alters

darnold1975

The Magnitude Of Waves

The Magnitude of Waves

“A successful man is one who can lay a firm foundation

with the bricks others have thrown at him”

– David Brinkley

My life in the last few years has become one of seclusion.  Not total seclusion at this particular time but if that became a necessity again it would be a very easy transition.  My brain already chaotic with chatter and confusion makes the simplest of tasks, in public and private, incredibly difficult.  Isolation is something that I struggle with as it is a comfort zone for me and my quirkiness.

We as a human species require some form of human interaction.  This also explains why so many inmates that are placed in segregation for periods of time begin to decompensate and seem to start to atrophy mentally almost immediately.  And although having only limited resources within a controlled prison environment inmates will become creatively destructive just to pass the time in order to fight an internal collapse.  And there are others who become creative in a way to establish their own form of “hustle” in order to survive in these institutions.

I’ve been asked several times by different people, “What do you do in there all day?”  I have, in a sense, simplified (which is  sometimes debatable) my life by leaning on the things I enjoy such as:  listening and singing copious amounts of music; watching documentaries and reality shows; spend hours of researching different topics; reading scholarly journal articles; working on the inevitable therapeutic assignments; and writing so that my story and truth can finally be told.  I also spend a lot of time locked away in a sometimes dangerous playground….the one between my ears.  I, like other inmates of society, have a lot of time to think about my past, present and uncertain future for hours on end.  I also get to know more every day about the inner workings of internal “teammates.”

waves

In the wake of therapeutic activities guided by “coach” and the recent  agreement of a very reluctant teen to be more compassionate with other members others are finally being heard.   The issues of not being heard by others both internally and externally seems to be the general consensus throughout my system for many years.  While these “parts” of me feel separate they are still all a part of me.  Does this mean that I also have not been willing to listen to my parts who are still suffering?  Am I also negating my own thoughts and feelings that were convincingly told to me that they were wrong no matter what?  Maybe this is, in fact, a harsh reality that has been brought into the “tough love” of realization.

After lessons recently learned in therapy, I have been trying to listen intently to how each alter is doing in all facets of existence.  I always knew that the crippling waves of just about any feelings were connected to these warriors.  Deciphering who they belong to has been challenging to say the least.  The very loud and vocal ones are not that difficult to distinguish certain connections.  The ones who have been silenced seldom divulge the truth for fear of retaliation internally and externally then and now.

When it came her turn to speak this young bride with a steady stream of tears and visible anxiety begins to reveal her feelings not HIS.  And soon the pressure could not be withheld and the levees were breached.  The level of grief and torment I realized I never knew existed within her.  Grieving was incredibly dangerous to acknowledge around him.  The insults, ridicule and humiliation for her true feelings had to be buried to survive.  But that’s all they were…buried not eradicated.  Years of sitting in an ever expanding vat of deadly emotion being forced into submission was now boiling like hot lava.  Waves of heavy, depressive emotion crawl into my guts and soul like the waves from the ocean from a very angry Hurricane Katrina.  They make their way onto the land ripping precious items back out to the sea despite internal resistance.  And like the destruction of these powerful forces of nature after the waves subside, you never see specifically the precious items of “self” that are missing.  All you see is the destruction that  of the  once vile ways that humans can treat others and leave them for dead.

I look over to the still rebellious but somewhat compliant teen just to notice her reaction.  Her scowls, growling and ever growing distaste for the situation was evident.  I look at her with some slight form of confidence and fear to say, “Coach gave you direction for what you need to do.  And now I WILL tell and not keep it secret.”  I look back at the young bride and the first time with true compassion I tell her, “It’s time that you’re finally heard.  Coach is anxiously awaiting your story.  Use your voice.  Don’t fear her.  Help is here.”  She being one with eating and body image issues I thought I would again try to lighten the mood.  I tell her, “Don’t fear the tears because you’re losing water weight when you cry.”  The destruction has been left but the rebuilding has started.

#thispuzzledlife

darnold1975

Advocates

Advocates

“Momma D, Why Do You Act Weird Sometimes?”

–Marshall Landrum-Arnold

The above is a question from our 6-year-old son.  The one thing I’ve learned about having this disorder is that no matter how hard I try to be “normal” I’m not.  The term “normal” is truly a subjective term that only fits perfectly on a washing machine.  Maybe I should say socially acceptable.  Regardless of what term I or anyone else tries to use the fact of the matter is that a lot of times I’m just not.  I have awaken many times to face the day with the attitude that I don’t nor will I ever have some type of mental disorder.  No sooner than the words roll off my tongue do I realize that I, in fact, have a mental disorder that can, at times, be completely debilitating.

I have come across many people who are of the opinion that “you just need to look at things differently” “you just have to think more positive” or “the past is in the past.”  I would instantly become infuriated even if the emotions didn’t reach my face.  A lot of statements are not malicious but rather out of ignorance.  Also, with trauma you just can’t “unbreak the plate.”  There is no possible way to just pretend that things didn’t happen…..THEY DID HAPPEN.  Everyone around you can be in total denial with their heads in the sand but the fact is that the images, words, feelings, body memories and mental torture goes everywhere I go all day long every single day.

Having a diagnosis like Dissociative Identity Disorder is not one that’s easily hidden from those closest to you.  When you have a spouse and children the inevitable will surely happen.  I’m talking about sometimes very rapid mood changes, alters emerging, rages, voiced self-hatred, noticeable self-harming behaviors, etc.  I realize that not everyone with this disorder operates the same as “systems” are as unique as fingerprints.  But for our little family we have chosen to educate our children as things happen.  Please understand that I’m not talking about telling our children my trauma history in detail.  We educate them on an age appropriate level.

We’ve educated and continue to educate our children about being from an LGBT family and how families look differently.  I have found that children are pretty satisfied once their questions are answered even with the most simplest of answers.  Throw the taboo topic of mental illness that most cringe to discuss in there and more questions emerge.

As a child, I credit my parents for exposing me to individuals with mental retardation and other disabilities.  Maybe this is why I don’t shy away from anyone with a disability.  I truly accept anyone as they are regardless of disability or difference.  Within our little family there’s no denying “difference.”  Marshall has been noticing for a couple of years now that I’m just that….Different.  He might not know the name for what’s happening when alters come out or when I become completely non-functional.  But make no mistake that he knows something’s wrong.

One of my biggest hurdles everyday is anxiety.  I can range from just a little uncomfortable to vomiting and diarrhea.  So, while living in Albuquerque I found that the gentle vibration of a moving vehicle combined with my favorite music can soothe the soul.

survival

 One day Marshall was riding with me which was always our special time to sing together and get a snack from somewhere without little brother.  He said, “Momma D, can I ask you something?” Me thinking this would be a typical little boy question similar to “Why do birds poop when they fly?”  But what he asked me for the first time caught me by surprise.  He said, “Momma why do you freak out and act weird sometimes?”  Instead of further fueling the shame of the having the disorder by saying, “Don’t ask questions like that.”  I simply asked him for clarification by saying, “Baby what exactly are you talking about?”  He said, “Like when loud motorcycles drive passed you and other loud noises scare you. Or when we are playing with my toys and you act like a kid.”  I told him, remember age appropriate, “Son when momma was younger she had some people that scared me really, really bad.” He said, “Did they like jump out and scare you?”  Not being too far off the mark in some instances I said, “Well sort of but mommy just got really scared and things still scare me a lot.”  He said, “And that’s why you freak out sometimes and get scared by loud noises?”  I said, “Yes, baby.”  He then asked, “Is that why sometimes you have to go to the hospital?  Like to help you not be so sad and mad?”  I thought to myself, “Why is he so perceptive?”  But I replied, “Yes, baby.”  He said, “Is that why you see people like Tina so they can help you not be so mad and sad?”  Proud to answer the questions of such a smart little boy I said, “Yes baby.”  His instant reply was, “Ok can we go to Toys R’ Us and not tell momma Mel?”  I chuckled as I said, “Heck yea!”  You will be entertained to know that all teenage and child alters were shouting with excitement when I said that.  When we arrived at the store he said to me what Mel has told me many times prior to going into a very overstimulating situation like a toy store, “Momma D, I will sit in the buggy and will put my hands on your hands to help keep you to the ground. (He was talking about staying grounded.) Don’t worry, it’s just a store and people and they won’t hurt you.”

These were some simple situations with some very powerful answers and outcomes.  And how you choose to educate or not educate your family about mental illness is your business.  Some might disagree with how we choose to do this with our children.  My answer has always been, “That’s the beauty of living in a free nation.  We don’t have to agree.”  But what a disservice it would be for this little boy if we weren’t honest with him.  I wasn’t inappropriate in any manner.  I was simply answering something that had been bothering him in a very age appropriate manner. I didn’t get into specifics about my trauma as at age 6 he is not mature enough to handle that.

The fact is this…..I’m one of his mommas and he and Copeland both love and miss me dearly.  He knows I’m different and yet without judgment he still loves me unconditionally.  Being away from Mel and the kids living in Texas and working with someone determined to help me is extremely difficult.  Take away all of my mental issues and what’s still left is a momma and a wife who misses her family dearly.  Things I’m missing being away from them I’ll never be able to get back.  Through necessity we are raising our family to be….ADVOCATES.

“A lot of people are living with mental illness around them.

Either you love one or you are one.”

–Mark Ruffalo

#thispuzzledlife

darnold1975

My Own Prison

My Own Prison

“To be able to break free from prison, one must know how they became imprisoned to begin with.”

—Anonymous

One of the things I’ve learned through the process of trying to live with this disorder are “triggers.”  Triggers are anything that can set off a memory that can take someone back in time to when the original trauma.  It’s like being in an instant time machine.  A trigger can be anything related to sight, sound, smell or taste.  These seemingly innocent moments to most people can set off internal and external eruptions in others.  This can often lead to strong and immediate reactions by those they affect.

I don’t have all of the answers about these little disruptive beasts yet.  And no matter how much I want all of the answers immediately I have to always keep in mind that it has taken me 42 years to become this dysfunctional and repair work does not happen overnight.  I guess to be cliché this process is “a marathon not a sprint.”

The ultimate goal of therapy is to be able to acknowledge these events but not let them overtake you.  Before this can happen specific triggers must first be identified and the event can be processed.  Recently, I did a therapeutic assignment related to this very thing.  One of my personal and very strong triggers is the feelings of being trapped either physically and/or emotionally.  This is one of the biggest reasons why I don’t have much success in lockdown psychiatric units and inpatient programs.  My ultimate goal is ALWAYS TO GET OUT!

confinement

While doing this assignment I looked specifically at individual traumatic situations where these fears were imposed and I was instantly blown away.  I had no idea how “trapped” I have felt the majority of my life.  When I began breaking down the different time periods for these situations things have begun to make a little more sense.  I felt myself becoming nauseous and beginning to float away while looking deep inside for these answers.  Here are just a few that were identified.

  1. Being molested by people older, at the young age of 5 years old, and not feeling powerful enough to make it stop while also holding these secrets left me feeling trapped.  These abusers were also our neighbors and were always around me because of how close our two families were even at church.
  2. As a teenager, I was trapped as some sick form of sport and/or punishment in a closet where I was verbally abused, humiliated and tormented on a daily basis.  I was like a dog that was chained to a tree and forced into aggression.  I was often sent to the office to face false accusations by the administration where no verdict other than GUILTY was ever considered.  I always felt as though no one would listen and that no one cared what was happening.  The times I reported that this teacher was “being mean” ultimately got back to her and the abuse intensified.  I was often belittled and embarrassed in front of my classmates.  The reality of that situation was that there was no way out….period.  That was the first time that I ever had any type of suicidal feelings of any kind.  Her words still burn deeply as the day that were first said.
  3. Anyone who has experienced domestic violence, in any form, knows the fear and panic of wanting and needing to leave but terrified of the repercussions.  I was also followed and constantly watched.  The mental anguish from his degrading comments and vile actions left me feeling completely lost, broken and fearing my own decisions.  No matter what decision I made it would always be wrong.  He had me convinced that I would never be able to do anything without him because I was too dumb.  The most powerful statement he ever made to me was “You’ll never get rid of me.” And so far this statement has not been untrue.  I was trapped.

trapped

These are just a few examples of feeling trapped.  And now….I’m trapped by all of the memories, images and statements that were made by those individuals.  I still can’t seem to break free from the abuse as it torments me daily.  The paranoia of being watched, followed or being attacked has me questioning the intensions of others.  Instead of waiting to see if the paranoia holds validity, I protect myself by being very verbally aggressive to innocent people who just happen to making seemingly non-malicious comments or glances.  Essentially, I’m in a perpetual state of being triggered.  Waiting for a happy ending that never happened during my trauma and today only fuels my impulsiveness in this area.

Being around too many people with too much stimulation sends me and my “protectors” into overdrive and into a state of fight or flight.  It seems to overload my brain, thus, making me think I’m in danger.  The anxiety becomes so uncomfortable that the only thing I can do is just “get away” in whatever form that might take.  I seem to tame this only by being alone and secluded from most people including those I dearly love.  I have become a prisoner of myself and life.  The dichotomous view of life leaves me imprisoned by my fears within four walls of my bedroom.  Outside of these walls I’m simply prepared for battle in one way or another by indiscriminately striking out at anything that moves. The situation that comforts me is also the walls of my self-created but protective prison.  My abuse was very real and still is. And I’m a work in progress.

#thispuzzledlife

darnold1975

Tears That Still Drip Sore

Tears That Still Drip Sore

“A pattern of raised crisscrossed scars, some old and white, others more

recent in various shades of pink and red. Exposing the stress

of the structure underneath its paint”
― Amy Efaw, After

Sometimes the material and subsequent titles for these blog posts come from out of nowhere.  I begin writing and then sometimes I just watch as the words are typed. I’m sort of multi-talented like that at times.  Stand in the way of children and teens while they’re attempting to have their input on a blog and well…..it’s just not worth the frustration.  Anyway, this is a topic that, literally, continues to resurface.  As an angry teen, I thought that I had found something that could help me somewhat contain the intense aggression that seemed to be so foreign and scary.  And just like the drug that seems to come along a the perfect weak moment to sweep you off your feet and directly into a marriage with it so, did my razors.

Since the day we met I haven’t found another chemical or behavior that has launched such a false sense of safety and control for me.  Yes I have seemingly have a continuous love affair with eating disorders.  Self-harm just seems to be in a category of its own that nothing else can touch.  I had no idea what this behavior was called but I knew what it did for me.  IT just seemed to let the air out of the balloon.  Somehow I just seemed to find balance if for that brief moment. Then the shaming comments made by teachers, administration, doctors, friends and family seemed to little bit of sparkle that I had told no one  about  began to disappear.  Some of the worst shaming I’ve ever faced is by those in the medical community.  After only my second trip to the local emergency room, as a minor, it would be my last.  It was a horrible experience with an uneducated and very judgmental doctor.  So even today when I should go to the emergency room, it would take the entire Texas National Guard or me being unconscious to get me there.  This is why a lot of us have suffered in the dark.  The freedom to openly discuss this topic has never been well received.

child window

Where the scars are embarrassing at times because of the questions asked and assumptions made.  In the words of Plumb’s song CUT, “…the only anesthetic that helps me feel anything kills inside.”  This behavior is one that was typical of some type of anger or depression.  However, now, I can have this compulsion even on “ok” days.  The types of emotions that seem to trigger these thoughts are all encompassing.  Even in graduate school between classes I would have to go to my vehicle to be able to cut to make my brain settle enough to go to another class.

I begin to feel a very strong paranoia followed by a tsunami of emotion in my gut about something I can’t identify.  You try to do what they say to but my feel my face get hot and the voices and sounds begin disappear.  I use to see this religiosity of the behavior carried out many times without the fear of feeling the pain.  Now, I see and feel nothing.  She uses it not as a soothing tool but rather her “cat-o-nine-tails” as her way to enforce her discipline.  And this is her way to hold everyone inside hostage from speaking truth.  Her raw power and emotion have kept us safe for many years.  Her extreme paranoia and impulsiveness continues to wreak havoc and destroy even with good intentions.

solitary

She doesn’t understand how to view the world as an adult.  She continues to live life and view the world like the one she was created in….FEAR AND CHAOS.  Don’t hurt her because she’s incredibly sensitive.  But she’ll be the very one to push you as far away as you’ll let her just so she doesn’t have to feel the pain of losing someone else that she’s deeply connected.  To be that angry every day takes a lot of energy.  I’m scared of her every moment of every day.  I don’t take the comedic moments for granted as I completely understand Dr. Jekyll and Mr. Hyde and her capabilities.

The next episode I’m able to open my eyes and continue breathing once again.  As with any other addiction though, there’s always a bullet with our names on it that we continue to dodge until we can’t.  And then….a new statistic emerges for various types of studies done on mental illness.  It was done out of love and compassion she thinks.  And into the arms of love and compassion she can finally retreat.  No more scars.  .

And at the very last second the hands and shoulders of compassion are extended.  This war torn mind and body slowly begins to trust enough to step off into some pain.  Instead of the vision of  hatred thought by many, there’s a kid silently crying all alone desperately wanting  help. But striking out at anything that moves be it good or bad. SILENCE HURTS.

#thispuzzledlife

darnold1975

And Then I Saw Her…..

And Then I Saw Her….

“I instinctually began as a wee life longing for the warmth and protection of my birth mother to survive. The umbilical cord was physically severed, but the esoteric spiritual connection that bound me to my birth mother was heightened by our unnatural separation.”

—Unknown

I clicked as I randomly do on Facebook looking for my biological brothers since losing contact with them a several years ago.  Yay!!! I found two of them.  I begin looking through their pictures seeing what their lives had evolved.  We all looked older for sure.  We had mostly more gray hair, added weight and children.  I begin looking for my only full biological brother throughout the pictures and friends lists.  I finally saw a picture of him and instantly felt my heart and stomach become full of emotion.  Oh my God Dana quit being so sappy! I hear very suddenly from very close to me.  I choked it back thinking…ok that was childish.  And then I saw her……

I saw pictures of my birth mom and I froze.  My heart seemed to just stop and for a moment nothing existed not even me.  I felt a wave of hot and cold go from head to toe.  I felt nausea and  a sudden dump of bubbling acid in my stomach.  And soon the mixture of emotions began to drip faster and faster out of my eyes until now there was a continual stream of tears that followed my jaw line down to my chin before quickly dripping into my lap.  I didn’t think I felt anything but someone did and it was incredibly painful.  The children that long for her also fear her.  The fear that again rejection and subsequent separation would be felt in its entirety.

The more I looked through the pictures the more I was getting a good look at myself only 16 years my senior.  I crumbled seeing parts of my identity by way of genetic code form a picture similar to myself.  I wanted to run to her.  I wanted to reach out and say, “Mom it’s me, Dana!  Meet my family.  Love me PLEASE!”  No sooner did the thought happen that another quickly followed, “Run she’s dangerous!! No I want to stay!  Don’t take me away! I want to stay!”  My heart breaks as the little baby who’s incessant crying ceases, if only for seconds, until the pain of the separation is felt once more at full force.

My chest instantly feels with pain and I fear that I might vomit.  My brain is on complete overdrive.  I begin to panic.  I needed to physically go.  I didn’t know where. I just had to go.  My back needing another surgery and in much pain made it impossible to get up and anywhere.  Internal conversations were not exactly conversations.  They were orders being barked in order to keep everyone safe.  WHAT THE HELL IS THIS???!!!!  GET THAT BABY AND RUN! LOCK THIS SHIT DOWN NOW! GET THOSE KIDS TO SAFETY!!! Even in her rage against us all her voice began to shake.

There they were almost on cue.  The faces, the voices, the monsters had come back to say, “I wouldn’t have kept you either!  No wonder she didn’t want you.  She knew you were crazy that’s why.  You’re trash and always will be.  Just think, Dana, she was the one that gave you away.“  Even the angry one was for once speechless.  Tears began to slowly fall from her angry and very deeply hurt eyes as well.

The confusion of how I think I must feel versus how I actually feel has become an all out war.  There are no answers only guilt and shame.  The fear I had been feeling about something bad going to happen was now in my face.  And like a wall of water I slowly begin to drown in my own red tears.  I begin fiercely dog paddling to stay afloat as I do most times.  But this pain is unlike any other.  This colicky adult child hungers and cries for the very thing that can soothe just out of reach.  As I dry tears that run red, I also witness those of a child who can’t be comforted.  And I’m quickly reminded…Remember the last time you cried about this you were made fun of and weren’t heard.  We all got hurt.  

“A baby is born with a need to be loved—and never outgrows it.”

—Unknown

#thispuzzledlife

darnold1975

The Angry Birds

The Angry Birds

November 30, 2016

“A good laugh overcomes more difficulties and dissipates more dark clouds than any other one thing.” – Laura Ingalls Wilder

Since I’m having to play ‘catch up’ on what a life living with Dissociative Identity Disorder has been like for the last year or so, I thought I would introduce you to some comical friends of mine….The Angry Birds.  If you’ve ever followed my blog you know that living with DID has some very funny moments among so many difficult ones.  When I have  an opportunity to belly laugh I usually will take it wherever and whenever I can.  And by the way…..Laura Ingalls Wilder and I have been BFF’s since childhood.

One of the many perks of having DID is the overwhelming anxiety that permeates every pore and cell in my body.  While having social anxiety and not wanting to leave the house is very doable. There’s also the feeling of needing to ‘get away.’  This does present quite a dilemma at times.  Writing is a great therapeutic tool for really anyone if it’s your ‘cup of tea.’  It has never been one for me until I started writing this blog.  The term “journaling” has always had a negative connotation associated with it.  I promise every time it’s been suggested I look at the person like my oldest son does me when I tell him that chicken nuggets, candy and boogers are not food groups. But the Angry Birds are definitely therapeutic in their own unique way for us as well.

As I’ve stated before, living in the state of New Mexico with a mental health diagnosis that carries so much stigma has given a whole new meaning to desert living.  Lack of resources calls for creative therapeutic tools such as this blog. Through no intention of my own we are beginning to have a real fascination for a group of birds that live in a city park.  The Angry Birds are not the ones watched on TV and the movies by many children.  But yes they do provide entertainment for this ‘system’ and to those passing by and possibly overhearing conversations between me and these birds

What started as another place for me to go and decompress, in times of need, is quickly becoming a place where lessons in therapy and life are happening.  I’ve always enjoyed animals because a connection with them has always felt safe.  People I fear. No I’m not a tree hugger. I just enjoy and respect the human/animal bond.

don't take no

The Angry Birds consist of a mixture of around 100 birds that include mostly waterfowl. Some of them I recognize and some I do not.  It’s pretty much duck, duck, goose for me.  I initially started going out to that area and feeding them bread at random times just for a change of environment.  Then it got incorporated into my morning schedule.  Each morning I would go out and spend a few minutes with these birds talking and thinking.  With this many birds at one time behavior issues about territory were bound to arise.  I always seemed to have one alpha goose that would keep all of the encroaching birds out of my personal space.  This bird is rewarded for its hard work and loyalty with a whole piece of bread to itself.  The first therapeutic pitfall with these birds are BOUNDARIES specifically there’s smashing over mine.  There was a lot of biting other birds butt feathers and uncalled for loud honking.  This I realized is what my ‘system’ looks and operates like at this time……Chaotic.

canadian

Soon these birds had grown to expect me to show up with their bread like I was a local drug dealer dropping off a stash.  I would drive up to the area and I would instantly see and hear flippers heading my way and the Canadian geese flying in.  In these early moments, I have definitely felt like Ace Ventura Pet Detective.  They all get that Zombie Eyed look about them while looking and walking towards me.  In this moment I feared for my lady bits until I realized that the bag of bread was hanging in that area.  Yes I did quickly move it.  Because of their territorial nature our very early conversations consisted of me trying to talk to the Canadian Geese about manners for waiting our turn. I would literally be hollering at them, “Be Loving!!!!” And at times I would throw flying saucers and baseballs made purely of wheat bread at them to help correct their behavior issue.  The feeding frenzy that would ensue is one that would have Jeff Corwin scratching his head.

mouthy

bread takers

One of my moments of arguing with one of the Angry Birds I’ve named Mouthy who is a really, loud mouth grey goose, started hissing and honking at me one day.  He was biting the other birds and starting to use offensive language with me so I did the only thing I could think to do in the moment….Honk back.  I looked up to see a mother and her small child laughing at this conversation.  It was a very immature moment but Mouthy settled down and was grateful for his bread.  I told him, “Mouthy you can’t just go around biting and bullying when you’re in a bad mood.” BAM!!! There was a therapeutic revelation.  Simple revelation but still a revelation nonetheless. I began to make a connection to my past about this scene of me and these birds.   It took me several minutes to be able to convey what this moment was like. ” I know, I know” a certain little insider said.  It’s like being in Mr. Popper’s Penguins the movie.   I had to chuckle and I said, “Well little one, I guess you’re right.”  Granted there was a lot of biting, very unnecessary and over stimulating honking by all of them and I simply said, “Ya’ll are some angry ass birds.”  And that’s how the therapeutic Angry Birds have come to be.

Disclaimer:  No birds or waterfowl were ever harmed before, during or after any visit.

#Thispuzzledlife

darnold1975

The Chaos Of Life

The Chaos of Life

8.2.15

“When we are no longer able to change a situation – we are challenged to change ourselves.”

Viktor E. Frankl

The last few months have been nothing less than total chaos for our ‘internal’ and external families.  Life can sometimes just knock the wind out of you both physically and mentally.  From the very ‘nerve racking’ entry into the world by our new preemie son Copeland to our latest adventure back south and so many things in between, Mel and I both feel like we are being pecked by a duck.  Don’t think for a minute that we haven’t taken notice about missing one of the best therapeutic tools we’ve ever used…….writing.

With Mel’s pregnancy being much less than desirable, Copeland’s health issues, national news, loss of friends both physically and emotionally, the return to the harsh south, my ‘internal’ system has stayed in a seemingly steady uproar about many different things.  Just trying to keep our relationship together the last couple of months has been a struggle at times.  However, there’s one thing we both agree on….the fact that DID doesn’t’ go away and neither does life.  So, we dig deep like we have many times and try to find a way to weather the storms of life together as a couple by ‘taking the bull by horns’ and bracing ourselves until it’s over.  The complexity of life, right now, is nowhere close to slowing down.  There’s a lot that needs to be said and feelings that need to be voiced in order to try and regain some type of balance.

Like I’ve said many times before, we live a very puzzling life that has the ability to leave us both shaking and scratching our heads and wondering what could possibly happen next.  My priorities have been to attempt to ‘roll with the punches’ and, unfortunately, that’s included not writing for a little while.  This morning, I stagger to my laptop, not induced by a chemical but rather just exhausted from the daily and very familiar feel of a high level of stress.

soulsofsuffering

Throughout the chaos, Mel and I have been able to put more pieces of the puzzle together.  She has a very close and tight bond with my alters which makes it much easier for communication.  Now some might think that since she’s my wife and we’ve been together for a number of years that having a relationship with my alters, since they are, in fact, parts of myself, would be a given. Trust me when I say one thing…nothing with alters are a given.  Relationships with alters are a completely different beast than what most people would assume.  One thing that must be kept in mind is that, alters formed as a result of a traumatic situation.  And in my particular system, a trust bond was not just broken but completely violated in one way or another.  So, even people who I’ve known for years betrayed that trust in sometimes vile ways.  Therefore, all we’ve been conditioned to understand is that people are evil until proven otherwise and that has no time limit.

DID, as a disorder, is a difficult disorder for both the client and family members.  Throw a big ole’ helping of ‘LIFE’ month after month and the difficulty and further complexity of the disorder will raise its ugly head with triggered alters.  Mel and I have and will continue to lean on our therapists both individual and couple for strength and guidance as we have done for several years now.  We will also continue to do the best to support each other and our children even though I can resemble an angry and bitchy Chihuahua.  And ‘we’, as a system, will continue to seek for the answers through healing in any way possible so that we might all function one day like a well oiled machine in order to be able to do the work we were called to do by helping others.

For now, it’s about  just trying to catch our breath and gather our footing again.  Lots of tears have been shed lately and I’ll take you inside the last few months with upcoming blog posts. And once again, I begin to feel better even if I was coerced to write reluctantly this morning by some certain ‘insiders’.

#Thispuzzledlife

darnold1975

Mel’s Corner: Illusions of Control

Mel’s Corner: Illusions of Control

05/11/2015

“Peace: It does not mean to be in a place where there is no trouble, noise, or hard work.  It means to be in the midst of those things and still be calm in your heart.”

– Lady GaGa

Having a spouse with dissociative identity disorder can be quite hard.   Often times events can be quite hurtful and you will have full memory while the spouse has none.  That is a hard thing to accept.  How can a person say or do something then have no memory of it? And then treat you like nothing ever happened?  I started to question my own reality.  Maybe it didn’t happen, maybe I’m wrong, and maybe I’m the one with the problem.

The way my wife’s system works is when she becomes too overwhelmed she will have alters who will “pop out” to take over a situation.  Depending on what alter comes out, depends on how the situation is handled.  Also alters can tend to just come out if they feel like they need to take control or if they feel she is not doing an adequate job of taking care of the situation.  Often times a protector comes out.  Different systems have different alters who are protectors.  My wife just happens to have a more aggressive, angry protector because that’s what worked for her for so many years.  What that means for me is I tend to get the back lash of situations a lot.

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 I’ve found that in order for me to survive those situations where things become overwhelming for me emotionally, I have to remind myself that I’m talking to her protective alter, and this alter was developed to help protect the system.  Although it’s not ok to have behavior this way, often times there is nothing I can do about it but ride out the storm.  During these times I’ve learned that the serenity prayer has brought me much comfort.  I usually like to break it down to the situation.

 God, grant me the serenity to accept the things I cannot change.  I can’t change the fact my wife will always have DID.  I can’t change the alters that she has in her system.  Sometimes even the situation is beyond my control.

The courage to change the things I can.  I can change how I react, what I say and how I approach her and the situation.  This one is harder than it sounds, although I can change my reaction, often times emotion has taken over and I have to pause to change my reaction.  This one takes much practice, and even today I become overwhelmed and my reptilian brain (fight or flight) takes over.  I find that stepping away from the situation when I can brings me more clarity.  I also find my therapy background tends to come out during this period as well. Many times it’s “safe” thing for me to just switch over and treat it as a therapeutic process thus protecting my feelings.  There are days when I just loose it and break down.  Those days I do get angry with God for even having a disease like DID.  Although it served its purpose when the abuse happened, it’s no longer needed and it’s something that never will go away.  There are times I need a friend to tell me that everything is going to be ok.  It’s during these times I have to look beyond myself and know that I need strength from a power greater than myself.  Somewhere deep inside I know everything will be ok, it always is, but for some reason I just can’t access that part of myself.  Hearing it from someone else gives me that spark of hope I needed to get through the situation and continue to believe that all will turn out ok.

And the wisdom to know the difference.   Wisdom only comes with time.  Only after touching the stove a few times do you learn that it’s actually hot.  Wisdom has taught me when to challenge an alter’s thinking and when to back away and let the system reset.  Time has also taught me to pick up on subtle cues that tell me which alter is out.  Some alters take great joy in trying to fool me into thinking they are someone else in the system and I’m sure they succeed many times in fooling me.  There are sometimes I even question myself as to whom I am talking to.

There is a longer version on the serenity prayer that adds these additional lines:

Living one day at a time;

Enjoying one moment at a time;

Accepting hardships as the pathway to peace;

Taking, as He did, this sinful world

As it is, not as I would have it;

Trusting that He will make all things right

If I surrender to His Will;

So that I may be reasonably happy in this life

And supremely happy with Him

Forever and ever in the next.

Amen

 

The part I find most helpful in the addition is “living one day at a time”.  There have been times that a day is too overwhelming and I have to live a minute or hour at a time.  Making it through those small amounts of time get me through the day and then eventually through the situation.  There are periods that can be months long of chaos.  Times where an alter is out of control for days.  Thankfully in our journey those long periods of chaos are not as frequent as they have been.

 

“I’m sorry, Gemma. But we can’t live in the light all of the time. You have to take whatever light you can hold into the dark with you.” ~ Libba Bray, A Great and Terrible Beauty

I believe there are many situations in life we look back on and think, that wasn’t as bad as it felt in the moment. We made it through that situation and will make it through this one.  Pain is relative.  For example if I’m in physical pain, the worst possible pain I’ve experienced (a 10 on the scale), is childbirth.  For me that’s all I can compare it to.  When I was a child it would have probably been vaccinations would have been my 10.  Looking on that today, getting a shot is nowhere near the pain of childbirth, so pain is relative to what we know.  I’ve had people tell me that they don’t know how I do it every day that I have to be a strong person.  While that might be true, this is my normal.  I wouldn’t know what to do if my life wasn’t like this.  Now could I survive under constant stress, pressure and turmoil, no.  That’s why I’m glad that the chaos has breaks, even if they are short breaks, it allows me to catch my breath to go through the next wave without drowning.  I think most people don’t know what they could do because they might not have been faced with the situation.    I think this from the promises listed in the Big Book of AA sums it up.   ” We will not regret the past nor wish to shut the door on it.”  We have to learn from the past, or else we are destined to repeat it.  Not learning, we react the same way each time and we will get the same outcome, but if we learn and grow then we move through that situation with a new perspective.

#Thispuzzledlife

darnold1975

It’s Pow Wow Time: The Gathering of the Internal Nations

It’s Pow Wow Time: The Gathering of the Internal Nations

4.18.15

“Humankind has not woven the web of life. We are but one thread within it. Whatever we do to the web, we do to ourselves. All things are bound together. All things connect.”

— Chief Seattle, 1854

To many people a “pow wow” is just a cool production of Native American individuals dancing.  However, I must admit that I’ve always been drawn to the culture for much different reasons.  Initially, I was attracted to the dress and dance, as well as, traditional and cultural newness that I had never known.  I always knew that the attraction that was much deeper an even a spiritual attraction to these beautiful people.

You have to understand that having been adopted and then hearing stories of my biological heritage hearsay is all I have to go on.  For whatever the reasons I’m connected spiritually to the Native American culture.  When I met my biological family I was first told that we all had native heritage going many generations back.  It doesn’t take long to look at me and realize that there’s nothing 100% Native American about me.  I like to consider myself more like a casserole.  If you’re not from the South or don’t understand the term, Google ‘casserole’.

For years, I’ve tried to understand why I have such a strong attraction to not only the culture but more specifically pow wows.  The Gathering of Nations Annual Pow Wow in Albuquerque, NM each year has since helped me come to several revelations.  This particular pow wow is the largest in North America and is just as it says…..The Gathering of All the Nations.  Not just one particular tribe such as Navajo or Apache but all nations of tribes are welcomed to attend.  This pow wow also represents the carrying out of traditional dances and ceremonies which include dances of elders with children.  The bright colors in the regalia, not costumes or outfits, are more modernized but beautiful nonetheless. The pow wow generally is held in a coliseum venue and the four directions: North, South, East and West are blessed by an eagle which is considered sacred.  The meaning of the Eagle symbol was to signify courage, wisdom and strength and its purpose was as the messenger to the Creator. The eagle was believed to carry prayers to the Great Spirit in the Spirit World and also had a special connection with visions.

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One general truth that threads throughout the Native American spiritual beliefs is the belief of Mother Earth.  The Native Americans felt that the earth was our mother, the sky our father, and all things were interconnected.  The many Creation myths of the Native American stress the mutuality and interdependence between people and other forms of life.  There is mutual respectfulness required when interacting with trees, birds, and plants and also natural forces such as the wind and the rain. Their creation stories empathize that Creation did not just happen a million years ago and end there, but that the Spirit that first infused the world is still with us now and can be experienced as “immanence”, the spirit which imbues all things.

To many Native American tribes the Native drum contains thunder and lightning, and when it is beaten it helps to get the creators attention and it also helps contact the spirits of the Native American forefathers.  There are those native peoples who also believe that the drum is representative of the

heartbeat of mother earth.  Whatever the reasons for the traditions, which I’m still discovering, put it all together and the result can make the hair stand on the back of my neck and arms while bringing me to tears.

One if not the most important part of the whole pow wow is Grand Entry.  This is where all of the dancers in each category are led out by a veteran guard and in front of them are the Elders, the most sacred.  It’s a symbolism and feeling of being that can’t be written in words.  Their spirituality and religion I totally respect. And yes there are certain ethics that must be upheld to remain respectful of traditions.

Outside the venue is a trader’s market that has vendors that alone could keep you busy all day long.  Food vendors with Indian tacos, buffalo burgers, fry bread and roasted corn thoughts are dancing in my head.  But the magic is in the environment by watching dancers and drummers carry out traditions of their ancestors.  The coliseum is bursting at the seams with tradition and they’re free to do it without any consequences from the government.  All while lightly dusted with the smell of sage and sweet grass.

Not being able to go this year is like a void and let me explain why.  The beautiful Grand Entry instantly connects me emotionally and spiritually with my own ancestors.  One time every year I can feel the level of comfort that cannot be felt at any other time.  The drumming is a connection to my birth mom’s heartbeat that I long to hear and be a part of but never will.  This is my comfort like I was wanted by her.  Once again, total comfort.  Like the safe feeling I get being around my brother Levi, this feeling is magnified 100 x when I connect with the protection of my ancestors and those who have crossed over.

This obviously is not everything that fully encapsulates all of the spirituality and religion of the Native Americans.  This is how it helps me regain my own balance and peace in a world of utter internal and external chaos.  My internal ‘system’ seems to gather and are all peaceful and comforted just for one weekend that we all like to call “The Gathering of the Internal Nations.

#Thispuzzledlife

darnold1975

It’s Not Easy Being Green

“It’s not easy being green”

3.18.15

“If we could see the miracle of a single flower clearly, our whole life would change.”
– Buddha

The intention when talking about the controversial topic of medical cannabis is not to attempt at changing your personal views.  It’s simply to let you see how it has affected me personally since this blog is about my journey with DID.  Let me interject by saying that I will speak more than once on a particular topic and possibly say some of the same things. Ignore that and keep reading.  You have to understand that every day for me is like the movie Groundhog Day. Now back to our cannabis topic…..

One thing I learned about living in a ‘melting pot’ of a city like Albuquerque is that there are many different views  and many of them very liberal on many different topics especially addiction and recovery.  I must say that being raised on a ’12-Step’ way of thinking in a ’12-Step’ recovery community, I was pretty rigid on my beliefs about addiction and recovery too.  I’m still a big believer in the 12 steps and have watched the miracle of recovery happen to many people including my own clients.

Living in a much larger city than what I was raised in has shown me what addiction looks like from the very bottom in most cases.  I have never seen a substance abuse problem of this magnitude ever in my life.  Most of my clientele have consisted of the homeless or methadone clinic clients.  Both clientele are difficult due to the unique challenges not only each individual face emotionally but just in basic needs that most take for granted.  I have a heart that has been touched and shot with cupid’s arrow for these guys I can assure you.

What I was soon faced with was something I would come to a cross roads about the many years of “recovery” beliefs.  I started hearing more and more about the Medical Marijuana Program (MMJ) here in New Mexico.  I was instantly almost angered by the idea as marijuana as a medication.  I thought to myself, “Isn’t the drug problem bad enough?”  However, the idea was talked about, both sides of the debate for several years now.  The clients that I was treating were clients with prescription pills, alcohol, heroin and most anything else for addiction.  Heroin, Alcohol and Methamphetamine being the main substances used out here but not presenting for treatment for marijuana addiction.  (I did not just say that it doesn’t or can’t happen.)  I did have to get used to the idea of this flower being referred to as a medication.  But, my clients claimed that their own quality of life was improving despite their addiction to the other substances.  The doctor overseeing the program was also very non-chalant about marijuana as well.

In the meantime,  my mental health issues had been hitting the skids for a while and were now becoming ever more present in everyday life.  I was not able to control or hide the “quirks” that I might would have at home.  I’ve always thought that with psychiatric medications and their side effects that I was actually better before I started taking them to begin with.  My psychiatrist later told us that it’s no wonder that none of the seemingly every psyche medication know to man that nothing really worked.  He explained that because of my diagnosis that some medications work on some alters where other medications make conditions for others worse.  Finally, someone that could answer at least one daily frustrating question.  I needed something to “tame the madness.”  I wasn’t sleeping at all.  I was aggressive most of the time.  I couldn’t stay grounded.  It was total chaos.  I’ve had times since then but thank God not as frequent by a long shot.

My psychiatrist said to me, “About all there’s left is medical marijuana.  Would you be willing to try it?”  My wife, knowing the addiction history I have, looked at me and had told him before but reiterated the fact that I am an addict.  He said, “You know, just try it. If it becomes a problem, we’ll get you off it and you don’t ever have to touch it again.”  A cold chill went throughout my body.  “Is this what I’m about to have to sacrifice to live?” I thought.  We took the signed paper and agreed to talk about it. I was torn inside.  I knew what I had been taught about addiction.   I also knew what I was being forced to live with and how my quality of life had plummeted.  Mel, as educated as she was in the area of addiction said, “At this point, I’ll try anything.”  We were both being drained of our lives while trying to be moms to an infant.  Something had to give.  I hadn’t smoked pot in many years and didn’t know one thing about medical marijuana and it’s medicinal properties.  My psychiatrist said it could help my PTSD and I knew that my options had come down to weed or a 9mm.

Exactly one month to the day that I sent the application off to the state I received my MMJ card.  I had begun reading about the different strains and about edibles and anything related to this plant.  When I got my card the fear had begun to fade and I was ready to get my life a little more livable and quality just like veterans with PTSD.  We were off to get my new green meds.

I get to a local dispensary, where I was greeted and asked not what my medical condition was but what symptoms I was having.  They begin educating me on the difference in indica, sativa, high CBD strains, edibles, tinctures, wax, shatter, crumble and what might work with my conditions.  I was very nervous about this new endeavor and scared about spinning out of control in the most miserable place in the world….ADDICTION.

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That first night I began to use my “new” medication was the first night I was able to see something at the end of the tunnel.  I couldn’t make it out, but I was intrigued enough to keep going.  I was finally able to sleep.  I was able to function during the day.  I was able to come off IBS medication.  My depression was being managed as well as my suicidal ideations, mania and urges to self-harm.  My relationship with my wife and son began to improve.  This is not a cure all plant by any means.  I still have to put in the elbow grease and deal with my trauma every day.  This sure makes the process much more tolerable.

Notice I didn’t say that it managed not eradicated thoughts and behaviors.  These behaviors still happen more than even Mel knows.  A lot of people might think that medical marijuana is just a reason people can give to get high.  The truth is that people take medications all the time for the wrong reasons and others take for the right reasons.  Also, medication high in CBD can also have very little psychoactive effects making it possible to work or go to school and function with no problem.  Medical marijuana patients are also often thought of as a Cheech & Chong type of brain cell lacking type of functioning. This isn’t true either.  Most people make comments out of ignorance and I just tend to ignore a lot of it.  Because, until you have a condition where conventional medication doesn’t work or has side effects that trump the original condition, you don’t know that level of desperation.

Most people ask how it’s prescribed? There are no labels that say, “Smoke one bowl in the morning and one bowl at night.  Finish off with Cheetos.” It’s very trial and error type of a process.   You will find your level of medication and if you overdo it, you won’t do it again.  Reason: because while you got too high the only question you could think of and not answer was, “Where did I leave my butt? And how do I reach the Cheetos?”

Our son has only heard marijuana being referred to as, “Momma D’s medicine.”  We don’t make a big deal about it and treat it like it is…..medicine.  I have been on the program for 2.5 years now and have never gotten out of control with my using or had any problems arising related to addiction.  I’m off all medications except a couple supplemental meds to help with areas in the body that the marijuana can’t.  The PTSD and DID haven’t disappear and probably never will. That doesn’t mean I have to either.

So, while this topic isn’t very popular with a lot of people back south, for this family, it’s important that not only us but other families benefit from this plant as well.  I’m a believer and advocate for this medication even as an addiction professional.  More importantly, my wife is a big advocate for a plant that has helped to save her wife’s life.

#Thispuzzledlife