or something that you meant to take with you to the store. You suddenly remember, that it’s the list that you have made with what you needed. You go home, find the list where it was left, get back in the car, and head off to the store. No harm, no foul. You don’t qualify for a diagnosis because of it. As a former therapist said to me, “Welcome, to the Human Race!”

My first memory of losing any type of time was in the 8th grade.  While being in that closet, I went elsewhere. It seemed somewhat familiar but ‘safe.’ I don’t remember what the scene was or where I went, it just wasn’t in that closet. I seemed to be locked in a type of paradise.  Every once in a while I would hear, “Are you listening to me?!”

By the time I got to high school, I felt like I got a new start. I was now 20 lbs lighter even though I did it unhealthy.  I was excelling in the sports I was playing. I was dropping weight seemingly every day.  No behavior problems reported by teachers.  I was pushing my body passed its limits but I was ok or so I thought.  This was the first year that I actually remember ‘losing extensive time.’  What is the difference?  Well, instead of a few moments that we all lose naturally.  I had lost an entire week.  I knew that I had ballgames that week so, how did I not remember how I played? I was doing a lot of diet pills at the time. So, that was the answer.  I remember thinking, “It’s nice to be back. But, where was I?”

Skipping a few years, to when I was married to my now EX-husband.  There were times that I remember seeing his mouth move but not hearing or knowing what was said.  That was fine with me. I didn’t know why it was like that but I was completely ok.  There were also those times when I would hear his first loud venomous word and then I would slowly fade away.  I could see him hollering at me but not hear or feel any of it.  My cutting really took off in this relationship and I realized that the same mental and physical stuff happened then too.  I didn’t think anything about it but I knew that my thoughts that I had were very, loud and continuous. I couldn’t dare mention this to the narcissist. Everything that ever happened to me was a joke and made fun. I would just keep my comments quiet and assume all the blame which is what they want.  Feelings belonged somewhere, but on my sleeves… VERY UNSAFE.

Several years later, I meet Melody and other things begin to happen.  Why would this happen around her? I didn’t understand and she surely wouldn’t either.  I just played everything off like, “I did a lot of drugs and they fried me.”    I didn’t tell her about what seemed like separate conversations to myself in my brain.  Everyone, surely has “loud” thoughts.  Heck, I wasn’t even divorce yet.  This type of stuff sometimes happened when he hollered at me or I was cutting. Why with Melody when she was a ‘safe’ person?   I was still watching and waiting for her true colors to come out and hurt me.  In the 7 years that I’ve known and loved her, I have the opportunity to see her true colors every day and they are a beautiful rainbow.  She’s genuine and I think somehow I must’ve known that back then.  We were in graduate school together and taking the same classes. So, to be able to pay attention, I would have to play games on my phone while they were lecturing.  I explained this to my professors before hand and they completely understood.  We thought that we were dealing with a college ADD thing.  Mel still had to re- explain the lecture once we got home. Once I got it and was able to ‘feel’ the connection of the material, It’s locked away.  So, graduate school was a bit more difficult for me, but that makes me no less of a graduate.  I just had to do things a little differently for me to be able to comprehend the information.   Even back in elementary days, I remember crying because I couldn’t answer the questions about the story that we had just read. Trial and error is how we acclimated to our situation and we do the same thing now.

My physical symptoms have me very sick so I’ll continue tomorrow. NAMASTE!!

#thispuzzledlife

 

#Thispuzzledlife

Hello world!

I initially started blogging about 5 years ago.  I’m originally from the deep south in Petal, MS.  It’s exactly half way between Gulfport, MS and Jackson, MS and just across the bridge from Hattiesburg, MS.  Petal has a population around 11,000 now but growing up as a small child and teenager there were significantly less people.  Small town USA complete with the noisiness, conservative politics, religion, strong beliefs, great food, respect taught through the generations, southern hospitality, friendly neighbors who are loyal as family, resilient, head strong and loyalties within a “good ole’ boy network.”  No more loyalties than any other small town I’m sure.  But this “loyalty” hurt me and changed the course of my life forever.

Me and my wife completed Master’s degree in Couseling and then moved to Albuquerque, NM to begin our careers and start a family.  But as life would have it, Mental Illness began to effect our hopes and dreams one day at a time. A few years later I would be diagnosed correctly….finally…with Dissociaitve Identity Disorder.  We would eventually have two little boys that we adore and make you want to keep going with things get difficult.

puzzlepieces2

My writing is about the struggles of living as an individual and LGBT family with a parent with severe mental illness. The sometimes the humor of it all and the often heartbreaking reality of the effects of abuse and mental illness on the indivial and family unit as a whole will keep those that struggle from feeling that you live on an island.  And the families will see that you can love someone with a mental illness without becoming a prisoner to their behaviors.  And maybe you will also see that the struggle for us as your family memeber have more struggles then what we let on at times.

Anyway, enjoy the laughs and tears with our family as they support me while I search for the puzzle pieces of an abusive life.  I will say this…I don’t sugar coat anything.  Sometimes my blogs can be graphic but abuse isn’t pretty.  I’m in the process of healing so topics are frequently repeated and attitudes change from positive to dark.  Either way, this is MY life and MY therapeutic journey towards healing.  Hold on because this ride is bumpy.

Hit the “Follow” button and watch us grow. I don’t write every day because my functionality can change on a dime.  I cover many different topics related to abuse and mental illness.  This blog builds so read from the beginning and see Where we were. Where we are now. And where we are going.  Happy Reading!

#thispuzzledlife