alters

darnold1975

Life On Life’s Terms

Life on Life’s Terms…

2.21.15

“So it’s true, when all is said and done, grief is the price we pay for love.”
― E.A. Bucchianeri, Brushstrokes of a Gadfly

The title of this post is very cliché in the 12-Step community. However, recent events from the last few months have finally answered, for me, how this fits into my life. I know…I’m a slow learner. “Living life on life’s terms” recently has come to have meaning by my own disorder that I struggle with both mentally and physically every single day I open my eyes. I manage my DID the best way I know how, at this point. I have excruciating body memories that often leave me in tears, migraines, diarrhea, severe anxiety, nausea, vomiting. Not to mention how crazy it can get ‘upstairs’ sometimes.

Just because I have Dissociative Identity Disorder or someone else has bipolar, or depression or whatever your current diagnosed or undiagnosed opinion of your situation is doesn’t mean that life just ceases to go on. This disorder in itself can be very tricky and dangerous depending on what alter is in charge at the time. This too is a work in progress.  My point in general is that just because I have a disorder doesn’t mean that people won’t die, people won’t be self-centered, people won’t reject us as a family and as it’s been going lately even one of our own unborn children might die.

Yesterday was one of my proudest and saddest days of my life. I had it all set up before the day began. I was hoping for a therapy appointment so that I could process what I knew was soon going to happen a bomb was going to go off inside my head and body whether I wanted it to or not.   Whatever was going to happened, I just didn’t want it to happen while I was alone. So, also knowing that grief was a part of this process that was about to ensue, and how acupuncture is helping with the release of trauma from a cellular level much like writing, I took my very sore and aching mind and body over to where I was to have acupuncture so that the grief could also be helped to be released soon after the service was over. Loneliness is a feeling that I don’t handle very well. I needed my wife, one of my therapists or someone to be there at that moment.  But, alas, I was there to face yet another demon alone.

I took all of the medication that I thought I would need for this event and kept it very close at hand. Mom and Dad were going to try and FaceTime Sarah’s service for me.  I begin getting so anxious that I would miss this service that I was nauseous. I was already in excruciating pains from body memories and knew that another bomb was about to go off in my physically and mentally. This wasn’t going to be an incident where not just one alter was going to be effected. All would be deeply affected and hurt.

 And suddenly there was the call from my mother and the FaceTime camera was going perfectly and I’m so relieved at the moment that I’m able in attend. When Doug passed away, there was no possible way for us to get home so, I was bound and determined to see Sarah’s service.  When the service started, I was once again thinking, “Is this funeral for the Sarah I called mom?” My heart begins to ache and my eyes fill up with tears as I keep my shades on and ear buds in. I try to be as inconspicuous as possible. Crying in public and around people tends to be dangerous for me in the past and shows that you’re weak and an easy target. I choke back what I can. Eventually when the reality hits me that she’s really gone and I’ll never be able to ask her for her levelheaded advice again, I’ll never be able to sit on her couch for hours talking and laughing about experiences both good and bad about being therapists. Or about what a handful of a patient I could be. Or about the precious woman she introduced me to and our little boy and one in the oven.

I cried but seemed to maintain a calmness all through the service.  My heart was going out to her family and the friends and former co-workers that spoke.  The things they said about her couldn’t have been any more truer words.  With the many people’s lives that she touched, I was even able to say a very brief “hello” to one of the former therapists that worked with Sarah at the same time I was a patient.  They played “good cop, bad cop” very well together.  However, this person also is a very highly respected person by me to this day for what she helped Sarah accomplish….getting through my extremely thick skull.  I’ll leave it at that for now.

I held most of the grief in until I said goodbye to my parents.  In that lonely parking lot, I cried like a child that had just lost her parent and for me she was just that.  I sat there and cried and cried until the cries switched over to crying about the pain in my body.  The bomb had been set off and exploded.  My legs are now throbbing and I’m sobbing uncontrollably while trying to keep anyone from seeing. Why?!  I just don’t understand.  She was suppose to be fine from the chemo.  Oh how my heart still doesn’t understand.  The emotional level of this grief has brought on nausea to a point that I’m terrified that someone will see me begin to vomit.  I take a couple of hard swallows making sure I keep, I guess air in.  I made sure with my eating disorder that it was ok to not eat since I was going to be dealing with something so difficult.  The eating disorder agreed that food was not the best thing plus it would make me look horrendous.  Even dry heaving would’ve embarrassed me to the point of never returning as a client even though no one was around to really see anything.

My body was screaming and my mind, heart and soul were in shambles.  “What do I do now?” I keep asking myself.  She was my voice of reason.  I’ve lost all track of time and there she is, the one I’ve been waiting to help relief me of some of the agony.  Yes, she’s an unbelievable acupuncturist but she’s also a human being.  She instinctively knows that something’s wrong.  I proceed to chat with her a moment about it.  The tears as hard as I tried to keep them from falling and save myself some embarrassment, they just kept falling at a rate that I rarely do around someone other than my wife.  I knew that I had no storage left in my body to hold anymore grief since many years of grief have accumulated.  I had strategically schedule this appointment for this reason.  I wanted to grieve and let it be released at the same time.  I vividly remember stepping out of the vehicle, waiting to be made fun of for crying, and it never happened.  I could hardly walk because with each step the fire in my legs became more excruciating.  She took time with me to just let me talk about my grief but the pain in my legs and my soul was too much for me to handle.

I woke up to almost non-existent pain but more like soreness from the tenseness of my muscles.  I was lying down which rarely happens because of the sexual trauma from my past.  I wake up with a horrible headache and very disoriented trying to put together the pieces of how much time had gone by and what had transpired that I had no knowledge about.  I know that something has happened because I was lying down.  The embarrassment of her seeing me in the condition that I was in when I remember walking in was starting to flood me.  Honestly, I’m glad that someone that I trust was there with me.  I don’t know what all happened.  It happened on life’s terms and so did Sarah’s death.  What I do with that hole in my heart and soul remains to be seen.  I’ve felt powerful grief when my grandmothers died.  This grief while just as important was just different.  She was like my guardian angel on earth.

I have little to no knowledge of driving back to meet my wife for another appointment or the rest of the day.  I awoke this morning pain free with what I like to call an “emotional hangover.”  I was greeted this morning with a migraine and nausea.  But, for the first time in quite a while I woke up on my own and not courteous of excruciating body cramps.

#Thispuzzledlife

darnold1975

Out Of The Darkness, Into The Light Part2

Out of the Darkness, Into the Light Part 2

1.29.15

“I want everyone that has been abused by someone in their childhood to know that you can get past it. Having DID is not the end of the world; it’s the beginning of your new life. DID allows the victim of exceptional abuse the ability to “forget” the abuse and continue living. Without it, I may have gone crazy as a teen and spent my life in  a psychiatric hospital.” 
― Dauna Cole, A Shattered Mind: One Woman’s Story of Survival and Healing

One of the major issues with this disorder are what most people refer to as ‘alters’ or other personalities.  What I’m going to try to do is to paint the picture for you in a way that I’ve been learning how to understand this.  So, imagine you have an apartment complex and each person has their own room.  Except in these rooms, there are horrible memories that are behind doors and no one can get in without a key.  The only people that have these keys are my therapists and my alters which help keep anything else from hurting me.  This is what has protected me throughout the years.  However, some of the coping strategies that worked then DO NOT work now.

Alters can also range in age depending on at what age the abuse occurred.  As dysfunctional as things can get at times the alters as a whole are referred to as a ‘system.’  Until consciousness together can be shared, there might always be memory loss.  The amnesic episodes are, at the very least, scary as hell.  The memories that I often have include only flashes of pictures of the day or days. The information date, time and situation is usually not available.

Alters and systems are as individual as a finger print.  There is no ‘cookie cutter’ way of treating DID.  The most important thing to me hands down is the relationship with my therapists.  Without that relationship, recovery is futile for any issue or disorder.  I trust my therapists enough to take me into the depths of the most terrifying events that have ever happened to me.  This relationship that has been  allowed to happen, as close to trusting, as possible has taken 2 years now with one therapist.  However, both the ups and downs of these relationships has lead to the progress now being made by leaps and bounds.  Painful as this process is, I can only hope that things actually get better.

The tenets in these rooms represent parts of the person you know as Dana.  I will not get into discussing how many or their names.  I can tell you that while growing up with some of those reading this blog alters were already formed or forming.  Not only do these alters hold memories, but they also function in different ways.  However, sometimes the problem with the alters is that they function completely independent from the individual known as the ‘host.’  This is usually the mood swings that you might see. Alters develop out of traumatic events and sometimes more than one during a single traumatic event.   Just to put to rest for those that don’t know my parents, no they were not any part of the abuse.

Alters actually develop when the brain compartmentalizes the traumatic event, memories, etc.  The trauma is so overwhelming and the mind and body both have to survive, that the only way the individual knows instinctively to survive is by developing a new alter even though they may be unaware at the time.  Often times, it is many years down the road that survivors even realize that they have alters.  Therefore, many survivors are trapped in the cycle of the mental health system being misdiagnosed for years and much money spent on treatment for the wrong diagnoses.

Often times, many people say, “I’ve been through worse things and I don’t have alters.”  The only answer I have found is that what’s traumatic for one person may not necessarily be traumatic for another person.  There is also a genetic predisposition to being able to dissociate.  And dissociation is key to the formation of alters.  What is known is that trauma of any kind effects the brain permanently.  Severity depends on how long and what type of trauma was occurred.

You can most definitely have PTSD without meeting criteria for DID.  DID cannot exist without a diagnosis of PTSD since that is a large part of how the disorder forms.  DID also usually always entails some form of early childhood sexual abuse although ‘splitting’ in adulthood is uncommon.

“Another of the difficulties of having DID is the denial. DID is a disorder of denial. It has to be because if the original person knew about the alters and felt their pain, they would either go crazy and be hospitalized permanently, or would die.” 
― Eve N. Adams, A Shattered Soul

#Thispuzzledlife

darnold1975

Out Of The Darkness, Into The Light

Out of the Darkness, Into the Light Part 1

1.1.2015

 “Dissociative parts of the personality are not actually separate identities or 
personalities in one body, but rather parts of a single individual that are not yet 
functioning together in a smooth, coordinated, flexible way. P14” 
― Suzette Boon

Since this begins a new year, I thought I would start it off with a ‘boom’ of reality from our world.  The topic that I will discuss is one that has such stigma attached to it that it’s has taken me months to muster the guts to discuss it.  This is a topic that hits home in the best/worst kind of way.  I’ve written for months now explaining some of the many symptoms that I experience mostly on a daily basis.  2014 was no doubt one of the most difficult for me, Mel and Marshall.  However, we as a family including my brother have shed tears together, as well as, have a lot of laughter. I have also smoked a ton of medical marijuana just to be able to live day to day.

I figured that a few months ago when I ‘came out’ out as a medical marijuana consumer, the thought crossed my mind that even though people can be cruel when it comes to mental illness, that since this blog is about MY healing I would ‘come out’ about my particular illness.  Many have read my blog since day one and for that I thank you.  I would also like to say that while reading this particular post that you just keep an open mind.  I’m not going to try to change your opinions or perceptions of mental illness.  I’m simply going to try and paint you a picture of mine to the best of my ability.

I have Dissociative Identity Disorder (DID).  Now for those with no therapy background, I can tell you that this is the same thing as Multiple Personality Disorder.  And now your opinions and thoughts begin to race. The only references that most of you have are those of the books/movies The Three Faces of Eve and Sybil.  Hollywood did a horrible job painting a picture of what those of us with this disorder look like and how we function on a daily basis.  Guess what?  I’m still the same Dana that you grew up with and loved.  I just have a world that has formed inside my brain that I didn’t realize everyone didn’t have.  I didn’t question it because to me that has been my normal.  Does this diagnosis make me ‘crazy?’ Should it make you fear for your family’s life if I happen to be around? Does this make you want to run as fast as you can in the opposite direction?  I can promise you that all of that energy would be wasted.

The symptoms that I have mentioned in other posts are all true and are a part of daily life for me.  I can’t tell you what it’s like living with a spouse with this particular disorder because only my wife can answer that.   I can tell you that it’s the most intricate puzzle I’ve ever had to try and figure out.  Having only had this correct diagnosis for almost 1.5 years we, as a family, have had to adjust.  We were already adjusting prior to Marshall being born.  His birth somehow set off a bomb inside my brain that retriggered everything that has happened to me.  Not his fault or mine, just our reality.

With both my wife and I having Master’s Degrees in Counseling, we were baffled when we never even considered this diagnosis as one that would fit.  Even in graduate school, because of limited time to study the Diagnostic and Statistical Manual of Mental Disorders we didn’t see the signs.  If you want to know why we had limited time to study on this manual, just take a look at it one time and you’ll see that it could take years to be taught thoroughly and it’s like computers changing all the time.  This diagnosis is still part of a great debate about whether or not it’s an actual diagnosis. I can’t answer for other families but for our family it’s very much a REAL diagnosis.

Some people have, in fact, asked Mel if she felt safe around me with Marshall.  The answer is always the same….yes.  There’s a lot of self education we’ve had to do because of the stigma within the mental health communities, as well as, those outside that community.  We don’t have all the answers yet to how and why and neither does science. I can tell you that the very slow journey of recovery from a lifetime of trauma actually began when the correct diagnosis was given.  Now I finally had answers to why sometimes I would answer myself and had what I thought were ‘loud’ thoughts.

To see me today, I’m the same goofy ass, class clown that was and still is friends with Levi Pierce.  I have scars on my arms.  It’s nothing to be afraid of, it’s how I survived.  You don’t have to be afraid to have your kids around me. I’m not going to cook them and eat them.

DID, as I’ll refer to the diagnosis from now on, is not near as scary as the picture that has been painted.  Does it have scary moments? Of course.  So does Bipolar, Major Depression, Schizophrenia and any other disorder.  This disorder requires a very patient and understanding spouse, as well as, professionals to be able to deal with some unpleasant moments.

The title of my blog “This Puzzled Life” is all about putting these scary pieces back together enough for me to be able to enjoy doing what I love…..helping people.  Once piece at a time is how I’ll learn to live with this disorder.  Trial and error is how it’s been for almost 1.5 years now with the correct diagnosis.  Prior to the correct diagnosis it was and still is at times a total nightmare.  Also, life continues regardless if I have a disorder or not.  Friends and family still pass away which can complicate things.  But, this too, is just the way life operates.

 With very patient but firm therapists, I’m finally being able to look very closely at some of the horrors.  The ‘alters’ or other personalities, if you so wish to call them, have their own story because they were created by the mind at very key times in the abusive history.  Alters together are called a ‘system.’  Each ‘alter’ has his/her own function within the system.   Each person with DID has a system much like that of a finger print.  Not every therapy works the same like a cookie cutter.  Do not be afraid to ask what you don’t understand.  Your fears come from what you don’t understand.

“DID is about SURVIVAL.  As more people begin to appreciate this concept, individuals with DID will start to feel less as though they have to hide the shame.”

–Anonymous

There are also no psychotropic meds that are specifically designed for this disorder.  This also explains why for the first 3 years of seeing a psychiatrist none of the meds worked for an extended period of time.  Some antidepressants, anti-psychotics, axiolitics work well for some alters and not for other alters.  I was taking Parkinson’s medications for the side effects of other medications while feeling horrible from the side effects.  So, that represents toxicity to me.  My psychiatrist offered as a last resort the state’s Medical Marijuana Program because of all the mood swings, PTSD, hallucinations and every other symptom I would have at that time.  Now believe what you want about medical marijuana, but I can personally tell you that that medication as it is so treated, is one of the reasons my wife, son, friends and family still have someone they love living.  The memories of the trauma alone are more than I can handle.  The effects of PTSD steal your sanity one image, smell, thought or sound at a time. The body memories while very painful become a little more tolerable with the marijuana and acupuncture.

This is why I’m also so big on people recognizing and working on their own trauma.  That way people like me who set out to enjoy life don’t have to wait 40+ years to understand what that means.  I’m representative of people who were too proud or stubborn to face their own demons.  This too was not a “choice.”  I understand the concept of ‘free will.’ Where was my free will?  That’s right, there was none.

People from all walks of life have this diagnosis but go on for years with the wrong diagnosis because so much can mimic other diagnoses.  There are also those still that live with this diagnosis and are very successful members of society.  The trauma didn’t just occur overnight.  It’s has happened my whole life so, the process won’t resolve itself overnight.  There is a lot of painful elbow grease that has to be put into this recovery.  The point is to keep putting one foot in front the other.  I’ve never backed down from a fight and won’t start now.  You just can’t take the athlete out of me.

I will take you through the victories and the setbacks of this journey.  Hopefully, I’ll help educate you while also healing me.  The only thing I ask is keep an open mind.

#Thispuzzled