shame

darnold1975

Out Of The Darkness, Into The Light

Out of the Darkness, Into the Light Part 1

1.1.2015

 “Dissociative parts of the personality are not actually separate identities or 
personalities in one body, but rather parts of a single individual that are not yet 
functioning together in a smooth, coordinated, flexible way. P14” 
― Suzette Boon

Since this begins a new year, I thought I would start it off with a ‘boom’ of reality from our world.  The topic that I will discuss is one that has such stigma attached to it that it’s has taken me months to muster the guts to discuss it.  This is a topic that hits home in the best/worst kind of way.  I’ve written for months now explaining some of the many symptoms that I experience mostly on a daily basis.  2014 was no doubt one of the most difficult for me, Mel and Marshall.  However, we as a family including my brother have shed tears together, as well as, have a lot of laughter. I have also smoked a ton of medical marijuana just to be able to live day to day.

I figured that a few months ago when I ‘came out’ out as a medical marijuana consumer, the thought crossed my mind that even though people can be cruel when it comes to mental illness, that since this blog is about MY healing I would ‘come out’ about my particular illness.  Many have read my blog since day one and for that I thank you.  I would also like to say that while reading this particular post that you just keep an open mind.  I’m not going to try to change your opinions or perceptions of mental illness.  I’m simply going to try and paint you a picture of mine to the best of my ability.

I have Dissociative Identity Disorder (DID).  Now for those with no therapy background, I can tell you that this is the same thing as Multiple Personality Disorder.  And now your opinions and thoughts begin to race. The only references that most of you have are those of the books/movies The Three Faces of Eve and Sybil.  Hollywood did a horrible job painting a picture of what those of us with this disorder look like and how we function on a daily basis.  Guess what?  I’m still the same Dana that you grew up with and loved.  I just have a world that has formed inside my brain that I didn’t realize everyone didn’t have.  I didn’t question it because to me that has been my normal.  Does this diagnosis make me ‘crazy?’ Should it make you fear for your family’s life if I happen to be around? Does this make you want to run as fast as you can in the opposite direction?  I can promise you that all of that energy would be wasted.

The symptoms that I have mentioned in other posts are all true and are a part of daily life for me.  I can’t tell you what it’s like living with a spouse with this particular disorder because only my wife can answer that.   I can tell you that it’s the most intricate puzzle I’ve ever had to try and figure out.  Having only had this correct diagnosis for almost 1.5 years we, as a family, have had to adjust.  We were already adjusting prior to Marshall being born.  His birth somehow set off a bomb inside my brain that retriggered everything that has happened to me.  Not his fault or mine, just our reality.

With both my wife and I having Master’s Degrees in Counseling, we were baffled when we never even considered this diagnosis as one that would fit.  Even in graduate school, because of limited time to study the Diagnostic and Statistical Manual of Mental Disorders we didn’t see the signs.  If you want to know why we had limited time to study on this manual, just take a look at it one time and you’ll see that it could take years to be taught thoroughly and it’s like computers changing all the time.  This diagnosis is still part of a great debate about whether or not it’s an actual diagnosis. I can’t answer for other families but for our family it’s very much a REAL diagnosis.

Some people have, in fact, asked Mel if she felt safe around me with Marshall.  The answer is always the same….yes.  There’s a lot of self education we’ve had to do because of the stigma within the mental health communities, as well as, those outside that community.  We don’t have all the answers yet to how and why and neither does science. I can tell you that the very slow journey of recovery from a lifetime of trauma actually began when the correct diagnosis was given.  Now I finally had answers to why sometimes I would answer myself and had what I thought were ‘loud’ thoughts.

To see me today, I’m the same goofy ass, class clown that was and still is friends with Levi Pierce.  I have scars on my arms.  It’s nothing to be afraid of, it’s how I survived.  You don’t have to be afraid to have your kids around me. I’m not going to cook them and eat them.

DID, as I’ll refer to the diagnosis from now on, is not near as scary as the picture that has been painted.  Does it have scary moments? Of course.  So does Bipolar, Major Depression, Schizophrenia and any other disorder.  This disorder requires a very patient and understanding spouse, as well as, professionals to be able to deal with some unpleasant moments.

The title of my blog “This Puzzled Life” is all about putting these scary pieces back together enough for me to be able to enjoy doing what I love…..helping people.  Once piece at a time is how I’ll learn to live with this disorder.  Trial and error is how it’s been for almost 1.5 years now with the correct diagnosis.  Prior to the correct diagnosis it was and still is at times a total nightmare.  Also, life continues regardless if I have a disorder or not.  Friends and family still pass away which can complicate things.  But, this too, is just the way life operates.

 With very patient but firm therapists, I’m finally being able to look very closely at some of the horrors.  The ‘alters’ or other personalities, if you so wish to call them, have their own story because they were created by the mind at very key times in the abusive history.  Alters together are called a ‘system.’  Each ‘alter’ has his/her own function within the system.   Each person with DID has a system much like that of a finger print.  Not every therapy works the same like a cookie cutter.  Do not be afraid to ask what you don’t understand.  Your fears come from what you don’t understand.

“DID is about SURVIVAL.  As more people begin to appreciate this concept, individuals with DID will start to feel less as though they have to hide the shame.”

–Anonymous

There are also no psychotropic meds that are specifically designed for this disorder.  This also explains why for the first 3 years of seeing a psychiatrist none of the meds worked for an extended period of time.  Some antidepressants, anti-psychotics, axiolitics work well for some alters and not for other alters.  I was taking Parkinson’s medications for the side effects of other medications while feeling horrible from the side effects.  So, that represents toxicity to me.  My psychiatrist offered as a last resort the state’s Medical Marijuana Program because of all the mood swings, PTSD, hallucinations and every other symptom I would have at that time.  Now believe what you want about medical marijuana, but I can personally tell you that that medication as it is so treated, is one of the reasons my wife, son, friends and family still have someone they love living.  The memories of the trauma alone are more than I can handle.  The effects of PTSD steal your sanity one image, smell, thought or sound at a time. The body memories while very painful become a little more tolerable with the marijuana and acupuncture.

This is why I’m also so big on people recognizing and working on their own trauma.  That way people like me who set out to enjoy life don’t have to wait 40+ years to understand what that means.  I’m representative of people who were too proud or stubborn to face their own demons.  This too was not a “choice.”  I understand the concept of ‘free will.’ Where was my free will?  That’s right, there was none.

People from all walks of life have this diagnosis but go on for years with the wrong diagnosis because so much can mimic other diagnoses.  There are also those still that live with this diagnosis and are very successful members of society.  The trauma didn’t just occur overnight.  It’s has happened my whole life so, the process won’t resolve itself overnight.  There is a lot of painful elbow grease that has to be put into this recovery.  The point is to keep putting one foot in front the other.  I’ve never backed down from a fight and won’t start now.  You just can’t take the athlete out of me.

I will take you through the victories and the setbacks of this journey.  Hopefully, I’ll help educate you while also healing me.  The only thing I ask is keep an open mind.

#Thispuzzled

darnold1975

Winners

Winners

8.14.14

“It isn’t the mountains ahead to climb that wear you out; it’s the pebble in your shoe.”
-Muhammad Ali

Today is one of those days where I regret being able to open my eyes.  I rolled out of bed this morning and felt like I had been at war all night.  My body feels like I’m detoxing from a chemical that I haven’t taken.  And it’s already begun happening at 6:00am.  I feel the overwhelming sense of sadness mixed with anxiety.  The nausea is hitting like a gulf coast wave from Hurricane Katrina.  I feel that overwhelming sense of needing to vomit.  Halleluer! I must not have eaten before I went to bed last night! I didn’t see any remnants of anything.  So, I grab my cannabis wax pen and take a couple of hits off it to settle my entire system down.  This has also helped to combat a horrible headache that was beginning to hit like a thousand hammers.  Then the diarrhea hits like some kind of ‘shock and awe’ attack on Iraq.  How soon until I have another acupuncture session?

I’m actually catching a break from these symptoms right now.  The medical marijuana is just like any other medication, it too has its limits.  However, the combination between both mmj and acupuncture and a drastic slow down in therapy seems to be slowing everything but my mind.  What was started about a month ago and was exacerbated when we traveled home has continued to plague every inch of my mind.  This blog, no doubt, is an exit for both frustration and education on certain topics.  But, for now, certain things must be kept hidden to ensure safety on several different levels.

Am I just trying to have a “poor, pitful me” moment today? Hell no! You’re just getting a ‘firsthand’ look at what some people’s days are like.   Like I’ve said before, “writing about these topics on my own abuse has had numerous effects on me both mentally and physically.”  Yes, I realize that I had an awesome life up next to others who have had some horrific things happen in their own lives.  I’m not going to compare stories because this blog is not about minimizing anyone’s personal traumas.  Have I cried about feeling so guilty about being upset over seemingly insignificant things? Absolutely!  But, the fact is that things did happen.  I’ve held that shame and guilt so long that my mind and body feels like I’m melting.  And I’ve stuffed and stuffed feelings for so long that I’m not only nervous….I’m terrified to work with them.

The “special” people helping to guide me through this process must either be angels from God or “gluttons for punishment.”  LMAO!!!  I feel like I’m really just beginning this treatment even though, I’ve been in therapy for a few years now.  I just don’t have the ability to keep my defenses up like I use to.

As an athlete, “YOU NEVER GIVE UP!” You play until you hear the whistle blow.  This drive is not one that can be taught. You must be born with a love for the game and the athletic ability to become the best ballplayer you can become.  I got my softball playing nickname ‘Charlie Hustle’ from one of my earliest and dearest coaches assigned to me by Nick Kolinksy.  He always told me that I played a lot like Pete Rose and never gave up.  I smile every time I remember as a kid playing ball for him and always feeling a sense of ‘safety’ around him.  He would tell me sometimes, “Dana, that was a $100 catch and a .10 throw.”  He made his point very clear but didn’t crush my self esteem as a ballplayer or as a person in the process. He and other coaches are on my list of ‘special’ people that had a dramatic and positive impact on my life from a very early age.  I never complained about going to practice or games.  That was a way out for me.  Playing ball was my life.  Pete Rose said it the best way that I know how to describe the love that I had for the game.  

“I’d walk through hell in a gasoline suit to play baseball.”

—Pete Rose

Occasionally, that old, washed up athlete comes alive in me again with reminders about how “putting one foot in front of the other is still considered progress.” I get caught up a lot on what the definition of ‘progress’ or ‘winning’ is about in regards to therapy.  Sometimes, the best I can do for that day is just get out of the bed.  Even doing that means that I made progress because one foot had to be put in front of another foot for that to be accomplished.

Sometimes people ask me what it’s like to process trauma.  To me it’s all about going to war, except this time, I know what I’ll be faced with.  I have survived it once so, it can be done. Do I have the strength? That remains to be seen.  I relive everything all day everyday anyway. What makes this situation different?  I have actively made a choice to volunteer to go through it again.  The fear can make me angry, frustrated and paralyze me at times.  I must admit that it’s very unfair to be almost 40 years old and still paralyzed in many ways by what others have done.  I can hear some of the old, southern biddies saying, “She made her bed, now, she can lie in it.” And that’s fine, if that’s your reality.  My reality is this….”I don’t care what the circumstances were…No one deserves to be abused in any way….EVER!  My ex-husband, teacher, baby sitters and birth mom didn’t deserve the abuse that they suffered at the hands of their family and people they trusted.  When the effects of the abuse begin affecting them then, the new generation of abuse is born and is taken out on other people who become their victims just like I did.”

This time….”I WILL NOT ONLY SURVIVE, I WILL WIN!”

#thispuzzledlife

 

#Thispuzzledlife

darnold1975

Family Day

Family Day

9.8.14

“Some people’s lives seem to flow in a narrative; mine had many stops and starts. That’s what trauma does. It interrupts the plot. You can’t process it because it doesn’t fit with what came before or what comes afterwards.” 
― Jessica Stern 

And then you have a random day where everything seems wonderful.  I’ve been in public without getting sick.  I’ve stopped and talked to a friend and laughed.  I’m only dealing with minimal physical ailments this morning.  Maybe the weed, klonopin, Valium and ativan are working.  I’m not asking questions. I’m just going to enjoy the ride.  Reality will be back soon enough.  At least I’m not sick despite all of the medication.

I wish I had had the break from some of the side effects from when we went and took pictures on Sunday.  I was all dosed up and ready to face the people and overstimulation of my brain.  The plan was to take Marshall to the botanical gardens and let him ride the choo-choo.  Off our little family goes to find the choo-choo.  Did I mention that I had been dosed with a good bit of meds before I left the house?  I vaped on my wax pen all the way to our destination at the Botanical Gardens.

Everything was going fine. Marshall was enjoying running around being a kid.  Mel was…well….being a mixture of a professional photographer and a mommy.   Today was going to be the day that Marshall and I had “mommy/son pictures.”   Other families were there having picnics and just enjoying a nice, cool Sunday late morning and taking in the scenery.  The people were spread out so, at least, I wouldn’t have to worry about them touching me.  I had my wax pen ready, my sunshades to hide my life full of shame and my IPod ready to face any type of external or internal stimulation.

Marshall was showing me things and asking, “Bite you?” So, our conversation was typically, “No, baby, flowers don’t bite.”  Then he sees the koi pond. The koi have instantly become sharks.  He starts shouting to get our attention, “Sharks, Sharks!” Yep, this momma was proud that our son knows the difference between a fish and a shark.  I look behind me thinking because I thought I heard someone call my name.  It was a seemingly peaceful pathway filled with small trees, bushes and ground covering.   “Here we go,” I thought but not knowing why.  I notice my stomach getting a little nauseated but took a couple of vapes off my pen and hoped that the feeling would go away.  I soon noticed that my jaw began hurting. The muscles in my body began cramping. The nausea became stronger.  I told Mel that I was going to sit down a few minutes to rest, but really hoping that I just didn’t throw up.

 The longer I sat there, the worse I felt.  As a tear, dropped from my eye underneath the sunshades and shaky voice, I told Mel we needed to go home.  An unimaginable fear I must’ve been ‘triggered’ but I hadn’t realized it. Then, the headache hit.  Not as bad as the one last week, when I had acupuncture where I never remembered the visit, but plenty bad enough to feel miserable.

Once again, my physical symptoms have messed up another family outing. And soon the shame and guilt hit me like a “tornado propelled bumble bee.”  I had no warning but thought it was probably in the lineup somewhere.  I felt like collapsing from just sheer embarrassment, even though, people around me didn’t seem to notice. I just sat down again and tried to wait for the feeling to pass. After several minutes, I decided no more waiting and listening to music. I suddenly had to GET THE HELL AWAY FROM WHERE I CURRENTLY WAS!  Something still seemed to scare me, but I didn’t know what.

I tried to remember what we were doing, and what had just happened to cause such a scare.  I couldn’t remember what I had said, done or thought. All I could do was hope that ‘it’ was over soon.

MY wife, being the very understanding person she is, told me everything was ok and we could come back another day.  The disappointment laid somewhere deep within me, not her.  She had no idea the level of disappointment I was experiencing.  Everything was fine and now it wasn’t.  Marshall didn’t seem to notice and neither did the people passing by. So, now I act like everything is fine, right?  I stood up and the familiar feeling hit me but this time it scared me. My body didn’t feel like I could control itself but I was moving.  It was as if I was watching this awkwardly walking human being that I didn’t recognize. ‘Things’ just weren’t ok for some reason.

We were still able to get some good pictures of me and Marshall.  But, the disgrace of the signs and symptoms of disorders can be embarrassing even if other people don’t seem to see them.  Some things can’t be hidden.  Some things have been hidden for years and are now noticeable.  I just wanted to get back to my ‘familiar’ surroundings….HOME!

#Thispuzzledlife

darnold1975

Who Am I?

Who am I?

9.8.14

“Don’t underestimate me.  I know more than I say,

Think more than I speak,

 & notice more than you realize.”

–Anonymous

Behind the smiles you don’t see the frowns.  Behind the laughs you don’t see the cries.  Behind the eyes you don’t see the tears.  And behind the contentment that you see in the pictures of me and our son, you don’t see the fears that I hide.  You see what I allow you to see.  I let you see what is socially acceptable.  But, you DON’T see the real me.  What if you did? Would you even recognize me? Could you even pronounce my name?  Or would I be that same person, to you that you’ve grown-up with and known the majority of your life?

I resemble the same person you knew in middle school and high school.  I have a wife instead of a husband.  We have a 2.5 year old son.  We live in the time zone known as “Marshall Standard Time.” I wear shorts and t-shirts instead of cleats and uniforms.  I’m still the same ‘clown’ that you’ve always known me to be.  I still laugh at inappropriate shit. My humor about things has never disappeared.  I’m just not as “happy-go-lucky” as I use to be.

 There wasn’t one event that caused a change in me over time.  It was abuse that occurred over many years that has changed me.  If I met you 20 years now since high school, you would see that same person that you were in the halls with but attached to my leg is a little boy. And attached to my heart is my wife, Melody Landrum-Arnold.

No one ever knows someone else’s true “secrets.”  You saw a seemingly happy wife walking by her husband’s side and holding his hand.  You saw parents supporting their child in every way possible. You saw an athlete very passionate and dedicated to the sports she loved.  And you saw a fun loving and respectful person when our paths crossed.  There were scars and open wounds that you never knew.

What you didn’t know or see were all of the “secrets” of a lifetime of abuse.  What if you knew all of my thoughts? What if you knew the things I was made to do? Would you look at my scars and be disgusted? Could you look me in the eye because I couldn’t you? Would you stand there speechless because of the lies you were told and believed? Or would you say, “Gee, I’m sorry” and avoid all eye contact.  Why? SHAME.  Those of us who were once victims carried the shame of our abusers who were “shameless.”

I wish people who have and continue to judge me could spend one day in my brain with all the chaos as a result of the abuse.  You wouldn’t survive one minute!  No one taught me how to survive all of that.  I figured it out on my own.  Some behaviors are maladaptive, I’ll agree.  I did what I had to do to SURVIVE in any way possible!

I’ve been very strong for many years but I’m tired.  Mornings like now seem like the movie Groundhog Day.  The abuse replays every moment I’m alive.  Every morning, the abuse starts all over again.  I feel like, I’m stuck in survival mode all the time.  Sometimes I feel like a victim and sometimes I feel like a survivor.  I try and live life “one minute at a time” because “one day at a time” seems entirely too long, right now.

I’m very much a realist.  I see things for the way they are, instead of the way they can be.  The whole analogy of the duck is how I view even the simplest of events, ideas, comments, etc.  So, basically I get in my own way.  Part of this process is going to be to retrain how the brain perceives things, I think.

I also repeat things sometimes at different times.  So, if some of the abuse stories seem to overlap, just ignore and keep reading.  I’ll explain why this happens later.

Please try and understand that this is just where I’m at in my healing journey.

#Thispuzzledlife